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User offline. Last seen 2 weeks 19 hours ago. Offline
Joined: 06/30/2008
Posts: 108
Points: 218
Decline surgery?

I am thinking about declining a surgery offer because it may not work and could make me worse. I have severe extensive arthritis and documentation to prove it. I am 52. I have tried oh soo many things including surgery, PM, SCS etc. I am still working on light duty but work is getting frustrated with me. The question is: If I decline the not emergency but risky surgery will this hold me back from SSD benefits? The OS states the I have "profound degeneration at multiple levels and severe ossification."
Nancy

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Cervical foraminotomy with complications turned in a lamy. 6/24/08. Ossification of the posterior longitudinal ligament, cervical and Thoracic. Diffuse idiopathic skeletal hyperplasia. Congenital fusion C5-6 and other hidden birth defects, Severe DJD entire spine, stenosis and osteoarthritis in many other joints. SCS trial 3X's, Facet injections, MBB. On an extended journey to find the blend.

charry's picture
User offline. Last seen 1 day 23 hours ago. Offline
Joined: 09/06/2008
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Points: 11898
Hi Nancy

Make sure you ask the Surgeon if the surgery will help any spinal instability or stop any further degeneration or nerve compression.

I don't know about SSD benefits since I don't live in the States but I was accepted for my country disability because of severe pain and an abnormal EMG/nerve test and can barely walk too far and can't work and the meds make it hard to concentrate and depression from having chronic pain as well as being over 50. I also never had any surgery yet but being unable to work is a big reason for disability. I hope you see your Surgeon and find out if you don't or really do need surgery. Maybe a second opinion Ortho or Neurosurgeon would help you decide. Take care. Charry

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Any answers I have is not medical advice only a Doctor can help you with that. Just sharing my personal experience as a fellow Spine Health member only. DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing Neck-reverse Lordosis of c-spine C6-C7 with impingement, numb hand and sore outer elbow. Keep the faith.

babyruth's picture
User offline. Last seen 1 week 2 days ago. Offline
Joined: 04/11/2010
Posts: 260
Points: 524
i don't think refusing a

i don't think refusing a surgery that may not work and may make your situation worse, should prevent you from being a successful disability candidate, granted i do not live in the States either, i'm not sure how things work there. i think if your doctor can provide documentation of how pain has affected things like mood, work, socialization, activities of daily living, sleep, concentration, effects of medication, ability to dress yourself, limitations in sitting and standing, that would be a good start. i think Disability needs to know how impaired you are ... think of everything you can ... for example, inability to shovel and cut grass, plus difficulty carrying groceries, and all that kind of stuff. i think the more systems that are impaired would seem to make you a clear candidate. but i am not medical doctor so you can just take what i say as nothing but my opinion. i hope this helps. oh yeah, if the surgeon can provide a brief note (perhaps one sentence that he has recommended this intervention and you turned it down for your reasons) would be awesome too. even if the surgeon can't do this your general practitioner/primary care worker could probably do a note ... for example state that you talked to surgeon "X" and turned decided against it because of ... this would mean that it is "documented" and this is a good thing. i'm just a chatty cathty tonight, so i shall shut my mush for now

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"Two men looking through prison bars, one sees the mud, one sees the stars" - Frederick Langbridge

User offline. Last seen 1 week 13 hours ago. Offline
Joined: 06/26/2008
Posts: 610
Points: 1226
That saying from old charlie

BabyRuth - That saying from old charlie Brown is hilarious. Spine AZ would be the one to ask about this.

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Herniated T6-7 impinging on cord. Annular tears in T5-6 and T7-8, DDD and smorls nodes throughout thoracic. Small herniation in C2-3 and buldge at L 4-5.

"A hundred years from now it will not matter what my bank account was, the sort of house I lived in, or the kind of car I drove . . . . but the world maybe different because I was important in the life of a child."

alexhurting's picture
User offline. Last seen 4 hours 13 min ago. Offline
Joined: 12/15/2008
Posts: 1537
Points: 3152
I dont believe refusing

I dont believe refusing surgery in most cases stops a person from ssdi by any means,

I received ssdi before i ever had the surgery. Only later i decided to have surgery which sadly made me even worse, Good luck

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L4 L5 disc replacement in 2004=causing nerve damage'Flexicore disc. 2006 fusion same level leaving adr in. Fusion did nothing to releive the nerve pain.Pain clinic=every injection procedure avalable inc,razadamy, ablation, nerve stimulater trial,morphine pump trial all failed. Pain can be described as burning pain in lower spine penetrating in to left buttock,down left leg. Refuse to take lyrica or nuorontin do to its side effect,Leaving me with norco,valume,and flexiril at night.Which these medications only help with the muscle aches and stiffnes does nothing for the nerve pain from the nerve damage sustained from the adr surgery.Coming up nov.19th 2009 Lami, and hardware removal from fusion,for hardware just causing more pain in other areas.Hardware block comfirmed hardware is also causing pain in diferent area aside from the severe nerve pain on left side.Emg showed some posible problem above surgery are at L3 L4.

SpineAZ's picture
User offline. Last seen 1 week 1 day ago. Offline
Joined: 10/21/2009
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Points: 2084
Surgery

Refusing surgery is not something that plays against you in SSDI (or LTD or even CPP from what I've seen). No one can make you have a surgery even if your arm falls off becuase you decline a surgery...no one can "ding" your record for that. It's not uncommon for someone to say "have you considered the options?" and you say "yes, at this time there are none that would work for me". If someone didn't have SSDI yet and were at an ALJ hearing I could see the judge saying "have you considered....." if it's in the record. But he can't use it as part of the reason for a denial.

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Rt. Total Knee Rplcmt 09/2011
L3-S1 PLIF '10; L4-S1 PLIF '93; L5-S1 PLIF '87
C5-C7 Foraminotomy '08; C5-C7 ACDF '06
Bilateral knee arthritis. Bilateral CTS.