4 years of misdiagnosed pain from unstable sacroiliac joint & deformed coccyx

4 years of misdiagnosed pain from unstable sacroiliac joint & deformed coccyx

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Anonymous (not verified)
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4 years of misdiagnosed pain from unstable sacroiliac joint & deformed coccyx

I'm a 31 year old female who has suffered with progressively worsening SI joint pain for the past 4 years which until recently has been misdiagnosed as coccyx pain. My first symptom came as a sharp stabbing pain (rated a 4 at it's worse) which would mostly resolve by laying flat on my back and relaxing my muscles until I felt and heard a loud clunking pop in my lower back. This continued intermittently until the pain was constant and the self manipulation ceased to work. I then consulted a chiropractor who noticed my tailbone protruded abnormally and asked me if I have ever broken it which I haven't. He manipulated my spine and directed me to keep my posture better. I followed directions and continued to visit him for over a year taking Tylenol, Aleve and Ibuprofen at an ever increasing rate but the problem itself only got worse and worse. Finally I scheduled an appointment with my PCP who sent me for X-Ray and CAT Scan which revealed a coccyx angled sharply 90 degrees inward toward my pubic bone possibly a congenital deformity. My pain then stayed at a 5 rating pretty much all the time and is a sharp burning quality. The Dr. put me on Vicodin and referred my to an orthopedic surgeon 3 months later who couldn't help me anyhow because he only dealt with knees and elbows. That Dr. referred me to a neurosurgeon in Pittsburgh who also couldn't help me but referred me to another Pittsburgh surgeon for a coccyx-ectomy consult. That Dr. strongly opposed the surgery until last resort and sent me on to a Pain management clinic. The clinic scheduled me for diagnostic injections and then I found out I was expecting. I'm due Jan 23rd 2009, I have been on Percocets the entire pregnancy and the pain isn't managed well. It has gotten worse for the past few months for obvious reasons. The pain is so bad sometimes I feel so helpless and hopeless I just cry and want to die. I feel like a huge burden on my husband and children. I'm optimistic about the treatments I can have after I delivery the baby but I'm concerned if the deformed tailbone isn't surgically removed it will continue to put to much stress on the SI joint and keep it unstable. I'm not the same person I used to be and I hate the state of mind chronic pain has sent me to. I get so mad at myself for not being able to rise above it. I'm glad I found this website.

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J.J.Grey
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Last seen: 2 years 5 months ago
Title: Member
Joined: 06/23/2008 - 8:45pm
Welcome to SH

I am so sorry that you are dealing with all of this. We actually have a few members that are pregnant and in pain on this forum. Maybe you can all be of some support to one another. You have come to a great place for understanding and support and I look forward to seeing you around the forum.

meydey321
meydey321's picture
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Last seen: 10 months 2 weeks ago
Title: Member
Joined: 06/26/2008 - 6:22pm
HI KCAllen

Welcome to Spine Health and we're happy to have you here. Sorry that you are having a difficult time and we hope your pain improves. I can't imagine how hard it is for you and I'm sorry you are suffering with this chronic pain. All of us have pain from similar problems and understand what it's like to deal with it day in and day out.
Congratulations on the baby on the way, is it a boy or a girl? Party I hope that everything goes great and please let us know how you are doing. Take good care of yourself and the baby and we are here for you whenever you need us.

lulusheart
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Last seen: 1 year 9 months ago
Title: Member
Joined: 06/19/2008 - 5:36pm
A beautiful, healthy baby!

Smile hi and welcome to the forum! Wave we are here to offer you support and answer what questions we can. there are some members here going through some of the same issues you are. i hope they drop by. good luck as you move towards your delivery date. =D> i am sure you will have a beautiful, healthy baby. :X Jenny Smile