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Anonymous
SCS pain coverage issues

Hello,
I am having some issues with my perm scs. I have not found anything really similar on the forums, so just wanted to see if any one else can relate.
I have the Medtronic Restore Ultra, placed at T11-12 for lower back pain. I have had it since 7/10/08, I get the relief in the legs great for the leg pain, but it doesnt go into my back at all, so all of the lower back pain is still there. Dr says that SCS is more for leg pain and not really for the back pain. I guess I missed that information before I decided to get the scs. I have also found that, although it takes care of the leg pain, I think it kind of aggrivates the lower back pain, like right in the lumbar area. Has anyone experienced this? I have had 2 surgeries since the implant to adjust the batter pack, so I have alot invested in the scs and do not want to give up.
Any advise or experience to share would be greatly appreciated.
Thank you!!!
Jeni

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HI Jenni

I have only tried an SCS trial which ended abruptly, so I don't have this experience. However I always wondered the same thing. What if the back and leg pain are equal? I don't know if there is a particular model that is designed to cover both areas, but I'm sure someone here knows about it. I hope there's is a solution for you and that you get to keep the SCS.

_____________

PLS,nerve damage,facet arthropathy,severe DDD,DJD,scar tissue; Fibro
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Hi Jeni

I know you posted this some time ago and I am sure you may have things worked out by now.
I just wanted ro say that my stimulator made my back pain worse and the rep said this can happen. And I read it someplace too.
Cheers
Patsy W Wave

_____________

I am not a Doctor but I do watch House and Doc Martin on TV.

Never give up HOPE..June 18,2010 I had a pain pump implant....I now free of pain.

My thoughts and opinions are just that, my thoughts and my opinions, based on my experiances.

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SCS....

I have an SCS and like you, I have great coverage in my legs but not so much in the back. I don't remember my doc telling me that bit of information either. I feel the tingling from half way up my ribs to the bottom of my feet. What I have discovered is that the scs helps my back pain more than I give it credit for. When I have it turned down pretty low, I notice that my back hurts more. It's not great, but it does help a bit.

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Terrie

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Jeni

Doctors aren't real positive on all the ways an SCS helps an individual. That's one of the big reasons for doing a trial first.

Have you spoken to your rep about this? One thing that I have found with mine, is that depending on how the leads are configured to fire, it can cause pain in my neck and shoulders while at the same time working on the radicular pain.

Have you experimented with running your SCS at a lower setting to see if it is causing the pain? Do you have the "targetmystim" capability activated with your programmer? If so, then possibly decreasing the pulse width will help. I thought I was developing a throat problem a few months ago and found out that it was my SCS creating it. I reduced the pulse width and it took the problem out of my throat.

I highly recommend talking to your rep about this, to see if there's anyway to reconfigure your SCS programming to keep it from aggravating your lower back pain.

It did take a bit for my rep to believe me when I told him that the way the leads were configured, caused pain. After a little convincing he adjusted the firing pattern and things were rocking and rolling great.

"C"

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Great info

I don't want to steal this thread, but this info is invaluable to me. I go in on Wednesday to do the psych eval for a SCS. Having info like this now means I won't be so lost should I encounter some issues should I make it thru to the permanent model. I am mostly afraid I will be turned down, seconded by the fear that my pain clinic will screw things up and I will have to fight to get to the trial.
Then I worry that it will not work.
Is it any wonder people think I'm grouchy and detached? I have enough issues with the pain, fighting to get treatment only adds to the stress!

Please keep the info coming!
Thank you!

_____________

"I have been told my statement or statements are not logical. Would Mr. Spock ride a bicycle down a wooded mountainside when there was a perfectly good stationary bike at home?" NOTICE: Please consult a real DOCTOR before doing anything that may hurt yourself or others! Please be careful!Medtronic SCS Placed May 4, 2009. Cervical, for chronic right shoulder, upper arm pain.

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I

Have gotten reprogrammed 3 or 4 times and I won't hesitate to call again if I feel something is off. I love my programmer and she assured me that is her job and to call her anytime, so I do (and will! lol).

I have the ANS/St. Jude Eon Mini and it's been 3 weeks today. I'm still waiting for the leads to scar down.

I had it turned quite high at first and lately, due to some pretty severe undiagnosed nausea, I have it turned really low. I can't even feel it unless I am laying flat on my back. But it is covering the nerve pain fairly well!! I turn it off every now and then to remind myself just how much it is helping. (I have other things going on with me, like nausea and hives since I left the hospital.)

I have had some back pain, which is uncommon for me, but it is because I'm doing so much more than I have in 3 years!! I know I have some conditioning to be "normal" again. I don't find that the SCS covers my back pain at all, and I have 2 leads with 16 nodes, and that is supposed to increase the possibility of back pain coverage. My back pain, though, is more something I will wake up with and it is gone in an hour once I get moving.

I was lucky in that 2 neurosurgeons explained to me that the SCS isn't the best for back pain and in fact, had I not had horrible radiating nerve pain, neither doc would have considered the SCS for me. But some people do report getting back pain relief. My current doc had told me if I had more back pain with the nerve pain, he would have implanted the Advanced Bionics brand, as he has had more success with that covering back pain.

My leads are apparently as low as they can go before they will be out of the epidural space, so I'm not sure what that means? lol But that is where it feels 'right' to get the buzzing right where I want it.

When I have moments of time when my nerve pain breaks through, I try to readjust my position knowing my leads haven't scarred down yet.

Being able to realize and keep reminding myself that I can get in that car and go to the mall or to a restaurant and that if my nerve flares, I can turn the SCS up higher if needed. It seems like it shouldn't be that hard to remember!!

Jeni, honestly, I would call my programmer and talk to him/her and get some new programs. There are just so many options, so many combinations of nodes they can turn on - I wonder if you just don't have the right combination yet?

Good luck!!

Cheri

pettynme (not verified)
scs

I agree with maybe reprogramming, have you had frequent tweaks I call them? Have they tried to move the lead up alittle to see if they could find the back? I'm sure when they put it in they moved all the way down and found the best spot for you but just a thought. Also I had a different programmer after the perm placement and asked for the guy I had for the trial and its a huge difference.

Cheri mentioned Advanced Bionics and thats what I have, the Precision Plus model which is designed to cover multiple areas even at 1 time. I have debilitating leg pain which was my go ahead to get it but also back pain so my pain mgmt doc went w/this one. He uses another brand too depending on the patient he said. I didn't realize how much my back hurt as I guess my brain was so preoccupied w/my leg.

I go in for a revision this Fri to move the paddle lower(mine is too high and I'm getting an organ beating) so hopefully it will be even better after that. I am reminded quickly when it's off how bad it is in a hurry. I hope Fri we'll get it right and I can start working on those back muscles that aren't used to doing much like Cheri said :)The doc said if we go very much lower I could lose my back as we are going in to try and find more of my leg and the coverage I'm getting now is from the very bottom of the paddle so there is lots of room and hopefully we'll get more contacts that can be used....it's a long story! "C" & Cheri & the other Charry were so supportive after I had mine done too high, so thanks again guys!!

Jeni we're all here for you too, I wouldn't give up either ever. I'm not giving mine up for anything! It has allowed me to lay normal on my side and what a difference overall so keep working with it and you'll find where you want to be I know it's frustrating believe me but I think worth it no matter what.

Keep the faith and take care

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I agree with looking at your

I agree with looking at your programming and trying to tweak it a bit.

I have the Restore Ultra with a paddle lead at T7/T8 and the program group I use most often covers everything from my bra line to the bottoms of my feet, with no problems.

Using TargetMyStim, I can make the 4th program in that group go into my shoulders and down my arms too, and I don't even have pain in those areas. Laughing

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This is how it was explained to my mother...

The SCS is for nerve pain. The PAIN PUMP is for what is considered "Mechanical Back Pain", which basically means the pain is in the bone itself, not so much the muscles, ligaments or nerves that come from the back.

If what you are having is "mechanical" back pain, the SCS may not address that. If the pain in your legs is better, than the SCS is doing what it is supposed to be doing.

I had a pinched nerve (due to herniation) a few years ago. Once I had surgery to get that disc off the nerve, I felt better immediately. As soon as I woke up in Recovery - that's how quickly I felt the difference.

HOWEVER, I still have other back issues. The surgery I had was not supposed to fix that - just the nerve impingement. So, the surgery is considered a success in that there is no more nerve impingement - even t hough I still have back pain... Problem was, I waited too long to have the surgery (thinking it'd get better) and have permanent nerve damage as a result of my stubbornness (or ignorance to how these things actually work). But then again, I am no doctor, nor do I have an SCS so really should not be commenting at all. But, I thought this information could be helpful for someone else if not for you.... ?

I hope this helps? If not, I'm sorry. But either way, I do hope you get some relief! and SOON!

Jeaux

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RE-SCS

I know u posted about this a while back I am about to under go the psych eval before the trial period for the SCS.. One of the things I did ask my PM doc was what should I expect the SCS to help control. He told me it was really meant to help control the leg pain, and not so much the daily back pain. I know it seems like a large step for some pain relief but I'm willing to try just about anything, even if it can help me stand a little longer and maybe be able to do the dishes I'm all for it... But I hope my little bit of info helps.. u might have already figured this out by now... but as far as I know it's tended to help reduce the leg pain more than anything..

_____________

Injury 2006
L2-L3 L3-L4 2mm bulge
L4-L5 spinal fusion March 2008 BMP screws and rods
10+Steroid injections Facet injection and othter injections
40mg Oxycotin 2x a day 100mg Lyrica 3x a day 450mg Wellbutrin
Continued Low back pain that radiates down into my right side buttock leg and foot. At times it feels as if someone is sticking hot needles in me. After fusion had a myelogram showed fusion is good. Continued L2-L3 L3-L4 bulge 2mm L5-S1 starting to bulge due to it compensating for the L4-L5 fusion it’s at 2 ½ mm bulge. So about a years time my L5-S1 has started to give out now.

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SCS

OK, so I've had two SCS trials at two different hospitals two different brands at two different times in my life. First doc with Medtronic told me it would help back pain great! Wrong. Second doc who used Boston Scientific told me it for nerve pain and any benefit I get for back was just bonus.

I just recently did the Boston Scientifc trial and get perm in August. I like the doc and the rep spent so much time with me. Even though I only had the trial, I had a "duh" moment and figured something out. My back hurt so bad during the trial and immediately after. Well, it hurts bad at first from the insertion, I know, but my "duh" moment: I realized that for so long my legs had been my limiting factor and since they felt better, I actually was doing more and flaring up my back. No wonder my back hurt so much later! My nerve pain had always stopped my from doing much, so my back wasn't used to being the bad guy so much. When I got nerve help, I crammed in all kinds of activities because my legs felt so much better and whammo my back got worse.

Just my two cents worth after trial. My rep is very friendly and kept reminding me that once perm is in, he would work with me to try and tweak the thing as much as possible and may take several tweakings. Realistically, I do expect to still be on some meds for my back but hopefully a lot less.

Good luck, please keep posting as I am very interested in your experience!!!!

_____________

"If you ever need holding, call my name, I'll be there. If you ever need holding, no holding back, I'll see you through..." Jackson Browne, whose poetry in lyrics and music have seen me through so many years.

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Wild

I know some folks have good and bad experiences with different brands and different docs and different reps. I don't think it is brand specific, but more doc and rep specific. The doc that did my SCS, uses several different brands and works with numerous different reps, even different reps from the same company.

I did my homework and listened to what the doc and rep had to say and I went in with the expectation that I might get help with the nerve pain and that was it. Well the nervous system is a weird and not really fully understood thing. So depending on the individual, their back or neck or head pain may or may not be due to a problem with the nerves or not. So many times, people have mechanical issues brought on by nerves that create muscle spasms and it cascades from there.

I have cervical dystonia and when I shut off my SCS, it doesn't take but just a few minutes before my neck starts trying to twist my head around. (no Linda Blair jokes) Smile This just caught everyone by surprise, because the SCS isn't supposed to really help with this sort of thing. My point is, no one really knows just exactly how much an SCS will or won't help, until it's in and functioning for a while. Even the trial isn't enough to tell just exactly how much an SCS will or won't help.

So if you have a "successful trial", you may be surprised at the fringe benefits the SCS provides a little ways down the road. I was and I am very grateful for it.

"C"

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S.C.S. lower back Non Coverage

Hi jeni333,
I have exactly the same as you except mine is ANS unit. I got it put in in 12-05
I have heard about new Leads by ANS called Tripole 16C. I'm going to my p.m. Doc. And try to get information and another X-ray or cat scan to see if there are any problems with the unit, the leads, or anymore damage. You know M.R.I. Is out.
If I can't get any kind of good feedback. I'm going to have them pull it out. Even though I'm afraid to have any kind of surgery at this point. I think it's causing more pain than its curing!
Good luck, Jim

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Maybe worth mentioning

I had more success with my trial, than I did with the permanent. Go figure! And I've had more adjustments and tweaks than I care to try to count!
Good luck, Jim

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You get what you get, It has nothing to do with what you deserve!........I stole that from Susan
Click my user name to see my medical history
Today is yours to embrace, as tomorrow, Who knows what will be starring you in the face

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I

just discussed this with my programmer last week. When I had the SCS permanent and trial, I only had radiating nerve pain. I honestly reported no back pain, BUT I was reclined 23 hours a day, unable to do much of anything.

Now that I've had the SCS for 6 months, I have quite a bit of back pain and lately, it has increased. I met up with her to discuss this and see if she could tweak my programs to help. We talked a LONG time. Here is what I learned.

Leads have to be up around T-9 to get any real hope of back pain relief, and this only helps if the back pain is the result of Post-Laminectomy syndrome, which is nerve pain. Any mechanical/muscle back pain will NOT be helped by the SCS unless by pure accident/luck. The SCS is designed to block nerve impulses, to "trick" the brain/nerves.

Like ernurse, I realized I only have back pain because I am doing so so so much, which is such a blessing. The programmer talked to my PM doc and they are trying me on a new muscle relaxer to see if this will help calm down my back. (I used to take Soma, which was amazing pain relief, but my clinic discontinued prescribing it. We have not found something yet that works as well.)

My leads (both) are down almost out of the epidural space and are way too low to have any hope of residual back pain relief. And I am ok with that, because I can just calm myself down, sit for a few days, and my back feels better.

Before the SCS? I had 24/7 burning,searing nerve pain that never went away, never calmed down, never lessened. I didn't want to live most days. Even if I could go back to day one of the trial KNOWING that I would never get back pain relief BUT I would have greatly increased back pain, I would do this all over again. There is nothing like the relief I get from the radiating nerve pain. And if I turn the SCS off, I get pain again in minutes. Literally minutes.

I talked to my programmer about "Field Stimulation", which I recently read about. This is where they take the SCS leads and put them directly on the muscles/nerves that hurt. She said there is great controversy, because if the SCS works by blocking pain signals in the spinal canal, then how does putting them directly on muscles/nerves help? She said they are lacking a scientific explanation for why patients are receiving relief from "field stim",when the whole point of SCS is the spinal canal route. But the fact remains that patients ARE reporting great relief with field stim.

She said that since my leads are SO low, much lower than normal and are at the end of the spinal canal, I might be getting some "field stim" as my leads are close to the S1 nerve coming out of the spinal canal. I found that very interesting. I refused to leave the operating table until I buzzed exactly where I hurt and highly recommend everyone do that. Do not let the doctor tell you that the programmer has magic power and can make you buzz somewhere other than where you are buzzing at the placement. (That happened during my trial.)

So, if my back pain is ever determined to be nerve related/failed laminectomy syndrome, I will be looking at a second SCS, implanted higher, to try to address that NERVE back pain. One must determine if their back pain is muscular or not. If you wake up stiff and in pain, but get better during the day, she said that is muscular pain and will not be helped.

I definitely recommend talking in depth with your programmer. And I am speechless your doctor did NOT tell you this is for radiating nerve pain and not back pain. Again, some patients do get relief, but it is bonus/accident/luck.

Meydey, for people who have 50/50 back/nerve pain, even for me I would choose the SCS. Getting my 24/7 burning nerve pain removed has been AMAZING. My life is entirely different......and I am so thankful. I choose to deal with the back pain, because it is a result of the great blessing of the SCS. I had no back pain when I couldn't move. It's a give and take I treasure.

Have you turned off your SCS for a few days? That will help you decide if the SCS is worth it or not. For me, it just takes a few minutes, for some people do it for a few days. It changes their outlook entirely more often than not.

Take care,

Cheri

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All in all

No matter what your condition it seems that getting proper treatment is key. The SCS will only do so much, most of that nerve pain related. Some people do get relief from things the SCS should not help them with. Those people are blessed.

The rest of us, well we have to struggle through a rat nest of doctors and ill fitting treatments, leading to confusion and lack of proper care....

Wow, someone took a bitter pill this morning.

My SCs is like what I see the majority of people say. It works on the nerve pain, the mechanical, muscular problems go untouched. My PCP is not help at all right now. My PM has mysteriously been moved by my insurance carrier to "out of network" requiring me to get approval before I can go in to see him about ANYTHING.

This leaves me with back pain, shoulder pain that sometimes is covered by my SCS, sometime not, and a major case of depression.

I don't regret the choice of going forward with the SCS, I had no other options in front of me. I do regret not insisting on one more MRI of my shoulder to make sure nothing had changed since surgery. I do plan on talking to my PCP and insurance carrier about WHAT THE $#!^ I am supposed to do about proper PM care. I already have an appt with my shrink...

_____________

"I have been told my statement or statements are not logical. Would Mr. Spock ride a bicycle down a wooded mountainside when there was a perfectly good stationary bike at home?" NOTICE: Please consult a real DOCTOR before doing anything that may hurt yourself or others! Please be careful!Medtronic SCS Placed May 4, 2009. Cervical, for chronic right shoulder, upper arm pain.

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Forgotten aspects...

I think people (including SCS reps) tend to forget that regardless of the source, pain is nothing more than an electrical impulse - biologically speaking - and that all pain impulses are transmitted to the brain for processing by way of nerves.

Because all pain impulses travel on nerves, the SCS has the ability to scramble pain from any source, if sufficient levels of stimulation can reach the specific nerve(s) through which the impulses are traveling. For that reason, coverage is not only impacted by the vertical level of the lead placement, but also by the depth of stimulation.

I think people also have a tendency to forget that the spinal cord is actually a bundle of individual nerves, much like a handful of dry spaghetti, not a single object. If the stimulation can't penetrate deep enough to reach the nerves toward the center/back of the bundle, then a person won't have effective "scrambling" of the pain signals traveling on those nerves.

Recent research shows that people with low back/trunk pain that have implants with paddle leads (and more specifically, tripolar leads) have better coverage of low back/trunk pain, because the stimulation penetrates deeper into the spinal cord.

This is where having an experienced physician comes into play the most - and also where recognizing the "most experienced" physician isn't necessarily based on the number of SCS implants a doctor has done. It's also where having an experienced programmer can improve things dramatically.

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BionicWoman

Nicely stated. People tend to forget that signals to the brain can and are quite frequently "interfered with" in order to block pain signal transmission. For instance, if someone's hand starts to hurt, one of the first things that that person will do without thinking, is rub the hand. In essence they are blocking some pain signal transmission, by introducing a signal of a different type in the same general location. It's the same as when a dog licks their paw when it is hurt. If a person gets a headache (a normal type headache not a migraine), they tend to rub their head without even thinking about it. It's all a natural way to trick the brain to reduce the amount of pain it is sensing.

You're right about the doc who does the implant. That doc needs to understand what is going on more so than just having experience placing the units and leads.

And not all reps are alike and definitely not all reps understand how to program for different conditions.

"C"

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Experienced and Understanding Doc

C, would you please elucidate what we should expect our doctor to understand?

_____________

Brothers
Herniated L4-L5 disc.
Physical Therapy and epidural steroid shots before and after surgery failed to help.
Hemilaminotomy and Microdiskectomy
Second back surgery for CSF leak and repeat herniation of same disc.

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Brothers

I would recommend a doctor who also does research into pain and pain management as a start to that doc "understanding" what is going on with pain in general.

It seems too many docs are jumping on the band wagon, learning how to install an SCS percutaneous lead and trying to get more and more patients to try it. And then if that patient encounters a rep/programmer with less than stellar programming abilities, it can be sad indeed. I know every few months, my rep goes off for a week at a time for more training but I'm not sure what is "normal" for the average rep. This could be, I don't know.

I don't believe there is anything we can personally do to educate any certain doctor. What we must do is research and find the best doc we can find.

Take care,

Cheri

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Brothers

As Cheri pointed out, there are many docs who are dabbling in the implant realm these days, but not full time and not fully aware of what they are really doing. The pain clinic I go to is staffed by several docs who are there running the department while others rotate through for the hands on experience.

I wouldn't want a doc with just a clinical "stick and go" frame of experience conducting my trial and especially doing the permanent implant. While my PM doc is not a full time neurosurgeon, he participates in a lot of neurosurgery in order to better understand the whys and hows of of the spine and it's complications. He really strives to understand the situation surrounding each of his patients and how his action or inaction can and does effect their lives. He cares.

Those are qualities I feel a doc should have if doing any sort of procedure on me. Knowledge, experience, compassion and determination. Without that, forget it!

Also humility. The doc needs to be humble enough to ask for assistance if required.

The doc also needs to have a good relationship with the company reps. Without that, the reps don't want to hang around very long and that's when things get rushed.

The relationship between my PM doc and rep is outstanding and I know I benefit greatly from it!

I hope this makes sense. I'm exhausted and heading off to bed. I'll check back in the morning and see if this helps explain my comments better.

"C"

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“If it is not right do not do it; if it is not true do not say it.”

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Thanks

Cheri and C

Thanks for your description of the ideal SCS doctor. I am not sure I can find a doctor to fill all the ideal traits, but maybe one will come close.

_____________

Brothers
Herniated L4-L5 disc.
Physical Therapy and epidural steroid shots before and after surgery failed to help.
Hemilaminotomy and Microdiskectomy
Second back surgery for CSF leak and repeat herniation of same disc.

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I've finally found the courage

to investigate further with the surgeon who put my scs in. to see if there is a lead problem. Or if the new ans leads would work for me. At least I will look at all the possibilities and x ray, scans and so forth on thurs. 10/24 before I take it out.
Wish me luck. I have "white coat syndrome" big time!!!
Scared to death, Jim Nail Biting

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Jim

Your ANS rep can run a diagnostic test on your device. It will take 5 minutes. It will tell him/her whether there is a problem with the leads or the IPG or if there is an unusual amount of scar tissue making programing difficult. Perhaps you could see your programmer before 10/24 and then you'll have that information when you see the surgeon. Susan.

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lynnlock (not verified)
Hope this helps

I spoke with my SCS Rep. today...this was my first programming after the surgery. She was so nice and took her time in making sure I was comfortable and that it covered the area I need covered. She told me there are several reasons for the change in stimulation...in my case it is the amount of swelling after the surgery...I was assured that this would get better and that tweaking wouldn't be needed every week and over time will become less and less. However she told me that over time your body will preceive pain differently and tweaking needs to be done. I had paddle leads placed and she told me they have so many different ways to program with these leads. They are not using the tip or base of my lead just the center and as she moved through them I felt coverage from the bottom of my foot to the back of my neck. It took a while to fine tune my area...and at one point had a spot as small as a quarter that was being stimulated. I thought it was amazing that they can fine tune this down to an area that small. I am thankful and lucky that I have the doctor and Rep. that I do...as I think they make a good team. They work together and fill each other in on what is going on. I think if you talk to your Rep. they will be able to do something to help you or lead you in the right direction.

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Thanks for the info.

Susan,
I made some kind of a feeble attempt to hook up with ans rep. (she's on maternity leave and probably not coming back) which is probably a good thing, She told me that I was wired unlike any human she had ever seen. But promised me she would figure it out no matter what it took. Then after countless tweaks and tweaks. She finally said "well they just don't work on everybody" And kind of left the ball in my court. She looks just like my daughter and is a sweet as can be. So I just didn't have the will to work her the same as I would have anyone else.
At the time I had this scs done I had a different pm Dr. and I was in a sponsored trial, 5 years i think. So I always figured I would get the best of treatment. But my old pm Dr. dropped the study mid way without even notifying me. After much procrastination on my part. I finally got a hold of an other Dr. in the practice. And he said he would handle everything and call me in 2 weeks. It's been several mos. and I haven't heard from them. I had finally told my current pm that I would like to see my surgeon to go over any possibilities I might have.When I got the mri before the scs surgery and the surgeon said my L-1 and L-2 were degenerative and bulging. But he couldn't get through the scar tissue until FDA approved a new procedure and I didn't want anymore surgeries anyway, Now I've had a x ray for something else and the Dr. that read it or transcribed it said T-12 and T-11 were bulging.
So that is pretty much the long version of this appointment. I would like to know exactly what is wrong at this time and what my options are.
But I have "white coat syndrome" and I'm scared to death!!! So I'll go puke and head out. I think I've shanghaied someone else's thread. I'm sorry.
Good luck, Jim Nail Biting Jawdropping! Barf!

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Cherish22

Just curious....how did you go about looking for a doctor who did research on stimulators or pain when searching for a surgeon to impant your SCS? Did you look at the quality of the research? Was it important where this research was published? I've been rumminating on this the past few days. Insisting on a doc who regularly publishes and maintains a clinical practice is quite a lofty requirement. How did you do it? Susan.

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Depending on where youlive,

Depending on where youlive, Mayo Clinic is an excellent source for SCS. They can put you in contact with Drs in your area that are experienced in this area. My PM sent me to Mayo to get a second opinion before she would run a trial on me.

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depending

On where you live and insurance coverages some of us have little choice.

I could go to the local incoverage guy that I did not much like and did not do meds. Or travel to downtown Pittsburg, Pa. Out of network, high co-pays and 2.5 hour drive on a traffic free day. I wanted to go to Pittsburgh.

My wife begged me to let the PM here in coverage area do it as she was afraid the drives and such would be a mess. I relented and went here.

For the final kick in the pants...My in town PM has been removed from in network coverage by my insurance and I have to get preapproval before I can see him! Nothing like a swift kick in *** when you are down, huh!

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"I have been told my statement or statements are not logical. Would Mr. Spock ride a bicycle down a wooded mountainside when there was a perfectly good stationary bike at home?" NOTICE: Please consult a real DOCTOR before doing anything that may hurt yourself or others! Please be careful!Medtronic SCS Placed May 4, 2009. Cervical, for chronic right shoulder, upper arm pain.

TheJourneyContinues (not verified)
Similar experience?

I had the Medtronics intalled last March. Since then new area of my back has slowly become a problem.
The two wires come out of my spine at L5. I am very thin,the wires clearly visible through the skin. Over the last three months the soreness in the area of the wires has increased. In the morning when waking up my lower back is very stiff and sore.Taking a bunch of Advil along with a hot shower loosens my lower back in about an hour. The area has become very sensitive,just having the charger in place is painful. Even though I like the device itself, the new soreness/tenderness is enough for me to debate having it removed.
Has anyone experienced this?

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Hello TJC

How long has it been since you saw your doc or rep? Have you brought to their attention the soreness and sensitivity that has developed? Do you sleep on your back or on your side? I know for me that if I sleep on my back, it's a guaranteed way to irritate the anchors and IPG pocket. A little anti-inflam medicine calms it right down though.

If you are having that much soreness and sensitivity around the IPG, I would say that is cause enough to place a call to the doc and rep. If your SCS is working well for you, but you can't charge it without creating that much unbearable discomfort, you really should speak to the doc. There may be something going on there, that needs more than just simple NSAID's

"C"

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Well

Like "C" said I'd ask a doctor. With no help there perhaps a S.O. could tape a gauze "pad" over it for nights or for a few days to see if it will calm down.

I've been kind of plagued with back pain around my anchor site, but, that is also where I had three endplate fractures, so I have not thought it worth complaining about, except here of course...

I can also set my pocket on fire by walking, stooping, bending to much, the PM was so nice as to place it right where if I tighten my belt up it digs in to it and if I leave my belt loose I am constantly hitching up my pants.

The SCS is indeed a tradeoff, after doing what I did to myself last weekend I am very happy I have it.

But, that's another story.

_____________

"I have been told my statement or statements are not logical. Would Mr. Spock ride a bicycle down a wooded mountainside when there was a perfectly good stationary bike at home?" NOTICE: Please consult a real DOCTOR before doing anything that may hurt yourself or others! Please be careful!Medtronic SCS Placed May 4, 2009. Cervical, for chronic right shoulder, upper arm pain.

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If you need to find a good

If you need to find a good and reliable PM who is diversed in SCS, ANS has an excellent website. Its called POWEROVERYOURPAIN.COM. All the PMs listed for your area have been to extensive training on the systems. After my trial , i wanted to be implanted with the EON Mini. But my PM and ANS rep explained to me that due to the high rate of usage during trial, The regular EON was best for me. It would require less charging and last longer. I would of never considered this if it was not for the experience of my PM. The websites can only relate so much information to you.

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EON

Can you explain to me what the EON stands for? I have a doc who works with the Boston Scientific and I am considering that option for my arm pain (it comes from my cervical discs). I have heard from people who have the Boston Scientific and the Medtonic, but would like further info on the EON.

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EON

EON is the St Jude Medical Company neurostimulation systems brands of which I have one. It's just another brand of the SCS.
It has a tiny IPG...about the size of a silver dollar and weighs about the same.
Hope this helps.
Cheers
Patsy W Wave

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I am not a Doctor but I do watch House and Doc Martin on TV.

Never give up HOPE..June 18,2010 I had a pain pump implant....I now free of pain.

My thoughts and opinions are just that, my thoughts and my opinions, based on my experiances.

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There are actually 2

There are actually 2 different sizes of EONs from ANS/St Judes. The one Pat refers to is the EON Mini. The other is just the EON. It is a little larger than a silver dollar and about 3 times as thick. It weighs a total of 2.5 ounces. The EON mini has a smaller battery and needs recharging more often, depending on your power usage. I actually was hoping for the EON Mini but due to the power i used in the trial i was implanted with a regular EON. If you ask your PM, they should be able to show you a demonstrator model of each SCS they implant. Mine actually gave me a demonstrator of the EON so that i could tape it to my body to find the best placement for it. I was able to find the best and most comfortable location to have it implanted. I hardly ever hit it on anything or even notice it unless i really try.

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IPG

I recently met with a PM who likes the non-rechargeable St. Jude ANS Genesis. He claims it has a long battery life. Does anyone have this IPG?

RPlatt56: Where is your IPG placed?

_____________

Brothers
Herniated L4-L5 disc.
Physical Therapy and epidural steroid shots before and after surgery failed to help.
Hemilaminotomy and Microdiskectomy
Second back surgery for CSF leak and repeat herniation of same disc.

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Psy Evaluations- Required for Spinal Cord Stimulation?

Hi,

Has everyone been required to do an extensive psy evaluation before having a IPG device inserted? Is this a company or physician requirement?

I don't think I will have any problem showing I am mentally stable, not a drug addict, and able to comply with requirements, but it is a pretty large investment of time and money- my insurance does not pay for it...

After everything I have gone through, surgery, recovery, continued pain etc... (as have most of us on this forum) and then living with chronic non stop pain- I would have thought they would start with a psy evaluation to see if I would survive all of that mentally intact! The SCS seems like a walk in the park compared to all of that!

Just wondered if everyone else out there in chronic back pain land was going through this psy process as well before the IPG procedure.

Thanks,

Wendy Silly

_____________

I am not a physician and am not giving medical advice- only my opinion. Please always consult with your doctor(s) before changing your current medical treatment, meds or treatment plan.

I have had multiple back surgeries and have suffered with neuropathic pain for about 5 years. I have a neurostimulator which helps.

Advocate for your own medical treatment, and don't hesitate to ask questions and get second opinions!

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Hi Wendy...

Everyone has to have a psyc evaluation before an SCS implant. The insurance Co. require it and they pay for it!! I have never heard of anyone having to pay for one themselves. Did your insurance co say they would not pay for it?? It is THEIR requirement!!
I did not pay for mine and do not know of anyone else who paid for theirs.
I would not have one unless you get this worked out. You should not be paying for it.
I do hope this is not something new insurance companies have came up with. It would prevent a lot of people from getting pain relief. Few people can afford this.
Best of luck to you and please keep us updated.
Hugssss Big Hug
Patsy W

_____________

I am not a Doctor but I do watch House and Doc Martin on TV.

Never give up HOPE..June 18,2010 I had a pain pump implant....I now free of pain.

My thoughts and opinions are just that, my thoughts and my opinions, based on my experiances.

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Patsy

Now you can say you know someone who paid for their eval. I used the Doctor who my PM recommended and he was out of network and I had yet to meet my out of network deductible. The eval was $150.00.

Dave

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Wendy

From Medtronic, their recommendation (which docs and insurance companies use as a guideline)

Quote:
Spinal cord stimulation may benefit patients who meet the following criteria:

* Chronic, intractable pain for more than 3 months
* Objective evidence of pathology concordant with pain complaint
* Lack of adequate relief from more conventional treatments
* Initial or further surgical intervention not indicated
* No untreated drug habituation
* No contraindications to implantation
* Clearance and completion of psychological evaluation
* Clear function goals have been established
* 18 years of age or older

Here's a quote from Medscape

Quote:
The need for a psychological evaluation has been driven largely by Medicare insurance requirements.

Here's a quote from Pub Med

Quote:
To improve treatment outcomes of SCS, seems to be essential to perform psychosocial evaluations on all persons clinically indicated for SCS to exclude those patients, who most probably, on a psychosocial level, will fail the procedure. To maximize treatment efficacy, authors believe spinal cord stimulation for chronic pain control must be part of a comprehensive program. An accurate preoperative psychosocial assessment and a course of psychological assistance both before and after therapy seems to be crucial for improving outcomes.

PMID: 17173602 [PubMed]

So when you have the companies and the medical community recommending that an evaluation be done in order to improve the treatment outcome ... well the insurance companies and docs listen.

So it's actually a good thing and it protects you "the patient" in the long run.

"C"

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Is your insurance refusing

Is your insurance refusing to pay because you don't have mental health coverage under your current policy?

I had that problem with my psych eval and apparently it was fairly common at the office of the doctor I was seeing at that time, because their office personnel weren't as educated on the issue as they should be. They told me my insurance denied the coverage, so I'd have to pay it out of pocket.

I contacted my insurance company, who one would expect would be quite agreeable to not paying for something, and they told me the office filed the claim under the wrong CPT code.

If that's the issue you're having, ask them what CPT code they're using. My (former) doctor's office was trying to bill it under 90801, which is a diagnostic pyschiatric interview, so the insurance company kicked it back.

If they bill it as 96150, it falls under the Health and Behavior Assessment/Intervention Codes instead of the psychiatric codes.

Quote:
CPT Codes 96150–96151
96150 Health and behavioral assessment (e.g., health-focused clinical interview, behavioral observations, psychophysical monitoring, health-oriented questionnaires), each 15 minute face-to-face with the patient; initial assessment

96151 Health and behavioral assessment (e.g., health-focused clinical interview, behavioral observations, psychophysical monitoring, health-oriented questionnaires), each 15 minute face-to-face with the patient; re-assessment

Quote:
DESCRIPTION DETAILS4: HBI codes report assessment of psychological, behavioral, emotional, cognitive, and relevant social factors that can help to prevent, treat, or manage physical health problems. The assessment must be associated with an acute or chronic illness, the prevention of a physical illness or disability, and the maintenance of health. The initial assessment (96150) and re-assessment (96151) apply to each 15-minute direct, face-to-face session with the patient. A reassessment (96151) is reported to obtain objective measures of goals formulated in the initial assessment and to modify plans as is indicated to support the goals.

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Psychological Evaluation

The Pychological Evaluation is a a requirement of the insurance company. The cost of my evaluation was $600 and Blue Cross paid the entire amount.

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I hope others continue to

I hope others continue to stumble on this thread, much as I did! I had the trial which was about 70% successful in covering my LOW BACK pain. I went ahead with the implant, and now I am lucky if I achieve 20-30% coverage of my back pain, however something is better than nothing. I have found a lot of your success comes from the relationship I have built with my Medtronic rep, who works tirelessly on my behalf to find the "miracle" programs that work best for level of activity, pain and needs. I have been "reprogrammed" more than what the average was given to me prior to my surgery, and although every reprogramming hasn't been the greatest results, we (my rep, doctor and myself) ALWAYS gain a wealth of information about my device and needs.
After undergoing the surgery, personally, I cannot fathom giving up on the device and its elements. Often I feel trial and error is the best approach! Keep trying, keep tweaking the settings and programming options! The technology is there to help those that are willing to try, and understand it's not an EASY process. Its hard work and ultimately a lifelong commitment.
I say all of the above with limited results, but I am satisfied with the limited results I have received thus far. I am almost 3 years post op, and currently 6 1/2 months pregnant, and putting the limits of my SCS to the max!
This, as my disclaimer states, is based on my own personal experience.
Cheers to all that follow in this path, and good luck to all fellow suffering souls out there.

_____________

Anything stated is either opinion or personal experience and should be taken as knowledge, not medical diagnosis or treatment suggestions. I am a nurse, not a physician.

MVA 12/1999 (age 17), shattered L1-S1, discectomy 2/2001; reruptured L3/4, L4/5 and L5/S1 06/2001. Pain killers like tic-tac's from 2001 through 2007, spinal fusion L1-S1 05/2007; SCS implant 10/2008. Range of motion is crap; pain meds used to be everything until I got pregnant (03/2011) and now I take NOTHING but I chew on ice cubes to get me through the days.

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