Hi there, i need some advice;
here is my story (very brief!)
I was diagnosed with kyphosis and scoliosis at 12. I was braced for a year when I was 14/15 which fixed the scoliosis and slightly improved the kyphosis but really just made it more stable. I was then told that the kyphosis had cause a disk to split and herniate and had emergency fusion surgery in March 2007.
After surgery the pain was improved for about 6 months and then I started getting more problems.
Four years on, I am in constant pain, I get horrendous flare ups in my lower back, I get shooting pains and numbness in my legs. I'm surviving in painkillers.
The doctors can't find what's wrong, everything looks normal on the scans (I am seen at the Royal Orthopedic Hospital in London).
But I am deteriorating by the day, it's getting worse so rapidly and it's scary.
Does anyone have a similar story or idea's of what it could be?
I spoke to my surgeon today who said that if the pain was unchanging and stable he would put it down to nerve damage and scar tissue. But it's not and I think it worries him almost as much as it worries me!
I'm going to see him in a few months to see if he can figure out the next steps.
I'm really not coping well. I'm at university away from home, I'm struggling to get into lectures because of the pain. I'm just so frustrated because we're just going round in circles, they come up with an idea of what it could be, they run tests and it comes back without answers. Meanwhile I'm getting worse, it worries me, I mean realistically how long can it keep getting worse for until I cant do anything? The painkillers exhaust me, and I really don't want to be on them forever - I haven't been free from pain medication since I was eleven!
sorry to ramble on and moan.
I would really appreciate your prayers and advice.