pain the the buttocks when sitting

pain the the buttocks when sitting

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Anonymous (not verified)
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pain the the buttocks when sitting

My friend has had pain the the buttocks when sitting for the last 16 months. He has had several MRI's and has had different diagonisis. One diagonisis was piriformis syndrome, another has been possible myofascial pain. Some doctors have flat out told him they don't know what is really wrong. Some doctors have said he has peripal nerve damage, but there seems to be no cause for it. He is extremely frustrated. Prior to the pain in the but, he was walking about 6 to 8 miles a week and was very active. He had a sinus infection and was in active for several days and the pain the buttocks started. He is on pain medication and nerve medication, does any one out there know of any similar case. The MRI show no problems, no tumor, not pinched nerve, , they show nothing that could be causing this problem, blood work shows no sign of infection. He did have slightly low vitamin D level and is currently taking vitamin D. Please help. He also has pain in his feet and has been told he has Morton's Neuropathy. He is very frustrating because he stands to relieve the pain in the buttocks, and then his feet hurt. Please help!

sunny1966
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Last seen: 1 month 4 days ago
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Joined: 01/02/2009 - 1:25pm
I can totally feel for your friend!

I'm there! I had this pain start in Jan. 09 and so far no one can tell me what it is. I can also feel for him with the morton's neuroma. I had one removed from my left foot Dec. 07 and now the right foot needs it. Just wanted to let him know he's not alone...I know that doesn't help the pain though. I hope he finds a solution soon.

Debbie

yankee fan (not verified)
Title: Member
Morton's neuroma

Debbie,

Thanks for the reply, it will help him to hear he is not alone in this. How did the surgery go with the removing the morton's neouroma, did it hel? He has it in both feet? I hope you find a solution also. If you find a solution, please let me know. If we find anything helpful we will let you know.

sunny1966
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Joined: 01/02/2009 - 1:25pm
The MN surgery

went well. It just takes a long time to completely heal. It seems like a roller coaster ride for a while. Now other than the two numb toes I don't have any pain from that surgery. I also had a bunionectomy and osteotomy on the same foot one year before the MN and then had the hardware removed when they removed the neuroma. I will probably have the other foot done this fall. Maybe. It just takes time and I'm very impatient! Best of Luck.
Debbie

patwhite101
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Joined: 04/04/2009 - 5:25pm
Mortons Neuroma

Hi...
I had a problem several years ago with MN. Has he tried cortazone(sp?)shots? There is also an insert a foot Doctor can make to go in your shoes that relieve the pressure on that nerve that is causing the pain. As you know it's a very painfull condetion, WOW is it ever!! I had surgery on my foot and that was not a problem. I recovered very quickly and have had no problems since. A friend had inserts made for her shoes that helped her.
When all my spine problems started I had pain when sitting caused by a ruptured disc. But that has been ruled out in your friends case hasn't it? Wish I could be more help. Private message me and I will try to be more help with the MN.I do have more information your friend may benefit from.
Hugsssssssss >:D<
Patsy W

Littlesurfer
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Joined: 04/24/2009 - 12:02pm
Pain while sitting

Yankeefan: I have a similar problem with pain while sitting. I saw several orthopedic drs and had mri's, bone scans, x-rays, etc and nothing showed up on any of these. I was diagnosed with coccydynia and had all sorts of treatments, injections, physical therapy, etc, to no avail. I had a coccygectomy in Dec, '07 and my pain only continued to get worse. I stand most of the time and this does take a toll on your feet and legs, but it is so painful trying to sit. I use a special cushion with a cut out section in the back to relieve some of the pressure on the sacrum area. I've been seeing a pain specialist and she has recommended a peripheral nerve field stimulator. Just because nothing shows up on the mri's, etc, doesn't mean there isn't something very wrong. I just can't believe that someone can't determine what the problem is when there is so much pain that goes on, nonstop, for years, and continues to get worse. Very frustrating. I can't begin to tell you how this has changed my life...I used to be so active, now I'm limited as to how much I'm able to do. Hope your friend finds some relief from his pain. You just have to treat the pain and not worry so much about why you have all this pain, because the drs sure can't tell you. It drove me out of my mind, practically, trying to get a proper diagnosis...have given up on that.

buster527 (not verified)
Title: Member
Pain while sitting

Your story sounds so much like mine, It's scary, I've been in this nightmare for over 3 years now and no one knows, what is wrong. I've had a spinal fusion to no avail. Had so many tests and scans to no avail. Now seeing pain management, trying lyrica with vicoprofin. I just can't believe no doctor can find what is wrong, when I'm in excruciating pain when sitting. I definitely feel for you as I am so frustrated too. If anyone has any idea, please help!

Littlesurfer
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Joined: 04/24/2009 - 12:02pm
Pain while sitting

I recently had a trial for the peripheral nerve stimulator which didn't help my pain at all...then the dr tried radiofrequency, which didn't help. PM Dr has now recommended I have the trial for the Spinal Nerve Stimulator...awaiting approval from Blue Cross on that. It just seems hopeless. I'm about to give up on the doctors ever being able to help me. I also have SI pain, which acts up once in a while, along with my sacrum (lower back) pain. I know there are others in much worse condition than I am, but believe me, it is no fun not to be able to sit down. Our situation is unique and you will notice we won't get many responses. I've been told by ortho drs that this is a unique condition and have been turned away by many who just don't treat conditions such as this. My PM Dr is wonderful and has really tried to help me, but so far nothing is working.

dave
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Last seen: 2 years 9 months ago
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Joined: 06/19/2008 - 10:57pm
Littlesurfer

I wanted to give you a little update on the stimulator front. I finally had my appointment with the Doc who will do my perm implant. The Rep wants to put the leads at T12 to L1 for me but the Doc would like me to reconsider that option. He thinks he can get my feet and my SI Joint problem if we put the leads at T11-T12. Thought you might like to know that there is some hope.

Dave

Littlesurfer
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Dave

My PM Dr said she would place my leads at the very lowest point possible. Keep us posted on your progress because you will have your permanent implant before I will...that is if the insurance co approves another trial and I continue on to the permanent implant.

hilhames (not verified)
Title: Member
I also have this terrible

I also have this terrible sitting pain and nothing shows on MRI or Ct scan. Feels like I am sittin on rock and hurts like hell in my bottom and 'pulls' down my legs at the top. As soon as I stand up I am fine. Have had cortizone, caudal epidural in case its coming from my spine, and have now trialed Lyrica 150 mg a day in case that would help. Endless physio and exercise progammes Am as bad as ever - I know one person in the States who has Vicodin and that helps her so am going to ask my pain consultant to let me try an opiate.
Someone on here posted that they were doing the same but hasnt posted any result. Please do!

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