Before I begin, I found this thread here that sounds very similar to what I have. I can firmly say that now that there are several people with similar pain, we need help desperately! Here is the thread I am talking about: Click Here To Read The Other Thread.
I posted this out on WebMD and still am waiting a response. I need help badly. I am in SEVERE pain. Here's what I also posted out on WebMD (among other places...):
Hello, my name is Robby and I am 25 years old. I have been suffering from severe pain in my entire head since I was 13 years old. I've seen way too many doctors and I am at a total loss: I don't know what to do!
I am in severe pain; I don't use such words, like "severe," lightly. I have been diagnosed with fibromyalgia, migraines, tmj, and now I have a doctor who believes I have Chronic Lyme Disease. It all started when I was 13 years old and became ill with Mono (several classmates had it too). I never recovered from it. I also was hit quite hard with a basketball in gym when I was around 12 years old, before all of this started. I don't know if I got a virus that attacked the weak spot of my body...? I have no clue...I'm desperate for an answer and for relief - I am getting none.
My pain has been getting worse and worse over the years. I now have been dealing with more and more burning in my mainly my head, though I do have it in my back, etc from time to time. My head pain is the big issue. Most of the time, it is in the left side of my jaw, face, eyes, forehead, top and back of head and into the neck. I also have pain in my shoulders. My left arm always hurts (though not to the extent of my head pain). My jaw pops, though I had an X-Ray done on that and there was nothing wrong. I am looking to get an MRI done on my jaw soon.
The burning sensation also itches and is terrible; it comes and goes, but right now a lot of the pain is felt around my ear and left jaw plus back of the left head/neck area. My left eye has also become "lazy" in the past few years which is unusual and I can no longer focus with it; if I do focus with it, pain starts to shoot through it. I don't know what to do...I am so frustrated!
The pain is CHRONIC, it is CONSTANT. Even now when I type I am suffering.
I am absolutely desperate at this time.
I have had an MRI, CAT Scan, Spinal Tap, etc and tons of blood work done. I am having yet another MRI done here soon. I have seen every type of doctor and every test has come up negative. They even tested my heart! I am so lost right now at what to do!
If anyone can lend me there thoughts, I'd just really appreciate it.
I can't live like this anymore...