Scar tissue

Scar tissue

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meydey321
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Scar tissue

I've been having a rough time lately ever since my back pain grew worse and I've had severe muscle spasms in my upper thighs and calves. I can't go through the night without waking up to take Norco and my muscle relaxer. Thankfully my doctor ordered an MRI and I found out that I have epidural fibrosis pressing on my nerve. The pain has been so bad and at times I can barely walk, and I spend my days laying in bed. I'm having an ESI done and another procedure to break up the scar tissue with enzymes. Does anyone know what this is called? Has anyone had this problem before? Thank you for help

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annewrig
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Scar Tissue

Hi Meydey,

I have heard of this procedure with the enzymes but I don't know what it is called. I am very curious to see how this works for you. I have been suffering with lower back pain and sciatica for a little over three years now and I am always looking for something that might help. The ESI's were never much help for me. It seems that whenever the doctor messes around with my lower back that there is a resulting flare up that is way worse than when I went in. Oral steroids actually seem more beneficial for me.

I am sorry to hear that you are having such a hard time, but you know that you are not alone. I can totally relate to not sleeping through the night! I sincerely hope that you find some relief soon!
Take care, Anne

meydey321
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Thank you Anne

We've been in pain together for the same amount of years. I've had a hard time with epidural injections too, but it's been a long time since the last, so I guess I'll give it one more shot Grin Couldn't resist the pun. What problems have you had with your back?

chelle (not verified)
Title: Member
question for a friend

Hello all I am new to this site I have been living with sever back pain for the last 3 years and am headed for a fusion on April 28th of l4/l5/s1 however this question is for my friend she does not get on the computer very often so I do a lot of research for her. She has had 3 failed surgeries. Her first was a fusion and one of her screws broke, so they went in and replaced and added a plate in the front and back to stabilize. To tell you the truth I am not 100% on what all was done in the 3rd surgery. They have also tried and failed to put in one of the spinal cord stimulator implants. They told her that she had to much scar tissue for it to work. She is in extreme pain. She does not do well though when taking morphine or any of the oxy's (the Dr's have tried them all) She does not want a morphine pump and she is taking to many norco's to be safe. The amount of pain she is in effects her daily life she has 4 children. She is only 34 and doesnt know where to go from here we have tried to find someone to help or an alternative to help with the pain. Please does anyone have a suggestion out there for her? I am not sure of what this enzymes treatment is would it apply in this situation? The scar tissue is building up and affecting her left leg we are not sure how much time she will have before she is in a wheel chair.....

meydey321
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Hi Chelie

I'm sorry to hear about your friend. It sounds like she has something serious going on and it sounds like it is arachnoiditis. I heard it very difficult to treat and they won't perform surgery because the surgery itself will cause more trauma and scar tissue tends to grow back. I hope your upcoming fusion goes well and that your friend gets the proper care she needs.

pdowning (not verified)
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possible 3rd discectomy on L5S1 in 15 months

I had a discectomy on L5S1 in Dec.08, feel great for 2 months, then the pain returned ,worst than before, tried epi's, no luck, repeated in May 08, had physical therapy, much better but not 100%, returned to work in Sept 08, then Jan 09 pain returned and each week getting worst,Off work again, Do not do well on any type codiene. I am on Ultram, tylenol, 800 ibuoprofen, and this week Nuerosurgeon put me on a Medrol Pack. MRI on Tues., but pretty sure that disc is on S1 nerve again. I too have scar tissue, what is this enzyme treatment called. I am scared this is my life from now on.

RAVEN (not verified)
Title: Member
meydey321 wrote: I've been

meydey321 wrote:
I've been having a rough time lately ever since my back pain grew worse and I've had severe muscle spasms in my upper thighs and calves. I can't go through the night without waking up to take Norco and my muscle relaxer. Thankfully my doctor ordered an MRI and I found out that I have epidural fibrosis pressing on my nerve. The pain has been so bad and at times I can barely walk, and I spend my days laying in bed. I'm having an ESI done and another procedure to break up the scar tissue with enzymes. Does anyone know what this is called? Has anyone had this problem before? Thank you for help

What you're referring to is Fibrinolytic Enzyme Scar Tissue Removal, where they use an enzyme like Neprinol or Trevinol to break up the fibrosis tissue. However, any scar tissue removal is always temporary - it will grow back eventually. Still, if it helps, it can't do any worse.

I've got a lot of scar tissue buildup after 3 multi-level fusions, and even though they removed a lot of it after my last surgery, I can already tell that a lot of it has grown back.

annewrig
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Living with Scar Tissue

Hey Meydey,

Thanks for the reply! My back issues started when I had an hysterectomy because of severe endometriosis. I basically traded one pain for another because while I was in surgery is when my disc herniated. I had surgery to repair the herniation about a year later. That helped alleviate some of the numbness in my foot but did little to get rid of the pain in my back and down my leg. I've tried every option the doctors have offered with little success.

Someone I know mentioned this enzyme thing so I am excited to see how this goes for you. I can only believe that something down the line is going to help those of us with scar tissue. So please keep me posted!

Hey Chelle, sorry to here about your friend. I wish there was something I could add that might help, but I do wish her the best in her quest to get better. And pdowning, I have felt exactly like you. I too worry that this is my life sometimes. There isn't a day that goes by that I don't have pain. It limits me in what I can do, but I try not to let it define me. I hope that you find something that helps you as well.
Take care, Anne

Lisa_mi (not verified)
Title: Member
scar tisse

hey meydey,
Its nice to know that someone out there is trying to find away to get rid of scar tissue, i have been dealing with scar tissue for many years some days are good and others arent. i hope that procedure works im so tired of laying on tennis balls(lol thats what i call a poor mans massage)so if you end up getting that and it works let me know i would really appreciate it

meydey321
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Thank you Raven, Anne, Lisa, Pdowning

Sorry I took a while to get back to this thread. Raven, I was looking around online to figure out the name of this procedure and I'd like to thank you for finding it out. I kept reading about lysis of adhesion and chemonucleolysis was totally off.

Anyway, I'll be having my ESI next week and I'm kind of nervous because it's been a long time. At least I'll be sedated which is good. I've had them done unsedated and it sucked but I made it through.

I am confused because in a lot of cases, patients have done well for a while and then got socked by scar tissue growth and pain. The thing is that my pain never improved since my micro-d in 2007 and fusion in 2008. There was no period of improvement whatsoever. I know that scar tissue takes months to develop and I wonder if it has been brewing all this time and finally snagged the nerve. Is this how it manifests itself? I have a lot to learn. How has scar tissue affected your quality of life?

meydey321
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scar tissue

I did some more digging at blueregence.com and found the name of this procedure to be called epidural adhesiolysis (lysis of adhesions) with myeloscopy. It is an interventional technique that uses 3-D to visualize the epidural space so that the scar tissue can be removed and drugs are administered to the specific target. The drugs consist of hypertonic saline, and it is used in conjunction with steroids and analgesics. Hypertonic saline mechanically disrupts the adhesions and may reduce swelling within previously scarred and/or inflamed nerves.

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