Still new but learning... Venting needing advise

Still new but learning... Venting needing advise

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Kaybug_ChronicBaby
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Joined: 12/17/2011 - 9:55pm
Still new but learning... Venting needing advise

Hello all, I'm Kay and I am Still somewhat new here and new to CP. I have recently decided to go unto the fentanyl patch to control my pain but I'm also going to try ESI Injections in my spine/SI joint .... I'd like to know how your experience was was injections? Since you've been there done that" I've been through the entire gammot besides injections and surgery so any advice is more then welcomed.. Sometimes being 24 and going through this much pain I feel like my life is over!!! I have almost 0 support from family ... Like i faked it to not have to work???!???! Oh it makes
Me SOOO mad! I had 2 jobs forever to raise my little sister ..... I have always worked my you know what off to make my own way and now I feel like a giant burden on everyone... I hate days when I am stuck in bed! All I want to do is go out and do anything any other 24 yr old does! I totally feel like my life is over! I'd love just e able to clean the house and have dinner cooked Sad anyway I could go on a nd on but we get it... If any of you know things I could do to help or maybe a chat room? Anything!!! I am really grateful for this website though because I know I am not alone and other people do hurt every waking moment like I do! I wish I would find someone in Texas .... It would be nice to be able to sit down and have coffee with someone... I guess cp can be a really lonely place to be. Thank you for taking the time to read my post and for any advice given.... I have no idea what I would do with y'all and this site!!!! .

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JulieA
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Joined: 06/26/2008 - 1:02am
hugs Kaybug I'm sorry. CP

hugs Hug Kaybug

I'm sorry. CP can be a lonely place. I am too familiar with it. I make it that way though. I need to be alone sometimes because the pain can be so distracting that when people or the TV are on it becomes to overwhelming for me- I get overstimulated almost like a small child? I don't like Pitty- just the support.

I feel like a broken record so I try not to talk about with my family. After so many years of it they tend to believe me. They probably don't want to hear it though. When I can I join them watching TV or movies. When I can't stand myself I go to my room.... That is my signal that I am in too much pain to be super friendly and no matter how hard I try it comes out harsh.

Last night my husband was laying in bed with me watching TV when I had to kick him out. I felt like a heal but I had to be alone and turn off the tv and stretch out from my cramped spot. I appologized and turned off the lights and layed there with my ice packs wishing my life was better right now.

So I see that you have DDD and spinal stenosis, SI joint disfunction. What test have you had & what kinds of doctors are you working with? The reason I ask is that when I first started down this road back in 1999 I was told by my Chiro that I had DDD and SI problems. I wore an SI belt for a few month and had adjustments for a long time. I finally stopped seeing that doctor. I think it was because I ran out of money :)/

Fast FWD 2005 or so I hurt my low back and started seeing a chiro again for several months.I ended up going to the hospital for pain injection ay one point but the pain finally laid down still seeing chiro/massage/ & accupuncture this went on for 6 months and finally eased up (put the SI belt on with lumbar belt) what a picture I was....

Looking back I can see I probablu had bulged my discs for the first times only my PCP made me take motrin and tylenol & see the Chiro/PT/MT etc...

When I was young like you my doctors did not take me seriously. I wished they had warned me- done a serious work up of my spine MRI etc. All I got was some lousy cheap x-rays from the chiro. (((I did get a neck MRI after the chiro injured my neck and I had severe headaches at one point but only after a neurologist ordered it)))).

You are your own best advocate. I don't know what to tell you about the family. Maybe you can print them the "Spoon Theory". I like that story and share it with my few friends that I have left and my 2 family members that live with me. Everyone else lives very far away.

The ESI's might help you alot. My last one hit the target spot. I felt 100% normal for a few hours and that says something big for me Smile also in the last when I had them for my lumbar problems the first one worked pretty good. I felt awesome for a couple months. The second one wasn't so good. But the first one knocked out my sciatic pain. There is some hope. Is the dr using a florascope?

I have had very mixed results, but remeber it is also diagnostic not just a medical treatment- it helps the dr pin point the pain generator areas.

Sorry for the long post!

Hang in there & feel better Smile

Julie

Rassy
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Joined: 12/30/2011 - 4:12pm
Pain Is A Pain

Hi Kaybug Wave ,

As I read your post and Julie's comments, I feel like I am reading a synopsis of the lives of a lot of people here on S-H. My "Resume of the Pain Game" is in Rassy's Story below. After 6 years of the see-saw battle with chronic cervical pain, I know how you feel and what you are saying.

I have have several injection procedures, one of which WAS the EIS. This was at the base of my skull and several places at my lower neck. My EIS was done about 3 months after Botox injects failed to give me the relief we were seeking. Unfortunately, the EIS result was the same. PLEASE don't let my unfortunate resulte detur you from your decision to go ahead with your procedure. I am sure there are more success stories out here and I hope they will respond to your post. Got my fingers crossed for you! Let us know how things work out because, YES, your Spine Health Family cares Hug

Rassy

Rassy's Story
Under House Arrest Without the Ankle Bracelet :-)
The remarks I make are strictly my own based on my personal experiences.

Kaybug_ChronicBaby
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Joined: 12/17/2011 - 9:55pm
Tests/scans

Thank y'all for the wonderful responses! Julie I'll give you the short version of the last year it started with my hips and lower back burning by the end of my shift came on out of nowhere ( mind that ideas very fit/athletic at the time) well after aprox 1-2months of that I went and seen my GP and he sai that he had thought I herniated a couple disc at my lower back ok do we started oral steroids (the kind where u take like 8 the first day then seven Ect... NOTHING then anti-imflammatories NSAIDS Advil Motrin, the prescription strength ones Ect... Still nothing (oh and in the meantime it got so bad I lost me job and this my wonderful ins!!!) all the while the pains getting worse SOOO worse burning down my legs severe back pain Ect.. We tried exercises at home sti nothing was helping so there wasn't much else he could do and not having insurence anymore I started going to the ER and after 4 trips there I finally got help I got X-rays then CT scan then finally an MRI that showed 6 buldging discs and then they refered me to they're Ortho clinic and they put me on hydrocodone and I did get some measure of releif but only for a couple hours max! After seeing 5 different doctors at that clinic and getting the scans looked at it was determined that I have all the mentioned issues and I had apparently fractured my back in a couple places right under my shoulder blades at some point probably when I had my bike accident!! And fast fw to now they have me goin to see a sports/spinal injury specialist and he is going to do these shots at the end of the month and continue with my
PT. btw the first couple Ortho spine specialist i seen at that clinic were very unhelpful they shrugged me off as being too young to be in this much pain! Then I
FINALLY got one to look at the report and sit down with me.... He actually cringed when he looked at my report and MRI scan!!! I was treated like some Columbian drug smuggling/drug seeker before like I don't even think they actually LOOKED. At my scans or reports !! (we have this health network setup here in dfw Texas for people whom cannot otherwise afford to Pay for this type of treatment but long story short I was approved after 6 interviews/appointments!!! Thank god I had the optio. Though!!)

JulieA
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Wow- You poor thing. There

Wow- You poor thing.

There are other things that I use to help with pain control other than just meds. I love my PM doctor. They have kept me from doing something bad to myself. But the tens unit and the patches help alot too.

I have been living in my EMPI (tens unit) for the last 3 weeks. In the past I might use it daily 40 minutes. Now I have the leads on my back and another set on my arms and this thing is running for several hours.

I also use the Lidocane patches. I found if I use vet wrap I can get them to stick to my arms much better. I will put a support tank over them when I put them on my T-Spine. I can wear 3 a day for 12 hours. They really help me. Ask you dr about these. I have been using them for years my PCP started me on them- they are great.