Things we give up due to chronic pain

Things we give up due to chronic pain

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j.howie
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Joined: 06/19/2008 - 7:21pm
Things we give up due to chronic pain

What are some of the things you love, but have had to give up due to chronic pain?
For me.....It would be traveling. I love to go places. Especially places that I haven't been to.
I saved for it. I planed for it, And now I just can't do it.
I went to the South Pacific coast. For five days. Had a pain spike on the first day. And spent the next four days in my hotel room. In major pain and unable to do anything but lay on the bed. How are you going to plan?
Very expensive, and what a waste of money!
That's just one of many!....What are yours???
Jim

julie47
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Joined: 02/16/2012 - 8:39pm
Things We Give Up

For me, it is volunteering with the crew for the Susan G. Komen 3 Day walk for breast cancer.

My back issues are incompatible with the amount of time required to stand and walk in volunteer duties. They are also incompatible with sleeping on the ground in a tent or on a cot.

For me, this is a heartbreaker. My mother is a 2-time survivor of breast cancer. Volunteering for several consecutive years was my way to avenge what happened to her.

Lovetrotravel
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Joined: 04/19/2011 - 7:51pm
Hmm..

I have to say the only thing I have given up is rollercoaster rides as they could be very dangerous with my neck:(....

But everything else I do...no matter if I suffer with some pain...

I spoke with my PM after my last fusion surgery in that if I am going to have chronic pain....I need to know what could actually injure me further....and what would just cause extra pain...

I love traveling and do Mission work around the U.S. and Africa....The trip to Africa is 13 hours by 3 planes, a helicopter, and a 12 hour bus ride on dirt roads to get to the remote villages....

But oh....when we pull up and the children and adults come running, smiling, singing...and I get mobbed like a rock star with hugs and kisses....I could not care less that I am so much pain I can barely stand!!!...It is worth it...

I also love to ride motorcycles....(on the back as I don't have my own)....and thankfully my ex boyfriend who I am great friends with....we will go on day rides...Again....I just take my pain meds and know that I will have some awful days afterwards but I just can't give up the things that give me joy...

Pain is going to be there no matter what....

Jim....isn't there some way to find ways to travel in smaller amounts....or at least for a few days here/there???

Julie....how about sitting in a chair to help volunteer....or even for just a few hours? Or being able to show up midnight for a bit to cheer on your group of folks? There must be some things you can still do to help out there instead of give it all up:(

I know it's hard....belive me....we all live with such terrible pain....But I guess I just think that there are some things that I just cannot and will not give up....the Joy always outweighs the pain.....

janiski
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what I gave up

Three fusions and now SI joint dysfunction from the block of bone sitting on my SI joint.

I had to give up running, which I have done (competitively)since 2nd grade when I beat all the boys in the 40 yard dash!! I loved to run, it was my thinking time.

I also had to give up my bikes. I had 12 at one time. I always commuted to work on my bike so had several commute bikes for summer and winter. Plus road bike and time trial bike, mtn. bike, single speed, etc etc. I loved to ride too.

With the SI I cannot even walk long distances. I have never liked walking but it became more acceptable when it was all I could do after my surgeries.

Can't sit or drive long distances so this prevents me from going places sometimes.

I CAN still swim and that is also something I have done competitively since childhood. I even managed to get up on the starting blocks recently. Haven't competed since my fusions but am planning to get back into it soon.

I would like to say I gave up cleaning my house because it hurts my back but alas that is not the case!!

L4/L5 laminectomy, L4/L5 360 fusion with instrumentation, L1 to L5 fusion, L5/S1 fusion w/ disc replacement, left and right SI joints fused.

j.howie
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Joined: 06/19/2008 - 7:21pm
Love to travel

You mentioned my second love. My Harley Road King. She was my baby. I Bought it new. Then Poured thousands and blood sweat and tears. In chrome, motor work, and many, many things to make it so special to me. But I just couldn't ride anymore after 10 years and 8 surgeries.
So I gave it to my son. And now it's very special to him.
And every time I see him riding, working,polishing, etc. his smile and the gleam in his eyes.....Well It's way worth it....The pride he takes, Just because it was Dads!
And the eight surgeries and 10 years. Should explain not being able to travel. Believe me when I say the Joy would outweigh the pain. The way it used to be!
But as time goes on,there are different degrees of pain. Please....enjoy every bit of it you can. While you can!
Jim

Click my name to see my Medical history
You get what you get, not what you deserve......I stole that from Susan (rip)
Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!

Lovetrotravel
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Jim..

I'm sure it was killer to have to give up the bike!! Can he take you on rides?? I know I would never be able to ride one myself anymore...(had a 883 Sportster way back when)....so that is why I hitch rides when I can now...LOL..

Sorry to hear that the pain outweighs the joy of doing any traveling...I hear ya with the surgeries...Have had 12 in the last 10 years with a lovely little brain tumor to boot right now..

We all have to make the choices we think our best for ourselves and hopefully we have Drs. who help us acheive our goals...

I'm glad your bike went to a good home!!

MsHumptyDumpty
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Joined: 10/18/2009 - 12:57am
I am the odd ball I guess

I am the odd ball I guess smiley

1. cleaning my own home

2. doing my own laundry

3 Basic things - making a bed , not taking 20 minutes to put clothes on, 15 for shoes etc. smiley

L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.

Cath111
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Joined: 09/02/2008 - 10:06am
Things I miss

I miss keeping my house clean and not having laundry always waiting on the floor to be done (MsHD, you're not alone).

I miss the energy I used to have. I get home from work and no longer have the energy to make a nice dinner and do other things too.

I miss long car rides and the spontanaety (sp?) of being able to just get up and go. Now there's too much prep - making sure I have my brace, pills, etc.

I miss golf the most. I can sometimes make it to 9 holes, but usually only 7. Never again will I make 18 holes - I tried on a good day and was playing well but by the 13th hole, I fell after my drive and my hubby and friends made me stop.

What have I gained? Walking. I walk every day now with my little Corgi, Wally, and have made many friends at the park. That and the friends I cherish.

I also love my recliner.

Cath

SueD
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Things I have given up..............

Well, I don't use my own darkroom any more because of all the constant bending involved. I did change to digital, but haven't mastered Photoshop yet, so I'm struggling with that.

Instead of bending down to get a really low angle shot, I just lean forwards and drop my hand to take pictures at a lower level - the images I get are rubbish though, but I suppose it's trial and error.

I don't do anywhere near as much gardening as I used to enjoy. I used to be able to spend the whole day outside, but now it's more a case of 10-20 minutes, then I have to stop because I'm bent over double and in agony.

I know I should pace myself, but I also need to be able to TRY!

I won't give up until it totally gives me up first. I will at least try and, if I end up paying for it with too much pain afterwards, then I won't do it with quite so much gusto again.

At the moment, my biggest 'try' is returning to work. I'll know soon enough if I can do my job or not, but for the first 10 weeks I won't be required to do home visits or sit/kneel/work on the floor - so hopefully things will be ok in the end, please G-d!

All in all, I can do most things if I'm very careful, protective of my back and don't overdo it (having said that, there have been occasions when I've forgotten about my back - how? - and have just dived in, almost an automatic reflex thing, and severely regretted it afterwards - I don't suppose I'll ever change). If there are things I can't do then my hubby and family will help me if I ask, so it's all good.

I look at it this way...... I'm gonna be in pain whether I sit here doing nothing, or try and do something worthwhile, so I may as well give it a go and see what happens.

SUE
2 x Microdiscectomy 2005 / PLIFusion 2-level 2010 / revision surgery 2011 / NEVRO Senza spinal cord stimulator implanted February 2013. I WILL NOT GIVE IN / UP !!

backache99
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good one jim

after being a very active person .back pain has gradually reduced me to a house bound wreck .even before this operation i could..[on a good day]} walk the dog /swim clean the car.but now its all i can do to get a shower and rest for the day !.life has changed dramatically over the last few years .sex /work and even dull stuff life food shopping ...cart do anymore ...at 45 ..its a crap outlook
tony

1997 laminectomy
2007 repeat laminectomy and discectomy L4/L5
2011 ALIF {L4/L5/S1}
2012 ? bowel problems .still under investigation
2013 to date still suffering 24/7 with intractable pain bladder operation canceled for now due to lack of beds

janiski
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Joined: 09/05/2008 - 3:09pm
Cath

I agree with you about the energy. How could I have missed putting that one in. Its huge!!

L4/L5 laminectomy, L4/L5 360 fusion with instrumentation, L1 to L5 fusion, L5/S1 fusion w/ disc replacement, left and right SI joints fused.

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