upper thigh pain after fusions

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Pamdfla
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Joined: 01/26/2013 - 7:42pm
upper thigh pain after fusions

I had decompression of all the L's and S1. Two fusions in the lower lumbar. A few days after all the meds wore off, I started getting severe pain in the backs of my thighs down to my knees. It started in the left leg then eventually started in the right also. I cannot sit. Doesn't matter if it's a hard or soft surface. when I get up and try to stand and walk, the pain in my thighs is so severe it makes me sink to the floor. My legs are totally weak and I have to wait a few minutes before I can take a step. If i lay down and get up, it doesn't happen. Well, at least it hasn't yet. From all I'm reading it sounds like it might be coming. I'm getting the feeling I am going to spend the rest of my life like this. I've been to a neurologist. He wants to do nerve conduction tests. Why. Nothing he can do if nerves are dead. I'm thinking of canceling the appt. I'm living on pain meds and I lay in or on my bed 24/7. I have no life anymore. Has anyone out there ever found any relief?

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DaveFusion
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Pam, hi and welcome here.

Pam, hi and welcome here.

Nerves are very resilient and often recover.

For nerves, pain DOES NOT equal nerve damage. We can have nerve pain without damage.

However, the longer we have nerve pain the more likely it is to have damage. So it is important to find the cause of the pain to get it addressed. Hence, the neurologist and the EMG and nerve conduction test to identify the cause.

So go to the neurologist and get tested.

Second thing, please look at http://www.spine-health.com/forum/spine-health-announcements/dermatome-map and see what area of your body is affected. This will help you understand and be able to discuss this with neurologist and your neurosurgeon.

By the way, you haven't told us what your surgeon is saying. What's his / her opinion?

Good luck.

Cath111
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Hi Pam.

Welcome.

How long ago was your surgery? I had a 1-level lumbar fusion at L-3/4, plus a laminectomy, and they also went into the levels above and below to clean out space where the nerves are to stave off stenosis. It was a very invasive surgery and the retractors they had to use bruised the top of my butt cheeks so bad they took weeks to feel better.

Anyway, about a week or so after my surgery, I started having the nerve pain you're experiencing and, man, is it a bear. I didn't contact my doctor as I had some nerve pain after my last lumbar fusion, just not so bad and for so long. So I waited and lo and behold, I woke up a few weeks later and it was all gone.

I saw my surgeon yesterday for a follow-up and he said that although that kind of pain is unusual, when you have a very tough surgery, the nerves do get very angry and this can happen. I was afraid also that it was permanent, but it wasn't. So perhaps just giving it some time...the only thing that helped me was to lay on the couch (or bed) on my non-hurting side and putting an ice pack on it.

So I understand what you're going through and although it's very, very difficult, it may just be angry nerves that will settle down on their own. I hope so, only time will tell. Just know that I went through that after both lumber surgeries and both times the nerves settled done on their own.

Take care and keep us posted,
Cathie

Davey16
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Hi

I had a 2 level fusion of the lower Lumbar, Back in sept 2012, I too had a lot of nerve pain in the thighs down to the knees with electric shocks if I walked, Over time it has got better to the point I hardly have any nerve pain unless i overdo things, then i get a burning sensation in both thighs but this goes with rest. I was put on Lyrica for the nerve pain and i found this helped, have you tried any nerve pain meds ????. I started Back @ work yesterday after 5 months off and this went well without adverse effects.You have to give it time for the nerves to settle down like others have mentioned, Good luck with your recovery

terror8396
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pain

i had the same pain after my last fusion, extreeeeeeeeeeeem pain in the upper left thigh. dr said he did not know what happened and he said it never happened to him. 2 days lataer, he came in and said a buddy of his had patients that had this problem good news bad news. good news pain will go away bad news my thigh is still numb after 9 months. i felt like i could not put up with the pain and maybe i would have to do something about it but it does get better. if not see your dr asap
jon

I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.

ricymardona
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Don't worry consult with the

Don't worry consult with the neurologist and the EMG and nerve conduction test to identify the cause.

backache99
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you don't need nerve conduction test {in my opinion}

its just putting you through unnecessary pain and worry so cancel the appointment .what your experiencing is normal to get relief i would suggest you incest in a decent recliner {an electrical adjustable one would be the better way to go] as you can adjust it in any position .i use mine and i have 4 memory foam pillows in strategic positions to alleviate any pressure.i have one in my lower back two under my knees and one tempur millenium queen [a specialist type pillow} for my head ..the recliner allows me to get my lower back in a neutral position .i too can't sit on any other chair as my legs go numb and i find it very pain full ..if you can't purchase a new electrical recliner there are many for sale in EBay and other free adds local papers many of them are as new as they tend to be purchased for granny in her latter years .so in short a decent recliner will help you i even sleep in mine and would be lost without it ..i had ALIF 12 months ago and i am still having lots of problems .good luck
tony{UK}

1997 laminectomy
2007 repeat laminectomy and discectomy L4/L5
2011 ALIF {L4/L5/S1}
2012 ? bowel problems .still under investigation
2014 bladder operation may 19th 2014

terror8396
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leg pain

maybe someone can help. along with 2 year leg pain after 4 back surgeries, my leg looks like a war zone. the bottom is red due to a vessel disease and the skin is peeling off. after 3rd surgery, leg and foot got swollen and stuff oozed out of it for about a month. my two middle toes are paralyzed and overall it looks gross but the pain is the worse. it gets worse by the day. goes form thigh to knee and down knee to calf. what is going on? help
jon

I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.

texascowgirl
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Thigh pain

I have had 2 spinal fusions,rhizotomy,etc......The first was 5 years ago,the second 3 years ago with the rhizotomy inbetween.Last fall my bootie and legs started hurting again-Mri showed nothing---EMG showed no nerve damage.I had a steroid shot,which helped about 2 months.The pain from back issues never goes completely away-I would suggest getting the EMG test done,to rule out further disk problems.A friend has had good luck with a nerve stimulator implanted in her back.It is going to come down to what feels right to you,and hopefully,supportive medical advice.I deeply sympathize,and I wish you the best! Cowgirl

cjp1986
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Joined: 08/23/2012 - 11:32am
Nerve pain left leg

I too have severe left leg pain. ALL day, Everyday. I had a 2 level lumbar spinal fusion with cages and screws on Sept 17, 2012. When I woke up in recovery my left leg was paralysed!!!!!, and I had severe left leg pain. The paralysis has gotten better, I can move my feet and some of my left leg now after months of physical therapy. My spine surgeon said he touched a NERVE during surgery and nerves heal very very very slowly. so now I
I go to physical therapy 2 times a week, and I suffer through the daily pain. I still cannot move my left leg and foot forward, but the spine doc and neurologist and physical therapist's are all hopeful and telling me that I will recover 100%. So I live on pain pills and deal with the pain and constipation from the Lortab 7.5mg.
Good Luck to you and go see the Neuro doc. He can tell you from the tests if the nerves are affected or if the pain is coming from something else.
Carol in Atlanta

cjp1986
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Nerve pain left leg

cjp1986 wrote:
I too have severe left leg pain. ALL day, Everyday. I had a 2 level lumbar spinal fusion with cages and screws on Sept 17, 2012. When I woke up in recovery my left leg was paralysed!!!!!, and I had severe left leg pain. The paralysis has gotten better, I can move my feet and some of my left leg now after months of physical therapy. My spine surgeon said he touched a NERVE during surgery and nerves heal very very very slowly. so now I
I go to physical therapy 2 times a week, and I suffer through the daily pain. I still cannot move my left leg and foot forward, but the spine doc and neurologist and physical therapist's are all hopeful and telling me that I will recover 100%. So I live on pain pills and deal with the pain and constipation from the Lortab 7.5mg.
Good Luck to you and go see the Neuro doc. He can tell you from the tests if the nerves are affected or if the pain is coming from something else.
Carol in Atlanta

Also I can NOT walk with out the assistance of a walker or I use a wheel chair. I can barely stand up without holding on to the walker. Before surgery, I was walking and taking care of my self. Now I no longer can stand long enough to cook, shower, or anything. My house is now make handicap accessable. I also have to use a long leg brace to walk since my left knee keeps buckling on me and I was falling.
Wish me luck and Good Luck to you all.

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