My name is Alex and I am 19. I suffer from a Vascular Hemangioma which spreads throughout my muscle. Unlike most Hemangioma's, mine is internal and causes severe pain to the point of needing to take medication every 6 hours just to help ease the pain. It has gotten so bad that I now need to walk with a cane just to function on a day to day basis.
I've had this benign tumor since the day I was born, but the pain started when I was around 6 years old. Unfortunantly for me I was under the care of canadian physicians so they were clueless to what condition I had and how to treat it. For several months they tried to diagnose me and when they did, they had no idea what to do. I was shipped off to specialist after specialist who were oblivious to the treatment I needed. I then met with a interventional radiologist who said that there may be a chance to destroy the tumor, well after 5 procedures and two angiograms the tumor has shrunk, but the pain has become worse. The cardiovascular surgeon believes that the pain may be a result of muscular and nerve damage from the recent procedures. So I am now planning to see one last doctor before I'm shipped off to the pain specialist. Wish me luck