Vascular Hemangioma- Pain

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Last seen: 3 years 9 months ago
Title: Member
Joined: 02/03/2012 - 7:37am
Vascular Hemangioma- Pain

My name is Alex and I am 19. I suffer from a Vascular Hemangioma which spreads throughout my muscle. Unlike most Hemangioma's, mine is internal and causes severe pain to the point of needing to take medication every 6 hours just to help ease the pain. It has gotten so bad that I now need to walk with a cane just to function on a day to day basis.

I've had this benign tumor since the day I was born, but the pain started when I was around 6 years old. Unfortunantly for me I was under the care of canadian physicians so they were clueless to what condition I had and how to treat it. For several months they tried to diagnose me and when they did, they had no idea what to do. I was shipped off to specialist after specialist who were oblivious to the treatment I needed. I then met with a interventional radiologist who said that there may be a chance to destroy the tumor, well after 5 procedures and two angiograms the tumor has shrunk, but the pain has become worse. The cardiovascular surgeon believes that the pain may be a result of muscular and nerve damage from the recent procedures. So I am now planning to see one last doctor before I'm shipped off to the pain specialist. Wish me luck

Last seen: 10 hours 48 min ago
Title: Moderator
Joined: 02/04/2011 - 8:18am
I do indeed..

...wish you luck and hope you find best docs possible.

It's a lot to deal with, esp so young. Pain bad enough and then to realize medical people don't all have same level of know how.

You take care and keep in touch Smile

I am not a medical professional. Anything I write is from my own experiences.