Fluid around the nerve

Fluid around the nerve

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alyn93
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Last seen: 4 years 10 months ago
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Joined: 02/26/2009 - 4:44pm
Fluid around the nerve

Had my lumbar hybrid surgery(L4-L5, L5-S1 fusion & disc replacement) in June. I was having a very positive recovery until about 3 weeks ago when I started to have severe pain upon lying flat in my right buttock and upper thigh. They first thought it to be muscular and started me on PT to no avail. Now they are thinking it to be nerve damage or injury. I just had an MRI and the nurse told me it showed fluid around the right nerve. She left a message on my machine telling me this! I really wish she wouldn't have because now I am panicking. Has anyone else had this problem and if so what was done to fix it? The pain continues to get worse and lasts now all day but the most pain is when I get out of bed in the morning....my hubby has to literally pull me out screaming....no fun! They put me on Lyrica for pain.
Thanks in advance for anything shared!

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val1
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Joined: 08/16/2009 - 3:12am
Hi there

Your problem sounds really painful and I do sympathise. However I haven't had anything like it, so can't be of any real help.

However, if the nurse just left the message on your machine, do you think maybe it's something they tend to find happens? I may be completely wrong though, because anything that causes so much pain can't be good, so either she was totally unprofessional in leaving the message or as I say, it's not unusual and can be fixed by draining the fluid?

Do you have some kind of emergency line you can ring to find out what on earth's going on? Sorry I can't be of more help because I've never experienced this.

In your position, I'd ring them asap to find out what's going on and what they can do to help you, because I don't think you should be in that much pain.

Val

pete81241
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Last seen: 4 years 10 months ago
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Joined: 05/23/2009 - 4:41pm
hi alyn

all i can do is send a bit of hope to you...i'm another person in pain so i know what you feel. i dont know anything about fluid because drs never said i had it. so heres some hope straight from my heart...pete

tweetybird716
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Joined: 06/11/2009 - 10:56pm
Hi Alyn

I guess you could say that I have the same problem, I found out today and will find out Friday what they plan on doing about it. I also had the same problem with my last fusion and they went back in and cleaned it out, As soon as I woke up I felt relief. I am hurting like you and I can not lie in the bed I also cant stand straight up without hurting, I am numb from the waist down and even my hands are swollen, they said today it could be an infection, not sure but bloodwork came back elevated also, anyway keep calling them till you get some answers. My MRI showed a large amount of fluid and a large amount of swelling to the area, could be alot of pressure from the fluid that is making me numb but have met here, I have met alot of wonderful people here. Keep us informed as to what they do for you.

alyn93
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Last seen: 4 years 10 months ago
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Joined: 02/26/2009 - 4:44pm
Thank you!

Thank you Val & Pete for your kind words & hope. I appreciate it so much!

Tweety- I am so sorry that you have gone through this as well. This pain that I am having now is by far worse than the pain that I had prior to surgery. They also first diagnosed me with an infection and my levels (CRP) have been elevated as well. Today the pain has been nonstop and as soon as I tried to lay down it got 10x worse! I've been on strong antibiotics for 10 days but the pain has gotten worse. They are sending me for a CT of my abdomen tomorrow. They say if it is nerve damage I will have to live with it and that thought makes me so sad because this pain is really unbearable or very close to it! I know that you know exactly how I feel! Best wishes to you. I hope that we both can get some answers and some relief! Thank you for answering, it means so much to have support from folks who truly understand.

Alyn

haglandc (not verified)
Title: Member
Alyn

Depending on the type of fluid it is and the source, it can be drawn off or absorbed by the body. I agree it wasn't very brilliant of the nurse to call and leave a message like that without also saying "it's nothing to worry about" or something of that nature.

Are you suffering any headaches as well or just the buttock and thigh pain?

I had an issue with a slow CSF leak and it could be drawn out, but would build back up over a period of 10 days and put pressure back on the nerves. It was not much fun at all.

Glad they at least did some imaging to find out what the source of the pain is. Keep us posted on what you find out from the doc.

"C"

tweetybird716
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Joined: 06/11/2009 - 10:56pm
Pain

Hi Alyn,

Maybe they can change some of your meds to accomodate the amount of pain you are having, let them know how extreme it is, stay on top of this and dont let them string you along, I too have the extreme pain if I try to lie down and I have been sleeping in a reclining sofa.Maybe you could ask them to send you to a pain management DR. They are very good at trying to get you as pain free as possible. Please let us know what your CT shows and what they are planing on doing, I will let you know the same as soon as I find out in the next day or so. Take care and try to rest. Feel free to pm me if you want to talk.

alyn93
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Last seen: 4 years 10 months ago
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Joined: 02/26/2009 - 4:44pm
Update

Well I am sorry to report that I am still in pain. The docs really don't seem to have an answer for me other than it is not cancer (thank goodness!) and they feel that it is likely nerve injury or nerve damage. Apparently if I still have the pain a year from surgery date they will consider it nerve damage....great! I a not sleeping and only find some relief sleeping in my recliner. Walking, standing, sitting is a chore, lying down is next to impossible as I can barely get up. I am searching, hoping that I can find an answer to this. They have checked the fusion & disc and say all looks well. I see that some of you too deal with nerve pain and wondering if you too experience the same sharp terrible pains in your buttocks, thighs, legs, & feet? I am having a very hard time dealing with the idea that I may have to deal with this for the rest of my life and I just want to be sure that this is truly what is going on. Thanks so much to all of you for your kind words of hope & wisdom. I appreciate every bit of it.