I was very excited to find this forum. I would like to share my story and frustration in hopes somebody out there thinks it may seem similar. It will be hard to make it brief but I will try:
For years I have had some amount of low back discomfort which was diagnosed as normal disc degenerative disease. It is a discomfort that is not that bad really some days really sore. I clean houses and have for years, I also am an avid atv, snowmobile rider and as of 4 months ago purchased my first dirt bike. I was so excited but wonder if my bike has become my downfall. Starting in early August I began to experience a lot of pain in my groin area and lot of low back pain, this went on for about 2 wks. not sure why or who to see (back dr?, women dr?) i just kinda waited it out. On Aug. 12 I went for a 60 mile dirt bike ride to celebrate my bday with my family ( my son also has a dirt bike). Sometimes after long rides my buttocks would really hurt from the seat both sides basically. So I thought now i have groin pain and this buttock pain,but after 2 days the pain in my butt went away like it always did, i figured it was strained muscles beckse the seat is awful.
However the groin pain and low back pain got lot worse. About a week later my buttocks began to really hurt as well as the groin and back, this time the buttock pain just appeared one day. Not from a bike ride, just on it's own and it hurt really bad sometimes both cheeks sometime switch left right and then my upper thighs began to experience pain. i went to my general dr. who took some blood, my white count was high as well as a few other things, He really thought I had a kidney infection, even though no fever so I took 10 days of cipro antibiotics. But to no avail, no help. On labor day wknd. I ended up at the emergency room twice in one weekend the pain was awful. They gave me medications for pain, sent me home. From there it began back and forth to my dr. who did run some very thorough blood work. No tumers, infections of the spine things like that. He ordered an xray which radiologist who read saw nothing.
At one point during this time I was walking from one room to the next and my left leg completely gave out. No warning, nothing, scared me I was just walking along and then down I went. My husband helped me up but I had no numbness, no more pain than usual. hmmmmmm. I went to a chiropractor last week because this has been going on so long and all I can do is take meds every day. Sitting for more than 15 minutes really hurts, standing walking same thing hurts a lot. Right at this time I can say the most pain right now is in my buttocks, the groin pain now comes and goes and is no longer constant. thighs bother sometimes but mostly my legs just feel very crampy. My chriopractor read my xray and thought he could see an issue at the l4-l5 and wanted more tests.
My reg. dr. ordered a cat scan with contrast I thought of my back but it was a ct of my abdomen and pelvis which does touch a bit on my spine. Results of my ct of my spine are as follows: Osseous structures are remarkable for degenerative disc disease at L4-L5 and L5-S1 with mild broad-based posterior disc herniations at each of these 2 levels. Lower lumbar spondylosis L4-L5-S1 levels which may explain central low back pain, plus/minus radiculopathy. No specific findings to explain the patient's constellation of signs and symptoms in one diagnosis.
I also need to add that throughout all this I have also had quite a bit of upper back pain kind of in the middle of my shouder blades just little more towards my right blade. I have to wonder if these are somehow connected to my lower issues.
To sum it up, sorry again for long post. My reg. dr. is not convinced that I do not have lyme disease although my tests did come up negative. He said they have a 10 band test if 5 or more are positive you have it and I only had one positive band. He has me also on a course of dioxyclin for that, which I hate. making me nauseus and also makes my right eye irritated every single night and it hurts so I don't want to keep taking these. Meds for my back are tramaol 50mg. 4-6 times daily (1or2). Diazapam 5 mg. twice a day. My chiropracter has agreed to finally give me a go ahead with a treatment starting monday. I am scared to death. My level of pain is really bad, although I am somehat learning to live with it and I have not worked for over 2 months, which has been very hard both financially and mentally most of my time is on the couch with some movement. Any ideas?? Anyone?? I would really appreciate any input.