C5-C6 neck pain with occipital neuralgia and dizziness?

C5-C6 neck pain with occipital neuralgia and dizziness?

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Lili_Inu
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Last seen: 2 months 2 weeks ago
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Joined: 01/20/2011 - 10:38am
haglandc

I had actual vertigo a couple of times. Since then, I know that I have to move slowly and never really had it come on. But I do have dizziness all the time, all day for the last 2 months. I do not believe it's an inner ear problem, but meeting with ENT anyways.

I have appointments with neurosurgeons from EDITED Hospital and EDITED Hospital in the next 2 weeks. I'm willing to wait to meet with the best in the field, even though it is driving me crazy!

How did you ever repair the vestibulocochlear nerve after it got damaged?

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Edited by Authority Member Cath111.

2011 ACDF C5-6 for Spondylosis with Myleopathy
2012 L4-5 herniated disc and hernated disc at C4/5
2013 Diagnosed with leg length discrepancy of 9mm (right tibia shorter) and wearing heel lift with mild scoliosis
2013 Taking Amitriptyline for headaches

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cgm
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Last seen: 1 year 11 months ago
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Joined: 11/12/2010 - 9:42am
I sent you a link to your inbox

We can't post website here or they will be deleted. Anyhoo, I sent you a private message with a website I just found. Good info. Take care LILI and we'll see ya round.

haglandc (not verified)
Title: Member
Lili

There was no repair done to the nerve other than what my body did itself. I went through several months of vestibular rehab where I had to work every day to learn to compensate (learn to walk unsupported, learn to balance, learn to stand up from a seated position, learn to turn my head or track someone walking past). Eventually I was able to compensate for a lot of it. There are still certain situations where I experience balance or vertigo issues, but I now know what to look for or be wary of and I avoid falling. The hearing loss decreased some, but as that happened I developed a lot of tinnitus in its place.

Basically the body is capable of tremendous things. With the right guidance and therapy I have been able to overcome a lot of what the damaged nerve caused/s.

"C"

cgm
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Last seen: 1 year 11 months ago
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Joined: 11/12/2010 - 9:42am
holy cow Haglandc

Our bodies are resilient! Glad you are better Sir.

haglandc (not verified)
Title: Member
cgm

I do agree that our bodies have an incredible capability when it comes to dealing with injury and disease. I am very grateful that despite the abuse I have put mine through, it finds ways to heal that I would never have thought even possible.

Oh and my husband would laugh to know someone called me sir. I too am glad things are much better!

"C"

cgm
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Last seen: 1 year 11 months ago
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Joined: 11/12/2010 - 9:42am
Oops sorry HaglandC

Just goes to show you that Girls can be football fans too huh. There I went just assuming cuz of your Sea Hawks logo. Sorry Chickadee!

haglandc (not verified)
Title: Member
cgm

No Worries. I have been a Seahawks fan through thick and thin from the days when they were nothing more than an expansion team.

"C"

jlrfrye
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Last seen: 4 hours 34 min ago
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Joined: 05/01/2009 - 6:48pm
Hi

Sorry it took so long to get back with you. I have had surgery on c3-c7. My surgeon told me the dizziness was caused by severe stenosis at all levels. The dizziness I had before my surgery was horrible. Once the dizziness started I was unable to stand up and had to put my head down. I also had severe vision problems during my spells.
My last surgery was about 9 months ago and I have had no issues with my vision or dizziness since. I really hope that they can resolve this issue for you. It used to scare the crap out me when it happened and caused me to become housebound. I was scared to death it would happen while I was away from home, which it did twice so I remained home until surgery. Let us know how this turns out for you. Good luck
Susan

Lili_Inu
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Last seen: 2 months 2 weeks ago
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Joined: 01/20/2011 - 10:38am
haglandc and Susan

Thanks haglandc and jlrfrye,

haglandc glad the rehab for your dizziness helped! It's amazing how neuropathways can be remapped. I took a neurology class right before I became debilitated by my spine issues. Your nerves can relearn how to function in an entirely different part of the brain by rewiring.

Susan: i hope that i will find a solution to all the dizziness. tomorrow i meet with one neurosurgeon and hope to get some answers.

Lini

2011 ACDF C5-6 for Spondylosis with Myleopathy
2012 L4-5 herniated disc and hernated disc at C4/5
2013 Diagnosed with leg length discrepancy of 9mm (right tibia shorter) and wearing heel lift with mild scoliosis
2013 Taking Amitriptyline for headaches

Lili_Inu
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Last seen: 2 months 2 weeks ago
Title: Member
Joined: 01/20/2011 - 10:38am
Still no real answers

I met with the neurosurgeon and left without knowing more than I already knew. Tomorrow I am scheduled to get my second injection so that I will know if my symptoms are truly from C5 and C6.

I'm really feeling like no one has any answers for me. My pain management doctor said that never operate until you can find out where the pain is coming from. Often what we see as the pathology on CT scans do not mean that the pain is coming from there. It's really like this mystery that needs to be solved!

2011 ACDF C5-6 for Spondylosis with Myleopathy
2012 L4-5 herniated disc and hernated disc at C4/5
2013 Diagnosed with leg length discrepancy of 9mm (right tibia shorter) and wearing heel lift with mild scoliosis
2013 Taking Amitriptyline for headaches

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