Thought I'd jump in here and start logging my "recovery". I had a c3-c7 fusion with instrumentation "post" on 12-19. My this is my second surgey, had a decompression of the nerve root at c5-c6 in '09 to relieve pain in the right arm upper/front which was successful.
I've had continuing issues with right shoulder pain (mainly in the upper right back between the blade and right arm pain. All started in 2007 with a work related injury and from there we discovered the bulging disc, ddd and stenosis. I've had at least 6 shots and a 3 level discogram.
Finally, the doctor wc sent me to recommended this 4 level fusion and I went with his recommendation. So I'm recovering at home and hoping the pain in my upper right shoulder and down my arm is going to get better with time as he says it should. I'm not convinced though as I know which pain is gone and which is not. It is actually worse now than it ever was.
So we'll just have to wait and see but I'm pretty discouraged at the moment as I feel this was a mistake.
DOI 2007, DDD C3-4 w/spinal canal narrowing and cord compression as well as severe foraminal stenosis especially on right side, severe forminal stenosis at C5-6, significant cord compression C6-7 right side with obliteration of the thecal space and deformation of spinal cord at that level. Cervical spondylosis with cervical spondylitic radiculopathy.
Previous treatments right side C6-7 foraminotomy 4/09, 6 nerve root injections and 3 level discogram 10/9.
C3-C7 anterior cervical decompression and fusion followed by posterior spinal fusion with instrumentation. 12/19/11
and welcome to Spine Health.
I'm so sorry to hear that you are still in pain.
4 level cervical fusion is a big surgery, but there are others here who have had that much fused.
Hopefully they will arrive here and share their experiences with you. I know that nerves do take a long time to heal and can still improve up to 2 years later.
Did your surgeon give you any information as to why he felt you were still in pain. I wonder if he thinks you have permanent nerve damage.
I am being 'watched' at the moment to see how things progress, but I also have issues from C3 to C7. I suspect that I will end up having surgery, but your story makes me think that it is probably just as well that they aren't in a hurry to do surgery. I do have symptoms of cord compression though, so that worries me that if they leave it too long I may end up with permanent cord or nerve damage.
I think you will find this a great place to get information about your spinal problem and also get support from others who are experiencing similar problems and know how frustrating being in chronic pain is.
Grade 2 spondylolisthesis causing severe stenosis + DDD
L4/L5 decompression (laminectomy) and PLIF 19th March 2010
Herniations at T12/L1, T9/T10 and T8/T9 (mildly indenting cord)
Significant cervical spondylosis from C3-C7
C3/C4 and C4/C5 are compressing the cord (mild to moderate)
Been referred to a neurologist to rule out MS
Hello Smileys, thanks for the reply. I agree I do like this site as there are so many people with the dame experiences. Right now I realize that since my surgery was less than 6 weeks ago there'll be pain coming and going during the healing process. My dr. simply says give it time, I've just recently seen him for my first check up so there wasn't much discussion from him.
I may be expecting to much to soon and really need to see how things go over the long haul. I will say the pain does seem to move around from back of shoulder, neck, arm all of which I can tell is nerve pain.
Thanks again for the reply and I hope things work out for you.
DOI 2007, DDD C3-4 w/spinal canal narrowing and cord compression as well as severe foraminal stenosis especially on right side, severe forminal stenosis at C5-6, significant cord compression C6-7 right side with obliteration of the thecal space and deformation of spinal cord at that level. Cervical spondylosis with cervical spondylitic radiculopathy.
Previous treatments right side C6-7 foraminotomy 4/09, 6 nerve root injections and 3 level discogram 10/9.
C3-C7 anterior cervical decompression and fusion followed by posterior spinal fusion with instrumentation. 12/19/11
i am 4 weeks post ALIF and feel the same way ! i will tell you what everyone telling me just stick with it and it will get better ..i know its words and living it is so much harder trust me dave i understand how you are feeling .my head is all over the place and i don't know about you .but my body is shot too even shaving is an effort .take care dave and just do what you can as you can
tony
1/laminectomy L4/5 result fair
2/redo of original op and discectomy result failed
.
3/ALIF done 29 dec 2011 .at 4 months most of the surgical pain has gone but the right hand side lower back ache {the problems i have had for many years is as bad as ever } i feel like i will never get better my mobility is a lot worse too ...
Hi Dave,
I understand your frustration. I had ACDF 3-7 last May. My surgeon told me that by having surgery the damage would not get worse, and my symptoms were very likely to improve. Before the surgery I had radiating pain down both arms (right worse than left), pain in my neck and across my shoulders. Four level is a major surgery. Have you been in a neck brace? Still in one?
Over time (a couple of months) my right arm got somewhat better and my left worse. Over more time they continued to get somewhat better. I still have some pain down my arms. I have a lot of pain down my back. When I asked my surgeon about that he evaluated it and it is muscular and osteo.
It's tough to hear, but it takes time to see how much you will heal. Although I felt better almost each day, it wasn't until about 3 months out that I felt like I was "recovered".
Now I've gone through laminectomy and discectomy at L4-L5 - I knew this would be coming up before I had the ACDF, but cervical "trumps" lumbar.
Feel free to PM me if you want.
KarenD
KarenD
ACDF 4 Level C3-C7
5/2/11
Laminectomy and discectomy, L4-L5
1/26/12
Hi folks,
I feel terrible that there are so many folks in the same boat that I am (I had no idea!!!); but at the same time, I'm so grateful to have found this forum, this resource, and this support.
Karen-do you mind if I ask how your healing is going? Were you able to return to work? In 8 days (not that I'm counting), I'm going to have C4-t2 fused with a posterior approach (maybe a level or two more or less, but this is the plan), and although I've had four fusions in the past, I'm being told (and read) that this one is much more invasive, and difficult to recover from.
I really appreciate reading about everyone's experiences. Thank you!
Heather
Hi Dave,
Let me join the rest and say that I too know your frustration. I have fought with my cervical pain for about 6 years now. Gone through pain management with drugs and procedures like cervical facet blocks, epidurals, trigger points, discogram and had a bone spur removed at C7-T1 and a 2 level fusion at C5-6 & C6-7 a year apart. Since the fusion, my issues are with the other discs and with the inflamation, pinched nerves, buldging, and bone protrusions from the other 2 procedures. I am back to pain management and medications simply because I hesitate to go through any more surgery and I need relief from this pain. Feel like a Mack truck hit me & then back up to get what he missed! I just take it slow and easy and one day at a time. Here if you want to talk. God Bless.
Rassy
Rassy's Story
Under House Arrest Without the Ankle Bracelet
The remarks I make are strictly my own based on my personal experiences.
Let me start by saying Hi. I'm Debbie a 45 year old women and I was in a very bad car accident on 11/27/11. Now because of my injury I need an ACDF. I am scared out of my mind it is from C3 - C7 with hardware. The surgery is scheduled for 2/21/12. Just joined this site for some encouragement and to talk with people who know what I'm going through. So, if any one has an suggestions please feel free to post them.
Thanks Again for being here for me.
Hi Debbie,
I'm 43, and I'm about to have my fifth fusion (c3-t2 is the plan, but maybe a level more or less).
So far, I've had C4/C5, C5/C6, and C6/C7 fused, including two failed surgeries (three if you count this last one, which didn't help).
I am so sorry to hear about your car accident. My problems all stemmed from a car accident in 2002.
I'm terrified as well... but I have to say, having found this forum, and the folks here with all of their wisdom (there is nothing like hearing from folks who have honestly been there/done that), I feel I have found another huge support system.
Finding this forum will be a huge help to you - a place to vent, a place to research, and a place to share. Good luck, and I'll look forward to hearing how you are doing.
Heather
Hi Debbie
,
Reading Dave's post and see that you are having a "date" with the surgeon this month. Just want to send my prayers and best wishes for speedy recovery. This is a great website with wonderful people with whom you can talk or just vent. I am soooo glad I found it. My activities are nill due to my chronic cervical pain. Seems like anything I do aggravates it. I really can't stay on the computer very long either. As soon as you feel up to it, let us know how you are doing. Sending you a
to let you know that I'll be thinking of you. God Bless.
Rassy
Rassy's Story
Under House Arrest Without the Ankle Bracelet
The remarks I make are strictly my own based on my personal experiences.
Have you taken a look at the Useful items for post op list? It can be found at the top of the Back and Neck Surgery page. If you can't find it, let us know and we can give you a link to it.
Are you in severe pain after your accident? What are your symptoms?
C3/C7 is a big surgery, but others have had it. Hopefully they will post and share their experiences with you.
I haven't had cervical surgery (yet!) but had a lumbar fusion. I really know and understand the nervousness before surgery. For me, and some others here, it was worse than the actual surgery. I hope that you will be able to say the same.
I have seen lots of people come here to Spine Health, have their surgery, and they are no longer posting because they are back to their lives. The people who are long term members, in the main, are still having problems, or are fairly recent to surgery and want to support others who are about to face it.
With so many levels being fused, your recovery is likely to be longer than some, but hopefully it will be the way to get your life back on track.
I wish you well, and will look forward to hearing how you get on. I suspect that I will need to have surgery at some point in the future.
Grade 2 spondylolisthesis causing severe stenosis + DDD
L4/L5 decompression (laminectomy) and PLIF 19th March 2010
Herniations at T12/L1, T9/T10 and T8/T9 (mildly indenting cord)
Significant cervical spondylosis from C3-C7
C3/C4 and C4/C5 are compressing the cord (mild to moderate)
Been referred to a neurologist to rule out MS
I am almost 1 year post-op from a one-level cervical fusion and will tell you that based on my personal experience, no doctor or physical therapist can tell you what your post-op recovery will be like. Everyone recovers in a different way depending on your stress level, extent of nerve damage, etc.
I had spinal cord compression and my symptoms progressed rapidly and that is why I opted for surgery. My NS said that my residual pain was muscular, but after my appointment with my physiatrist yesterday, she says that it is likely that my pain is a combination of nerve damage from the spinal cord as well as muscular. She doesn't know for sure and no one will really know for sure. The medical world just doesn't know enough about nerves and muscles to provide enough answers to us spine patients.
I continue to heal and know that only time will tell if I will be stuck with this pain. My pain is definitely much better than before surgery. Physical therapy is the best therapy so far for me. Surgery is a success for me, because I am functioning and not laying on the couch. Take it easy and let yourself heal!
August 2010-January 2011: MRI - C5/6: kyphosis, osteophytes, severe foraminal/spinal stenosis; PT, acupuncture, chiropractor, massage therapy, steroid injections, facet nerve blocks with no relief
February 11, 2011: ACDF at C5-C6
July, 2011: MRI - Mild herniated discs at L4/L5 and L5/S1 and bulge at L3/L4; short leg syndrome
So very true! You will continue to heal because you're doing everything you should do. I still had symptoms at 1 year post-op that I no longer have today.
~~~ ACDF C4-5 April 2007 ~~~
"Ability is what you're capable of doing. Motiviation determines what you do. Attitude determines how well you do it."
I would like to thank everyone for responding to my post and the encourging words. It's great to come here and talk to so many people who have and are going through the same to experience. Funny how the day I posted for the first time was probably one of my worst for the pain because the next day it was almost gone! The last 3 have been the best with the various pains either gone or getting better by the hour. I hope this trend continues and realize anything can happen but I'm far more encouraged now than ever. God works in many ways and I guess I just need to keep the faith. Thanks again to all for your support.
DOI 2007, DDD C3-4 w/spinal canal narrowing and cord compression as well as severe foraminal stenosis especially on right side, severe forminal stenosis at C5-6, significant cord compression C6-7 right side with obliteration of the thecal space and deformation of spinal cord at that level. Cervical spondylosis with cervical spondylitic radiculopathy.
Previous treatments right side C6-7 foraminotomy 4/09, 6 nerve root injections and 3 level discogram 10/9.
C3-C7 anterior cervical decompression and fusion followed by posterior spinal fusion with instrumentation. 12/19/11
Hi Dave
,
Anytime I see someone getting refief from pain, I have to jump on the wagon and throw a big
their way!! Wonderful news. We all strive for any measure of relief we can get. At least on this site, we can all empathize with each other. I wouldn't wish chronic pain on anyone. I relish the good days I have and prepare for the next bad one. I have resigned myself to the fact that the bad ones will be there. Hopefully your good days far out-score the bad ones. Keep the faith and keep us posted. You can't win a million dollars here, but we can be your fourth lifeline
. Take care and God Bless.
Rassy
Rassy's Story
Under House Arrest Without the Ankle Bracelet
The remarks I make are strictly my own based on my personal experiences.
Hi Dave,
so glad that you are doing better! The pain roller coaster gets old... but it sure does make you grateful for the good days!!!!
thank you for sharing your recovery with us. My surgery is now in less than 3 days, and although I've had four cervical fusions before, this one will be much more extensive and through the posterior approach-I'm reading everything I can to prepare myself.
Take care,
Heather
Hi Heather
,
Reading Dave's post and see that you are going in for another round with the surgeon soon. Just want to send my prayers and best wishes for safe and speedy recovery. As soon as you feel up to it, let us know how you are doing. Here's a
to let you know that I'll be thinking of you. God Bless.
Rassy
Rassy's Story
Under House Arrest Without the Ankle Bracelet
The remarks I make are strictly my own based on my personal experiences.
Hi all. Reading some of your post I thought I would give you all a update on mine ( C3-C7 dec 1,2011) I am doing pretty good, alot of stiffness, swallowing still a little sore, but for the most part my pain that I was having is gone. Like KarenD said,it takes time and as you are healing the pain comes and goes. We just have to be patient... I know its hard. I also had a bone spur that had dug into my spinal cord, but as of now I do not feel as I will have any permanent damage. I am glad that I decided not to put it off any longer, as the bone spur was pretty deep and could of caused paryalisis or worse, even my NS was surprised how lg and deep it was. Listen to your body is my best advice, and talk to your dr. about all you are feeling. I know it is scary but don't but yourself at a higher risk of permanent damage. I am glad my son.. a PTA said "mom you can not continue to put this off". My NS says things look good, so I am just taking it day by day... One section of the spine at a time. Good Luck and Prayers to all.
Trusting In God
4 Level (C3-C7) ACDF surgery Dec 1, 2011. High Grade 2 Spondylolisthesis- of L5 on S1 with bi-pars defect.,Severe disc height loss, bi-foram-narrowing & flattening of both L5 nerve roots, both S1 nerve are also encroached, Bulging discs at L1-2, L2-3, L3-4, L4-5 At T11-12 a 5mm ds protrusion w/mildly deform ventral cord. Along with DDD thru out whole spine.
Hey Mom T
!
Sounds like you are coming along. Glad to hear it. I think sometimes we just want it to be all gone NOW. Our bodies just won't let that happen. As you said one day at a time. I keep trying to convince myself of that, too. For me right now, no surgeries. Just the Pain Game, but with this website and nice people like you to listen and talk to, it's a lot easier. Please take it easy. My doc says just because you have a few good days don't jump up and sign up for the Boston Marathon. Take care and keep us posted. God Bless.
Rassy
Rassy's Story
Under House Arrest Without the Ankle Bracelet
The remarks I make are strictly my own based on my personal experiences.
I fell at work on February 21,2010,I had damaged my Rotator cuff and had a bicep tear. Surgery was on September 15,2010. Starting two months later I was telling my doctor I did not feel right. Test went on and no decision was made. Finally I asked if one of my nerves was torn. new tests performed and found a C4,5 was not right. The Workers comp insurance company told my lawyer that I would need to find a doctor that takes the I.E.B. rate... Cheapest rate. In Massachusetts it's $100.00. No Doctor in Ma. takes such a rate. I called just about every surgeon to find such a doctor just to look at me. I sent a nasty letter to my lawyer explaining the aggravation. She informed the insurance companies lawyer and I had an appointment on February 6 2012. After all this time my damage to my neck now goes from the C3 to C7.
I plan to have it out with my lawyer this week. The Doctor plans to operate as soon as he gets the O.K. from the insurance company.
Thanks for the posts but what about all the failures after surgery? How long will it take for recovery? Thank You.
I had c3/c7 spinal fusion 3.5 years ago and "Pain Worse" has been the case ever since my surgery. Truth is, it feels like there is a huge titanium pipe or bar lodged in my neck. Feels like a HUGE tooth ache with random sharp pains. Watching TV, reading, typing anytime I hold my neck in a position for 5 or greater minutes it hurts like the dickens. I stretch, walk, take 4 Perc 10's and 4 soma's daily (I dont like pain meds but they ease the pain a little) I think I feel best when I am walking, warmed up, loose, etc. I battle every day but know something will help someday. I am considering trigger point shots, I hope to share / find solutions so today I joined this website / forum. Everyone stay strong and hopeful and in prayer.
Blessings,
BruceFL
Thanks Bruce for chiming in its great and rare to hear from anyone with the extensive work we've had done.
I am healing quite well but do had continued pain daily. I've been back to work for a couple of months and with my travel schedule it gets a bit uncomfortable at times, but it is bearable and getting better. No need for pain meds.
I hope things get better for you going forward but after this much time who knows right? I think we may be left with the results we've got.
Take care and this is a good place for support.
DOI 2007, DDD C3-4 w/spinal canal narrowing and cord compression as well as severe foraminal stenosis especially on right side, severe forminal stenosis at C5-6, significant cord compression C6-7 right side with obliteration of the thecal space and deformation of spinal cord at that level. Cervical spondylosis with cervical spondylitic radiculopathy.
Previous treatments right side C6-7 foraminotomy 4/09, 6 nerve root injections and 3 level discogram 10/9.
C3-C7 anterior cervical decompression and fusion followed by posterior spinal fusion with instrumentation. 12/19/11