Just wanted to post this and introduce myself, and my spinal arachnoid cyst. My name is Tina and I named my cyst, Charlotte, after Charlotte, in Charlotte's Web, hence my user name. Charlotte and I are new members to Spine Health and loving it!
Charlotte accrued after an auto accident, hit from the rear, June 13, 2008. This was 2 weeks after a second right shoulder surgery, 4 screws to anchor my shoulder, and the first day I was allowed to drive. My upper body was compromised and weak from surgery, and although I didn't know it at the time, the impact caused a tear to my spinal cord. I noticed my legs were very weak, but assumed this was the stress of the accident. Boy was I wrong! As time went on, I would wake up with my knees numb, how strange, but thought I was sleeping with my legs drawn too tight, and really didn't give it much thought. However, as it continued and my legs grew weaker, I decided it was time to tell the doc. I was sent immediately for an MRI of the cervical. Afterwards, I was told to wait, the radiologist was calling my Dr. I was then scheduled for an CT Milligram, which clearly showed an arachnoid cyst in the T3 - T4 spine. I have had follow-up MRI's every 6 months since. No surgery has been preformed to date, however, Charlotte showed changes last November, and now occupies T3 - T6, explaining why the symptoms had worsened even more. Surgery was discussed at that time, but offered only 50/50 odds of stopping future damage, and no chance of improving the damage done. Since then, I've been on a steady decline, the pain is much worse, and I can barely stand on my own. My balance was so bad and because I was falling more frequently, I was prescribed a walker and cane. I'm schedule with my NS September 1 to revisit the need for surgery, however it may not be an option considering my weight. 5' 10", 103 lbs... skin and bones scary!
I've been on an endless search for 3 years to find any information about my injury or another person with the same injury and thought I was the only one. But, my last search landed me here, to a member recently diagnosed with the same cyst. She has not posted since I joined, and may be away due to surgery, but I'm hopefully she is doing well and will return.
I was shocked this morning to find a post to my introduction from a new member that was on the same endless search I had been on. She too has an Arachnoid Cyst and thought she was the only one! I was so happy she found me and my post had given her hope!
With that said, my main objective with this post, is to let others suffering with a Spinal Arachnoid Cyst know, you are NOT alone!!! I felt like a specifically titled post may make the next searchers task a little quicker and easier! So if you have found this post in a search, I can assure you this, you have opened a new door as I have. You will find more care, help and support within the Members of this forum than you every imagined!
To the SH Vets, please feel free to add or reply to this post regardless of your condition, as I'm sure I left out a lot of information where Spine-Health can be helpful to a new member.
Lastly, many thanks to my new friend, Truck Tire, Brenda... if you see this, I got the idea from your post in the new members forum regarding titles! That's one smart truck tire you have on your head!
Best wishes to all!