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User offline. Last seen 8 weeks 1 day ago. Offline
Joined: 07/05/2009
Posts: 33
Points: 66
IS RECOVERY EVEN POSSIBLE??????

Hi everyone,
I'm relatively new to the site and stiil having trouble navigating around it, but honestly, unless I'm just missing something, I"m not finding stories of recovery which is what I was hoping for. I feel like I'm hearing horror stories of people in varying stages of 'awful' and I"m really wondering, is recovery from back surgery and in my case, nerve damage, really possible? Or is that people leave the site once they get better and therefore we don't hear stories of recovery? I really need hope and something positive to hang to but gosh, this is all sounding so depressing. Does anyone have any stories of recovery? Or do you know someone who recovered? Thanks!

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April 2009: Microdiscectomy at l4 for disc herniation & severe radiculopathy ( Microspine)(no benefit)
Laminoforaminoplasty at L4 Aug. 2009 to further free up nerve;
Oct 5, 09 - emg shows severe nerve damage of L4 nerve which will take a year or more to heal.
Dec. 17th 2009 - same surgery as on L4 on L5/S1 to free up that nerve (causing motor problems of foot) Lots of bone removal, also including facet debridement.
Panic disorder , mitral valve prolapse and dysautonomia for over 40 years. (most of the time under control)

charry's picture
User offline. Last seen 1 week 1 day ago. Offline
Joined: 09/05/2008
Posts: 5601
Points: 11602
Hi Cbergens and Welcome

I just read one successful story here http://www.spine-health.com/forum/back-surgery-and-neck-surgery/feeling-... This is a place where people come to get info and surgery must have lists and even for those of us myself included who haven't had surgery and just to get support. You're right there are many who've had surgery and they're off enjoying their life. I know it takes a long time for nerves to heal like your Surgeon said I hope you have a complete recovery. Charry

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Any answers I have is not medical advice only a Doctor can help you with that. Just sharing my personal experience as a fellow Spine Health member only. Mild DDD of complete lumbar area with recent healing of L5-S1 HD and annular tear.Leg &foot weakness nerve compression L4-L5.Mod. disc changes C5-C7 nerve impingement sore elbow and numb hand. Sept. 2011 MRI L4-L5 disc bulge and L5 facet joint and narrowing. Meds-Oxycontin 80mg,Cymbalta,Lyrica, Flexeril,Naproxen,Serax. Platinum Infrared heating pad. ER and Oncology trained and Cardiology RN on Disability. Keep the faith.

User offline. Last seen 8 weeks 1 day ago. Offline
Joined: 07/05/2009
Posts: 33
Points: 66
Charry

Thank you so much for your lovely and quick reply. I'm going to refer to this when I feel so down and hopeless.

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April 2009: Microdiscectomy at l4 for disc herniation & severe radiculopathy ( Microspine)(no benefit)
Laminoforaminoplasty at L4 Aug. 2009 to further free up nerve;
Oct 5, 09 - emg shows severe nerve damage of L4 nerve which will take a year or more to heal.
Dec. 17th 2009 - same surgery as on L4 on L5/S1 to free up that nerve (causing motor problems of foot) Lots of bone removal, also including facet debridement.
Panic disorder , mitral valve prolapse and dysautonomia for over 40 years. (most of the time under control)

dilauro's picture
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Hi cbegens

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___________________________________________________________________________

One of the reasons you dont see that many of the good stories is the way the member community runs here. Normally people register for this site when they begin to experience Spinal Problems and want some more information. There is a large percentage of members that once they have gotten past their problem, be it surgery or other methods, slowly fad away from this site. I am happy for those folks, because they are now back to where they wanted to be.
We also have a large percentage of people that are still going through all their problems, so this site is like a life line to them.
Then we have members who have for the most part gotten past their problems, but stay here to help other members.

You will find a couple of sections that describe the
good success stories. Unfortunately, many times those posts are scattered around, so it makes it more difficult to find.

I look at myself as one who has overcome most of the problems. I've been dealing with chronic pain for over 35 years now, I havent had a surgery since 2000 and I do not see one in the future. But I still am in pain, I still get flare ups.. But I consider myself as one of the patients with a good success story.

Here is one thread that you might want to look at
http://www.spine-health.com/forum/good-news/many-successful-surgical-pat...

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Ron DiLauro
Ron's Story
Suicide Hotline
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_________________________________________
rdilauro@gmail.com
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"In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me."
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The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules

User offline. Last seen 22 hours 33 min ago. Offline
Joined: 05/01/2009
Posts: 588
Points: 1178
Good days and bad days

I consider my last surgery a success. Yes I have flare-ups, that can be pretty bad but I also have good days. As of today I am on my fourth day of zero pain.How long the pain free days will last who knows? I could be flat on my "you know what" tomorrow. But its the pain free days that keep me going. I am in the recovery phase of a 3 level fusion (my 6th surgery) on my neck with corpectomy. So yes there are success stories, I am alive and I am lucky the damage was not worse. With the help of a good pain management doc and a little luck I will continue to improve. Stay positive there are people who get better. I am one of the ones that has been spending less time on spine health. I am back to work and enjoying life again. But then again I may be posting tomorrow complaining about the worse flare-up ever. Take one day at a time is my new motto.
Susan

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5 cervical surgeries in 10 years and 2 lumbar

User offline. Last seen 8 weeks 1 day ago. Offline
Joined: 07/05/2009
Posts: 33
Points: 66
Thank you for the new perspective..................

Thank you all for giving new another perspective. I'm such a high anxiety person (I have panic disorder also but it is controlled most of the time) and my mind can think the most AWFUL things and completely lose perspective. That's why I need this site, to help keep my 'stinkin thinkin' in check.

cBergens

_____________

April 2009: Microdiscectomy at l4 for disc herniation & severe radiculopathy ( Microspine)(no benefit)
Laminoforaminoplasty at L4 Aug. 2009 to further free up nerve;
Oct 5, 09 - emg shows severe nerve damage of L4 nerve which will take a year or more to heal.
Dec. 17th 2009 - same surgery as on L4 on L5/S1 to free up that nerve (causing motor problems of foot) Lots of bone removal, also including facet debridement.
Panic disorder , mitral valve prolapse and dysautonomia for over 40 years. (most of the time under control)

User offline. Last seen 5 days 15 hours ago. Offline
Joined: 07/12/2008
Posts: 181
Points: 362
My lumbar fusion was 10

My lumbar fusion was 10 years ago with great success a L4and 5.I was ba ck rollerblading ,golfing,biking etc.The back and leg pain was gone after surgery.
Yes you do have flares on occasion but its usually your body telling you it doesn't like what your doing and of course you can always blame the weather.
I was determined that they were going to fix my problem and i wasn't going to look back. I'm happy I did it and it was a great success. GOOD LUCK

kinpain's picture
User offline. Last seen 2 weeks 1 day ago. Offline
Joined: 06/20/2008
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Points: 1574
Like Ron pointed out, most

Like Ron pointed out, most people move on after they have recovered. Some of us stay on a bit longer, especially to reassure someone who is as worried as you are. Currently there is a thread under "Back and neck surgery" trying to get answers to the question "are you better off or worse after your surgery?" It is not a scientific surgery, because the majority who stay on this site are still having some problems, but even keeping this is mind, a lot of the responses are very positive. Personally I had a very successful 3-level spinal fusion almost 1 1/2 years ago, I have many problems related to my arthritis, but my back is holding out beautifully.

Wishing you well,

Kin

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SF Peninsula CA resident
Decompression and L3-S1 fusion with instrumentation, 5/1/08

User offline. Last seen 1 year 38 weeks ago. Offline
Banned after receiveing more than 4 formal warnings
Joined: 12/30/2008
Posts: 3099
Points: 6230
Hi--

I've said this to you before, but it bears repeating. You are too impatient with this whole recovery process! Believe it or not, your body is still in healing mode. It is not at all uncommon to have some residual pain for a year or even up to two years after surgery.

Nerves are VERY sensitive. Sometimes one can just get bumped during surgery and this can result in nerve pain that can last for months. Sometimes the doctor cannot even see any reason why there is nerve pain after surgery. It is very frustrating, but it does happen.

Sometimes it just takes awhile to find the "right" doctor or the right treatment. Belonging to this Spiney Club does require a great deal of grit and determination and PATIENCE.

Take good care,
Gwennie

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I have no medical training. Comments are based on personal experience and lots of research and reading.
PLIF @ L4-5 with Peek cage, rods and screws Jan 2008
Lami-foraminotomy L5-S1 Jan 2009
Fusion L3-S1 coming up -- 1 June

JanisD (not verified)
I feel I'm a success story &

I feel I'm a success story & yes, I left the site after a few month of my surgery. I felt I was doing so well etc. etc.
I just came back today to say I'm released from my doctor's care now & don't have to go back unless something "happens". Todday was my 9 month post op appt.

I'm roughly 90% fused & a lot of times forget I even had surgery, other than I don't have the back pain anymore. I'm 9 months post op & doing great!! I hope others have as much success as I have.

Now if I could get my knee & hip to cooperate I'd be perfect. {arthritis, bone spurs & fibro}.
Good luck.

janisD

JanisD (not verified)
I should mention that my

I should mention that my doctor told me after surgery that he could only fix my spine to about 50%. I think he totally underestimated himself as I feel fine. The nurse practitioner agrees that he did much better on my spine than 50%.

This is a very good surgeon too, so saying that, these guys can't work miricles but they can help. My doc. sure helped me.

Again, Good Luck.

janisD

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