Numbness after surgery

Numbness after surgery

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Nomad
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Joined: 04/11/2009 - 11:27am
Numbness after surgery

Greetings,
I'm 2 months out from a 3 level lumbar decompression fusion.
I had my first back surgery 17 years ago, root nerve decompression of the L4-5, when I was 25 years old. I had my second surgery at the end of Jan. of this year. Third surgery a week after that; unfortunately, I encountered complication which made my scheduled 4 day stay in the hospital to a 3 week hell.

After surgery I noticed that my left butt cheek,the back of my left leg to my knee, anus and my penis was numb. Doc said it could be swelling from the surgery. Second surgery to fix complications from first one did not show any nerve problems with first surgery.

So now it's been 2 months and still no change in the numbness. Except now have weakness in my left foot and both my left foot and leg fall asleep/pins and needle sensation all the time, especially when I sit.

So, has anyone experience this and did it ever go away. I'm experiencing some problems with my bladder and bowels as well. When I was in the hospital I could not void myself with out being catheterized. I can pee myself now but my bladder does not empty so I have to go all the time.

Any comments would be appreciated.

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kinpain
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Joined: 06/20/2008 - 1:46pm
Welcome to Spine health,

Welcome to Spine health, Nomad! What you are experiencing is very different from what I had, but that is normal, as all of us are different. I had some numbness after surgery, but only when I am standing, it is on the front of my right thigh, that before my fusion used to feel terrible shooting sciatica like pain. So to me that was an improvement over the pain. It got better with time, and now, almost a year after the surgery it is almost gone. I suppose, the nerves were regenerating. If tyhe numbness troubles you, don't hesitate to call your doctor and ask. That he what he is there for.

Good luck,

Kin

saltzworks
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Joined: 07/05/2008 - 10:32pm
Have you considered a second

Have you considered a second opinion? Of course, it is soon and a second dr. will not know what everything looks like inside...

I also have had post-op numbness. I did not have numbness before my surgery. It was a complication. I had to get opened back up just 2 days after the original fusion. My stay was only 9 days (instead of the few days that were planned). That was last July.

Now I still have the numbness, but I have kind of gotten used to it. It is still a wake-up call each morning when I walk barefoot on cold tile though. It's just so weird to feel only half of your foot.

I started to have charly-horse cramps last fall in the numb leg. I started PT then for atrophy. If the nerves are damaged and are not 'talking' to the muscles I was told that atrophy will happen. What frustrates me is that no amount of PT or stretching seem to make a difference in the numbness or the charly-horse cramps.

I am stronger from the PT, but I don't stretch any better, it's never easier to stretch and the cramps almost seem to be getting worse. They certainly have spread (used to just be the bottom of my foot and the hamstring - now they include the calf too.)

So, in my case - no improvement yet. I still have hope that within a year or two - MAYBE - there will be a change. But I'm not holding my breath and I think I'll be mightily surprised if I do ever regain feeling.

Sorry for such a book - but it's NOT fun, it's daunting to think this could be forever. I AM thankful that the surgery helped the sciatic pain, but I don't know that I'll ever say "I'll take numbness over pain" like I used to.

I can't imagine having the areas of numb like you have though - that's got to be the worst - and it does sound like you had major complications. It sucks that that is a price we pay when we get forced (by pain, circumstances or whatever) into surgery.

saltzworks
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p.s. Pins and needles

p.s.

Pins and needles actually sound like you are improving, it really could have been swelling, particularly since you had 2 surgeries - the pins and needles could mean that there is some feeling there - I would take it as good news. But, I'm not a dr.

gwennie17
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Joined: 12/30/2008 - 12:07am
Hello nomad ~

Welcome to the board, and I am sorry for the reason you found us.

Have you talked to your surgeon about the possibility of CES (Cauda Equina Syndrome)? Any time there is bladder or bowel issues, there is a danger of permanent nerve damage and you want to discuss this possibility with your doctor. This is not something to ignore and just leave the outcome to chance.

Following is a link to a website that has a good definition of the syndrome:

http://www.caudaequina.org/definition.html

Nomad
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Joined: 04/11/2009 - 11:27am
Thank you

Hi,

Thank you for your response everyone.

The numbness was a complication of surgery. I never had it in the region I mention before, so it's all new to me. As I said before, the regions that are numb have not improved one bit since surgery. The best way for me to describe the sensation I have in my buttocks and groin region at its worst is if I was sitting in a tub of ice cold water. It is very unnerving and next to impossible to focus on any tasks on hand.

I see my surgeon in a week, I'll see what he says about the numbness. I may have to seek out a second opinion but surgeons who do backs are few and far between where I live. Plus, a lot of them know each other so your really don't want to be steeping on anyone's toes!

@gwennie17: Thank you for the link to CES. It sounds like I may have some degree of it because its description is right on the money!

The symptoms I'm experiencing in my left foot and leg(weakness/pins and needles) now are the same symptoms I had 17 years ago before my first back surgery. That was caused by a herniated L4-5 disc. My foot and leg almost get to the point where I feel I need to force myself to lift them to take a step.

I did suffer from sciatica before surgery in my left leg when I had flare ups but since I have not really done any type of activities for a long time (before second surgery), I did not want to miss work because of the pain and discomfort most activities caused grieve to my back; so I basically have not enjoyed life for the past 5 years. I'm just hoping this will all pass and I will be somewhat better than before.

One more thing, do we all suffer from from sleep issues? And I'm wondering if anyone has found a way to get a good night sleep. I'm really tired, no pun intended, of only getting about 3 straight hours of sleep a night! I've been suffering from this for about 16 months!

Thanks again for all your input!

Wrambler
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Joined: 01/21/2009 - 9:28pm
Sleep

very few of us sleep well, or comfortably.
I alternate between no sleep aids for 2-3 days until I am so sleepy in the am I can't stay awake. Then I take 10 mg of Ambien early so it has time to wear off by 7 am when I get up for work. That night I somewhat sleep OK. I will also use Benedryl on some nights.

Any one trick will only cause other issues. I have found nothing I can use regularly, so I alternate things around and stop taking them when I get frustrated. Usually get one night without aids. It is spent tossing and turning, trying to get the hurting parts in the right place. never for very long though!

julie
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Joined: 06/23/2008 - 7:44pm
Your story is so familiar

I am sorry you too are having such a rough time with no answers. Your story is so similar to mine. I woke up with the numbness after my first surgery and I too was told it was surgery swelling. Well, over two years later I am still dealing with a bladder, bowel and stomach that have no sensation. I am a bit over a year since my last surgery. My foot also became numb and painful and I ended up with drop foot and having the feeling of really thinking to lift my foot to work.
It sounds like a little progress is happening with your bladder, but unfortunately when a nerve has been messed with it responds however it pleases. And regeneration takes a long, long time. I am told I need to keep being patient cause only time will tell them if anything will come back. That is the hardest thing to hear, but sometimes doing nothing is the only thing left to do to give it a chance to heal.
I have a hard time staying asleep. I often wondered if it was pain that woke me up.
I hope you start healing and begin to see some more progress.
julie

Nomad
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Joined: 04/11/2009 - 11:27am
Work

Thanks again for your input!

Here's a question: Is everyone working? Or on some type of disability?

I'm off on Workers Comp. because this was an issue from a work injury 17 years ago that progressively got worse. I'm not sure what's going to happen in the near future but I know that it is impossible for me to do my job again with the issues I'm having right now! What kind of help is there for us to supplement our income if we need it?

My current employer is refusing me short term disability and say I can go on Unemployment Insurance. There is a difference of 30% in pay and they also are not returning any of my emails concerning this matter. To claim UI, I need my record of employment which they seem to not want to give up! Sorry for ranting...

Best wishes...

kebec98 (not verified)
Title: Member
Numbness after surgery

I had a lumbar laminectomy fusion in Sept 08. I too have numbness I didn't have prior to my surgery. What I did have a unbearable pain that I could no longer tolerate. I finally realized that I still had many good years left and decided to have the surgery. My numbness was right after surgery in my left leg. As I healed I regained most of the sensation in my leg but to this day the front is still numb. I am very confident that I will to some degree feel again in my entire leg, but if that isn't the case, I am far better after having the surgery. From reading the posts everyone is different and healing is also different. I couldn't wait to get back to work and work everyday to overcome a phantom ache or pain. I would give my body time to heal and if you are not satisfied, get another opinion. You shouldn't have to be in pain.

Nomad
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Joined: 04/11/2009 - 11:27am
Update

Hi,

It has been 8 months since surgery and guess what; the numbness has not improved at all. Actually, I think I have more pain and discomfort than before…

I saw my surgeon last week and his prognosis is that I have plateaued in my recovery and it’s most likely that I’m stuck like this for the rest of my life. I have fallen into the 10% of people who come out of surgery worse off than before surgery. I knew I had a 60% chance of success going in!

So, what’s next?

I still have low back pain with the numbness in all the same parts as I mentioned before. The pain increases if I sit too long or stand and a burning sensation starts in my toes. There’s weakness in my left leg and foot. I have pain from my left buttocks to my toes all the time, especially in my butt. The more I do, the more the pain increases. I do too much, the pain starts to radiate in to my right side. I’m consumed with pain. I probably have had less than 45 hours of sleep in the last 2 weeks.

I have tried a plethora of medication for the pain. Currently I’m on Hydromorphone HCL, just started yesterday, and Morphine. Morphine seems to be the only medication that takes the edge off and I mean, JUST takes it off!
I was just wondering if anyone is in a similar situation because I can’t return to work and I can hardly do anything around the house.

I have zero quality of life at the moment!!!

Thanks,

N

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