I have an L5 S1 spondylolysis..Is it true you feel worse afterwards and better off not getting it.. I need advise Im in such pain all day, Doctors say if you dont get it,it gets worse.. I feel like crap as it is do I go for it??
Geri
I need spinal fusion I have a fractured disc L5 S1.. Dont know if this will work for me,im hearing alot of horror stories..Is this true?
fusion .i live in the uk and had the operation done by one of the uks best .the operation is major ..never forget that .and depending on your health NOW and how many pain killers you are taking and how many years you have been in pain and what you limitations and expectation post op are .as you can see its a complex subject and we haven't even got to the operation yet
i myself have been in pain 15 years and the last 5 have been worse following a redo of my last operation [L4/L5 laminectomy and an d S1 DISCECTOMY} .this operation left me in pain and unable to do many things .so after many years wondering if a fusion would help i sort of when for it with many reservations .
on waking from the major operation i felt like my lower body was on fire and i screamed and i mean screamed .the reason for this is as i take many pain killers and have done for 5 years i have built a massive tolerance to pain killers .we are talking around 500mg of oxycontin .thats 500mg not 50mg ! .so when i woke they needed to keep me in medical recovery under constant surveillance i had my own anesthetist and my own pain nurse specialist and a medical technician ..now that a lot of medical people just for one person .they gave me 4mg of morphine every 5 mins ..no good {most are ok on 1/2 mg per 5 mins} i was still in agony ..so in when another PCA and this time diamorphine when it too .and still
i was in pain so every 2 hours the anaesthetist came and gave me katamine .its the most given to one person in 40 years following this king of surgey .to star with i was frail following 5 years lack of sleep and constant pain .i am now at home but my life has changed beyond my expectation.i shower and i am finished due to being so tired and worn out .i carnt even pick my clothing up of the floor due to restricted movement and pain .sleeping is also hard work as sleeping on my right hand side hurts but i have just managed to sleep there and i now get 2/4 hours sleep but wake in agony with my legs on fire.i am unable to do the things that you would take for granted like cleaning yourself after going to the toilet .{when in hospital my wife had to clean me ...not very nice for both of us] but in sickness and health !.a fusion is massive so thing not just about the operation but think what will i be like following surgey what will i be able to do .can i dress myself ? will i be able to tolerate clothing on my lower body {nerve pain ] and do i have someone to help me like cooking and cleaning ?? there are many REAL things that arnt on the paper work you get from the hospital .like the ..after 3 weeks you should be walking 2 miles !! please i carnt walk 2o metres and yu should be able to do this and that .my private physio said bit it and dont let it worry you my consultant told me that my recovery will be around 2/3 years .yes years .so on the worse side be prepared for a possible long recovery and even if it goes text book your body will have been to hell and back .i am male and 45 just as a reference.good luck and think about what you may be doing its a last resort
tony {UK}
1/laminectomy L4/5 result fair
2/redo of original op and discectomy result failed
.
3/ALIF done 29 dec 2011 .at 4 months most of the surgical pain has gone but the right hand side lower back ache {the problems i have had for many years is as bad as ever } i feel like i will never get better my mobility is a lot worse too ...
Hi Tony and all
Tony I have just read your post and just wondered really if you could offer some advice as we too are in the U.K. It is my husband who has problems with his spine ( which by the way seem to be deteriorating quickly). After 18 months of visiting doctors in our home town Bedford we paid privately for consultations in London which resulted in a l4/l5 decompression diseconomy in April last year. Following this we were advised that the severe left leg pain/numbness/shooting-stabbing pains would/should hopefully have gone due to the nerve being released.
This was not the case and following two more MRI scans the doctor said that the next and really only alternative would be a 360 fusion. ( In the doctors defence he did suggest that a fusion may be the only thing that would help in Dec 2010, however wanted to try injections/decompression first). Now, here's where the problems start, our doctor left working for the NHS in Nov 2011, (to continue only in the private sector) and assured us that my husband was on the list for a fusion operation as urgent.
During this time my husband has got worse and is on Oxycontin, Oxynorm, Pregablin and Ramipril (blood press tabs, as because of pain GP thinks that why blood press so high). His leg has got a lot worse and aswell as all the pain described above he for the last few months continually has spasms in his leg. After hearing nothing since Nov last year we were contacted by hospital for op in 7th Feb,(360 fusion we were told) however on meeting the surgeon ( a different one) (and after completing a sucessful pre op assessment) he couldn't understand why a fusion was ever suggested and that basically he thinks it could be permanent nerve damage and he can't offer anything,,
Meanwhile we contacted another hosp in London who would like to offer more injections and talk from there re: either operation or.... Not sure what..
My questions are these, Do you think a very good neurosurgeon would insist on a 360 fusion op if it really wasn't necessary? Do you, as we feel totally confused and helpless in any of what is going on, and can you suggest anything that we should be doing that we are not? Or just anything to make us feel that we are not going insane!!
I'm sorry if I have gone on, but watching my husband get worse everyday and suffer is making me feel I should be doing more to get things moving.
Giovanni 34
Bad backache for few years
Little slip and fall Jan 2009 - when severe pain began
Loads of injections, nerve block, Epidurals, facet joint, nerve roots
MRI's show multilevel problems, l4 l5 prolapse, and Arthritis
Decompression l4l5 diseconomy april 2011- no change
I had mine fused back in Nov of 2010. I trully was excited and did not want to hear everyone who had back surgery were still in pain if not worse. But I am still taking pain medication and am in severe pain. Seek 2nd and third opinions. The surgeon was excellent but if so, why am I in pain and having to go back for steriod injections?
They think a screw is loose. Well if not in my back it sure is in my thoughts. I can't even gather my thoughts to send this message.
The doctor gave me a release to go back to work which is what I wanted, but he couldn't understand why I wanted therapy. Hello! When I asked about medication he referred me back to my pain management doctor. He wiped his hands and I never heard back from him.
My pain doctor had mentioned bones fuse on there own if I could hang in there but I couldn't. Now my hubby finally went to see a doctor for his back and his has fused.
I will be praying for God to guide you both in the right direction.
Hang in there.
Anterior interbody fusions with anterior and posterior hardware at L4-L5 and L5-S1
360 fusion Nov. 29, 2010...3-2012 L4 L5 not fused
Myelogram Ct-March 9, 2012
Father God please help all the doctors we see diagnose properly and have the desire to help each one us restore our health, in Jesus name I pray