Hi All
I was wondering if anyone has had any feedback/input on lysis of adhesions for lumbar adhesive arachnoiditis? Good or back - also any input on spinal neuro-stimulators for this diagnosis???
I have to say this about having the adhesions microscopically scraped from the nerveroots or to whatever else they are stuck to.... not a surgery I would do again. No one told me that even if they cleared them out that they would come back again, and in my case worse as it was from yet another surgery. I think it is necessary once the Adhesions have gotten so out of control that they are making a friggin mess of your spine... then I think it is justifiable to do and buys you some much needed time before it starts up again due to new adhesions.
On a personal note, after I had this surgery done, to clear the adhesions, they left me with permanent nerve damage as they "scraped" the adhesions away from affected nerveroots. I have foot drop, but it has gotten some better over the years, constant leg pain (controlled by the SCS), and severe weakness on the right side of me.... my right leg.
I'm not saying this to be frightening but I wish someone would have given ME the unfiltered no BS version, you know? And also keep in mind that this is just my own personal experience here that I am speaking of so I only have that perspective.... but it's the one thing I am an expert on... what I have been thru personally.
I hope this helps. And as I said in your other thread please PM me anytime or I can give you my email addy if you want to talk more about this subject. I hurt my back at the age of 21 and have been dealing with it ever since. I know what it's like to look down the long road of life ahead of us and say "WTF and I gonna do now"???
I also had lysis of the adhesions done with my second surgery a year ago now. At least it was done to the nerve roots that he could get to and weren't already destroyed.
I am not sure if I would do it again. I hoped that it would help but as Bongo said, they do come back again, and they seem to be more dense each time. and it also creates even more scar tissue because of having to go back into the area.
The outcomes aren't great for this procedure from what I have been able to discern, and I sure haven't had any relief from it either.
Having arachnoiditis means that we are going to be dealing with it in and out of the spinal canal, and truthfully, I am beginning to wonder if it isn't smarter long term to leave well enough alone.....
Just my two cents on it....
Sandi
also a fellow arach suffer
_____________
I am not a physician nor a medical professional. All opinions expressed by me are of my own making and thus should be considered with that in mind.
CES and more....
ML,
I have to say this about having the adhesions microscopically scraped from the nerveroots or to whatever else they are stuck to.... not a surgery I would do again. No one told me that even if they cleared them out that they would come back again, and in my case worse as it was from yet another surgery. I think it is necessary once the Adhesions have gotten so out of control that they are making a friggin mess of your spine... then I think it is justifiable to do and buys you some much needed time before it starts up again due to new adhesions.
On a personal note, after I had this surgery done, to clear the adhesions, they left me with permanent nerve damage as they "scraped" the adhesions away from affected nerveroots. I have foot drop, but it has gotten some better over the years, constant leg pain (controlled by the SCS), and severe weakness on the right side of me.... my right leg.
I'm not saying this to be frightening but I wish someone would have given ME the unfiltered no BS version, you know? And also keep in mind that this is just my own personal experience here that I am speaking of so I only have that perspective.... but it's the one thing I am an expert on... what I have been thru personally.
I hope this helps. And as I said in your other thread please PM me anytime or I can give you my email addy if you want to talk more about this subject. I hurt my back at the age of 21 and have been dealing with it ever since. I know what it's like to look down the long road of life ahead of us and say "WTF and I gonna do now"???
Peace and hugs,
Amy
I also had lysis of the adhesions done with my second surgery a year ago now. At least it was done to the nerve roots that he could get to and weren't already destroyed.

I hoped that it would help but as Bongo said, they do come back again, and they seem to be more dense each time.
and it also creates even more scar tissue because of having to go back into the area.
I am not sure if I would do it again.
The outcomes aren't great for this procedure from what I have been able to discern, and I sure haven't had any relief from it either.
Having arachnoiditis means that we are going to be dealing with it in and out of the spinal canal, and truthfully, I am beginning to wonder if it isn't smarter long term to leave well enough alone.....
Just my two cents on it....
Sandi
also a fellow arach suffer
I am not a physician nor a medical professional. All opinions expressed by me are of my own making and thus should be considered with that in mind.
CES and more....
The thought of removing something that is causing one so much pain sounds wonderful. But in this case it's best to leave well enough alone.
Removing scar tissue causes more to form and you will be worse off than you were.
Best of luck to you.
Cheers
Patsy W
I am not a Doctor but I do watch House and Doc Martin on TV.
Never give up HOPE..June 18,2010 I had a pain pump implant....I now free of pain.
My thoughts and opinions are just that, my thoughts and my opinions, based on my experiances.