SCS SURGERY

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cinhoo
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Last seen: 2 years 3 months ago
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Joined: 06/24/2008 - 8:39pm
SCS SURGERY

HELLO EVERYONE, I HOPE YOU HAVE A PAINLESS DAY, I THINK
I WILL BE GETTING MY SURGERY DATE FOR MY SCS ON MONDAY.
I WAS WONDERING ARE THERE THINGS I SHOULD GET TO HELP IN
MY RECOVERY. I DID BUY A GRAPPER, THOUGHT IT MIGHT HELP
ANY SUGGESTIONS WOULD BE APPRECIATED. THANKS IN ADVANCE.
CINDI.
P.S. I WILL LET YOU KNOW WHEN MY SURGERY IS. Wave

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daleinmi (not verified)
Title: Member
not too much in recovery time

sorry, but the first day is quite painful, but after that they will wait a week or so to turn it on and get it programmed, but i was out of the hospital the same day as the surgery, and i was able to walk a little, but just sleep mostly the first day and hopefully it will work great for you, you will be limited in movement for a few days or so (but if your getting this you are probably already limited in movement) when you first wake up you will feel that there is something in you body thats not supposed to be there but don't be afraid it's not all that bad compared to what you've already been through to this point and if it gives you the relief it is supposed too it will be well worth the discomfort. GOOD LUCK, AND WE ARE ALL PRAYING FOR YOU...................
DALE

Oriah (not verified)
Title: Member
Very cool, Is your SCS

Very cool,

Is your SCS cervical or lumbar?

Mine is lumbar but I had extra stuff going on so my recovery is a little longer. Grabber stick is a great tool. I pulled out my high potty chair just to make it easier. I put things in reach before surgery and had easy food sources available. No BLT or hands over the head. When you are allowed to shower and wash your hair take care. I have a hair dryer stand so I don't have to hold the dryer up.

NS didn't turn me on for 2 weeks, my surgery was more extensive though. When you get turned on will depend on your doctor and what kind of Leeds you will have.

Take your time to heal, let your Leeds and Generator settle in good. Remember not to play with your pocket. LOL

I'm so happy for you :)
O-

haglandc (not verified)
Title: Member
Cindy

That's fantastic news. The post op is quite different depending as Oriah said on the type and placement of the leads.

Mine was turned on and programmed after I was moved out of recovery. I walked off some of the anesthesia and rested the rest of the day. I was up and about walking increasing distances from that point. By day four my post op pain was just a minor annoyance and I was able to go visit museums and watch movies and go to restaurants as long as I rested or took a day off in between.

I felt so good by day 4 that I had to really start to focus on not violating the no BLT rules.

All I used for post op pain control was Tylenol and Celebrex.

You can do it!!!

"C"

trater
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Last seen: 4 years 7 months ago
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Joined: 06/24/2008 - 12:46am
SCS

I'm so excited for you to be getting the SCS trial! I personally did not get any extra things to help me out, but my husband was here a good deal of the time to help me out. The "easy food on hand" is a great idea, especially if you live alone or are the cook in the house. Be sure to be mindful of the cords that will be hanging out during your trial. They secure them very well with tape, usually, but my cords (wires) were still hanging loose and I somehow caught it on a door knob and didn't know it. Luckily, it didn't pull them out or move them. Also, after it is turned on, you may begin to feel better than you did before and may think you could do some light chores. My advice to you is to NOT do this and take it easy. Give the thing the best chance possible to give you a good result. The "pleasant, message-like tingling" they tell you that you will have, to me didn't feel like that. It was a strange new feeling that I didn't think I would be able to get used to, but trust me... YOU DO! It gets to a point that you get so used to it, you just don't really think about it. It's just there!
I'm not sure why some have had to wait a period of time before the scs was turned on, but mine was turned on immediately and the only time I turned it off was when I gave myself a sponge bath! Same thing with the permanent implant. Once it was in there and turned on (while in the surgical suite) I didn't turn it off! It's working well and I haven't had any trouble with it. Yeah for me!!

Good luck!!

kcroz
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Last seen: 1 year 8 months ago
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Joined: 06/21/2008 - 10:13am
Still waiting

Cindi,

I am still waiting for my surgery. BCBS has approved the surgery however the doctor has decided to refer me to someone else to do the implant because he wanted a 80 to 100% reduction in pain.

I know you have waited a long time for this day. Please keep us posted on your recovery.

Karen

trater
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Last seen: 4 years 7 months ago
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Joined: 06/24/2008 - 12:46am
Karen

While an 80-100% pain reduction would be great following this procedure, I think perhaps your doctor should feel pretty good about a 50-75% reduction even. Some pain relief is better than no pain relief and I feel like he's cheating you out of a chance at some pain relief! I don't have 80-100% relief, but I am so glad that I have my scs. It has allowed me to have a bit of a life again whereas before the implant, I was spending most of my time going back and forth between the couch and my bed. That is no life at all! I am now able to attend the football games to watch my daughter cheer, attend her volleyball games, and I have been able to rejoin my family on those very important family gatherings. I had come to a point where I couldn't even spend time with my extended family for holiday celebrations. I AM able to do this now! I am SO glad to have some of my life back.
Don't give up! Fight to have that pain relief so that you can get back to some life!

cinhoo
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Last seen: 2 years 3 months ago
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Joined: 06/24/2008 - 8:39pm
SURGERY DATE SET

I HAVE A SURGERY DATE, OCT 2, I CAN'T BELIEVE IT, DIDNT EXPECT IT THIS SOON, BUT I WILL TAKE IT. THANKYOU FOR ALL YOUR GOOD WISHES, I WILL KEEP YOU POSTED
CINDI Party <:P Party <:P Surprise :O Surprise :O Surprise Clown :O) Laughing :))( Laughing :))( Laughing :))( Laughing :))( Laughing :))(

kcroz
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Joined: 06/21/2008 - 10:13am
Is this cervical or lumbar?

I am so thankful you finally have a DATE! Never in my wildest dreams would I have imagined having insurance approval and no surgeon. I pray each day for the ANS rep to call and tell me I have an appointment with a surgeon. I know it has taken many months for you to get surgery scheduled. It is ridiculous!!!! I live in the Dallas area. I don't understand why this takes so long.

Please keep us posted.

Karen

Oriah (not verified)
Title: Member
SCS Surgery Dates

Cindi - CONGRADULATIONS!! <:P
I know you are ready and waiting. Is your SCS going to be a cervical or lumbar? What type of leeds? Medtronics or Boston Scientific? Keep your spirits up and take your recovery slow to start with so your implant settles in good. Did you ask your doctor if they are going to turn you on right away or do you have to wait a while?

kcroz - The waiting is the hardest part. I know you will get a good surgeon meant for you when the time comes. I am not famiiar with the ANS. I had a representative assigned to me at the trial stage by Boston Scientific. Do you have someone you are working directly with from ANS? I'll be sending you good vibes for a speedy answers.

A lot of us here have the SCS and all different experiences. Both of you keep posting and hopefully we can help you through the process with any questions you may have.
O-

cinhoo
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Last seen: 2 years 3 months ago
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Joined: 06/24/2008 - 8:39pm
O I'M HAVING A ANS INPLANT,

O
I'M HAVING A ANS INPLANT, WITH THE BIG PADS ON THE END OF
THE LEADS. ITS AT 1PM PACIFIC TIME, PLUS A MONTH OFF FROM
WORK.
KCROZ- THE ONLY THING I CAN TELL YOU IS TO KEEP ON THEM,
THATS WHAT I DID, DONT GIVE UP, IT WILL HAPPEN.
CINDI

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