NEVRO senza spinal cord stimulator - NO NEWS YET, but.....

NEVRO senza spinal cord stimulator - NO NEWS YET, but.....

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SueD
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NEVRO senza spinal cord stimulator - NO NEWS YET, but.....

I am waiting for the permanent implant to be fitted - probably at the end of January 2013. So I will post more information after it has happened.

The trial went pretty well. NO leg pain whatsoever (it was such a relief to not have sciatica for the 7 days of the trial - which in itself would have been beneficial). Also, back pain was reduced also - though not when constipated, as that sets off my back pain something chronic!!!! Sorry to be so gross, but I tell it, warts and all.

As for the sacro-iliac pain - unfortunately, it didn't do anything to relieve that horrible, stabbing butt pain, but I figure 2 out of 3 isn't so bad.

So I'm just waiting now to be called into hospital to have the Nevro permanently implanted. The device is charged up (every day) if necessary. If I'm going to use it 24/7, then it will need charging every day, which is no big deal as I usually have to lay down to rest my back and try to ease the pain anyway.

I'm currently still off work because, although I had the device and connector implanted on 3 December, I cannot believe how sore the site still is. I find bending down to do anything very uncomfortable and I'm just not fit enough to be at work right now. It seems the more operations I have, and the older I get, it takes its toll on my body and means my recovery is much slower these days. I figure this is a small price to pay if it works.

I may still need to be on the medication, but I'll see how things progress after it has been implanted for a while.

I live in South Yorkshire, in the UK, and as far as I know, the "Nevro" is under trial with the National Health Service. I actually emailed the Nevro Corporation in California (I think it is) and they gave me another surgeon's name and address of someone in Leeds who is also trialling this device. I have been seen by a neurosurgeon in Sheffield and I cannot fault the NHS so far. Their care of me has been outstanding, considering the budget constraints the NHS is under at the present time.

If any of you (in the UK) feel that you want to research with your own health professionals whether this device would be suitable for you or not, I would recommend you see your local GP as soon as possible for a referral to the relevant surgeon. Try and do it well before 1 April 2013 - as after this date, the NHS may be even more restricted in who they can treat.

Send me a PM if you want more detailed information about the 2 hospitals that I know of that currently see 'suitable candidates' for the NEVRO trial.

I'll let you know the final results after my final (I hope) spine surgery in January (fingers crossed).

Have a wonderful New Year to you all.

Rickilalas
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Nervo

Sue
Thanks for all the information. I had a small bit of hope that you were in the USA as I hear we are trying to get the first trials here. It looks like they are made 409 miles from my house and the first trials will probably be on the east coast 3000 miles away but you guys in the UK are already getting a shot at it. The US is always behind on approving anything new.
The only info for the states I could find shows they may now be looking for people for the trial.

This sounds like a easier implant and safer implant for the patient. It also looks like its just for the lumbar area now also.
I hope they develop one for the cervical area soon. Remember its just another tool to help the pain and like you said you will most likely still need some meds for pain but anything that helps is worth it in my mind. I hope it works out for you and you do get to drop some meds also.

Thanks
Rick

gemtos
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Q about the NEVRO device

Hello Sue,

Thank you for posting about your Trial with the NEVRO device. Since it is supposed to be a "higher frequency" stimulation, the vibrations and buzzing are supposed to be more comfortable and less noticeable compared to the current devices in the market today. I am very curious as to your experience with it.

Did you feel a vibratory, buzzing sensation? Did you feel any shocks? Could you describe how it felt?
Would you say that the device was comfortable?

I don't know if you have ever had a different SCS trial to compare the sensation to, but as a future SCS patient, I would appreciate knowing how the NEVRO SCS compares to the Boston Sci or Medtrnc SCS devices, for example....

Thank you so much for sharing your experience with it.
gemtos

jaxeye
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Joined: 02/14/2013 - 2:15pm
Spinal cord stimulator implant in Sheffield

I was interested to read about you ongoing treatment in Sheffield.
I attend the pain clinic at the Hallamshire and I was not made aware
this treatment was available here. My GP is making a case for me
to be seen a London hospital which seems a bit strange.
Can you give the name of the nuerosurgeon you're seeing in Sheffield?

Regards

SueD
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Hi jaxeye

I've sent you a PM with the information you requested. Good luck!!!!

SUE
2 x Microdiscectomy 2005 / PLIFusion 2-level 2010 / revision surgery 2011 / NEVRO Senza spinal cord stimulator implanted February 2013. I WILL NOT GIVE IN / UP !!

reesemay
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Nervo trials in USA

I came across this info today and know many of you were hopeful that this nrevo would come to the USA.
Here is the text I have read and I think if you copy and paste it into google you can find the source of the info.

Nevro in Menlo Park, Calif., a medical device company, has announced the issuance of four additional key patents related to the company's Senza(R) system and High-Frequency Spinal Cord Stimulation therapy.

The Senza system, which aims at providing relief from chronic pain, is available in Europe and Australia. It is presently undergoing investigation in a clinical trial in the United States

Haydn
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Joined: 08/10/2013 - 4:03am
Nevro is great

Hi all

I just had the full implant last weekend and the relief is just fantastic, is mentioned above the new systems are high frequency and to answer the question what does it feel like, you cannot feel I thing, no tingling, no buzzing and shocks whatsoever, it is my understand there are models out there (older technology) which have these side effects, I had the trial for a week and the surgical pain was there for a week or two max but during the trial I took not meds for break through pain at all, now with the full implant the surgical pain is a great deal stronger as they have to make a pocket in you back mine is just above my hip bone for the battery pack and they have to install the leads into the spine and connect to the battery pack, so there's lots of poking pulling and prodding in the back, I still have a large amount of brusing around the implant site but all this is a small price to pay for no leg pain at all and back pain reduced dramatically. All the best to everyone dealing the pain I know is so disabling.

Kort Jester
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What frq they run it at?

What frq they run it at?
My rep told me I can run the same freq just not aproved yet ;)
Maybe when she lets me set my progrmas she will let me test it out ?

Jester in Ja's court Smile