SCS removal

SCS removal

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mia
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Last seen: 9 months 3 weeks ago
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Joined: 08/05/2008 - 7:21pm
SCS removal

Hi, I have the SCS, been in me since May of 2009.I feel like I am giving birth since it's been 9 months now!LOL No, I want this thing out of me.The coverage is nothing as it should be.I told the doc in the trial that it felt good, while under anesthisia(sp) and it did I guess but it still wasn't where it needed to be.I needed it a little bit higher and told him the rep and anyone else who would listen.All I got was,well, you said it felt good then.So, being under anestisia is Gospel?!Anyway, I had to undergo 2 surgeries to get the leads correct.May was the first and then June was the second.It was the most painful thing I have ever done!Of course I was more prepared for the second one but still painful.
Anyway, the stimulation is mostly in my legs and butt.I need it in my hips and/or low back area.I am seeing a pain mangement doc and he will take it,I am wondering,do the wires stay or do they come out too?Anyone had this done,please tell me your experience.Thank you and pain free days your way.

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patwhite101
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Joined: 04/04/2009 - 5:25pm
Hi Mia...

I had my SCS removed a few months back. Nothing to it!! It was a piece of cake. Yes, everything comes out, wires and all. I kept my battery which had the whole hospital a flutter!! No one had ever ask for their battery before!! LOL First I was told there was no way I could keep it but I told them it was mine coz I paid for it! They gave it to me.
I had a little pain for a couple of days but that was all.
You will be asleep the whole time. I sleep on my back and was able to sleep on my back as soon as I got home.
I feel so much better with it out of me!! I did not realize it was making me feel so bad until it was removed and I started perking up. I felt so tired all the time and itched like crazy.
It is nothing like getting the implant. It comes out much quicker than it goes in. There is nothing to worry about having one removed.
Best of luck to you.
Cheers :H
Patsy W

dave
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Last seen: 2 years 10 months ago
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Joined: 06/19/2008 - 10:57pm
Mia

That's a shame that your Doctor and Rep failed to help you obtain stimulation in the proper area. Do you have leg pain or is your pain only in your back area?

One thing that I have noted in my research is that if someone has a stimulator implanted while their back still has instability, the stimulator will eventually fail to provide any relief for them. Maybe you should exam having the fusion surgery that was recommended in 2007 to stabilize your spine.

Hope everything turns out better for you.

Dave

Wrambler
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Joined: 01/21/2009 - 9:28pm
Yeah

As Patsy says you want to ensure they take it all out! Insist on it, especially if you may have instability in your spine. One of the reasons they don't, can't do MRIs with SCS in place is it can fuse the leads into the dura and worse, if there is a worse! So, I'd insist that if it has to come out, it all come out.

Mine was installed in May too, I have a love hate relationship with mine, it helps my shoulder pain but adds to my back spasms, partly my own fault for refusing to do stop doing dumb things I should not, usually working overhead at my townhouse experiment.

I use flexeril, Valium and wait out the spasms. I sometimes just get frustrated at the sensation my PM has left me with in the settings dept and turn it off, for days at a time. I question keeping it, but when things are bad it does work, so it is going to stay and I am going to try and insist I get a medtronic rep to actually attend my next appt, only have to wait till May Grin

I have decided no matter what I will place no permanent judgement on mine until two things pass.
One is that it has been in place one year.
Two is that I must go an entire month without turning it on.
I'm in no hurry as my accident will soon be 4 years old. As time passes it gets easier to deal with things.

mia
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Last seen: 9 months 3 weeks ago
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Joined: 08/05/2008 - 7:21pm
Thank you

Thank you all for your responses to my post.I felt like the wires and all should come out too.I see my pm doc on the 23rd for another epidural.They seem to help me with low back and leg pain.So yes, I do have leg pain also,(someone asked).Still, I need the relief in my low back.A tens unit with pads you can place yourself works great for me but I am alergic to the pads,blisters,burning go on, unfortunately.I am going to ask my doc to remove the SCS on my upcomming visit.I have a feeling he will want to try his brand of the device since they are different but I will only do that if he promises to raise the area I need to be effected.I hate to put off what I think eventually be have to be done but I trust this new Doc and hopefully he can make it work for me.Thanks again for all of your responses,it helped me more than you know.

patwhite101
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MIa

I best make it clear that EVERYTHING comes out. They gave me the battery in a baggie.LOL
Nothing can be left in or as Wrambler said you could not have an MRI. I have had to have 2 MRI's since mine was removed.
I was told by my 2 PM's that the SCS would never work for me. I do not know how a different brand would work but then I am not a Doctor. They know a lot more than I do.
Best of luck to you.
Cheers :H
Patsy W

mia
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Last seen: 9 months 3 weeks ago
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Joined: 08/05/2008 - 7:21pm
SCS Removal

Thank you again to everyone responding.Yes,I am going to have the stimualtor removed.I have to wait until end of March when I go back to doc but it has been over a year so I can wait a little longer.I keep getting a pinching feeling in my back and shoulders more and more,that's a bit weird to me.Who knows, the wires migrated the first month,maybe they have again?Even with paddle leads though?Dunno..
I had my second epidural,I think it's an esi?I only know it helps my leg pain greatly but this last one has left my low back throbbing with pain.I am sorry to rant and change topics kind of but it's been pretty bad.I take Kadian & roxycodone.I have Midrin and xanax for migraines from a different doc.
I am going to go over all of my option with my pain doc like, removal (which is pretty much a done deal) and the revision of fusion surgery since these other options haven't worked out so well.I am 52 now though and am a bit worried about after surgery care.I might have 1 person can come help me out for awhile but not positive.My concern is overdoing if no one is available to help me.I suppose I have to just let go and if things build up so be it.You know, housework and stuff.Not that I am all that able to do as I wish now but I can only imagine not being able to do.If that's my option, then I will just not do....my back is more important, as you all know the pain we live with when it's still in the "finding out what works mode"Sorry so long, thanks again and thanks for letting me rable*Pain free days and nights to all*

mia
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Last seen: 9 months 3 weeks ago
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Joined: 08/05/2008 - 7:21pm
both

Dave, I have left leg pain and low back pain, some pain in my shoulder area on my back as well at times.Usually after repetitive things such as washing dishing type motions.The epidural shot I got really helps my leg pain almost 85 %.My low back is throbbing pain after the shots though.I don't understand that one.I stated earlier I had the SCS since 2009 but it's been 2008.Thanks for your response and kind words.
Painfree days and nights to all*

mia
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Last seen: 9 months 3 weeks ago
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Joined: 08/05/2008 - 7:21pm
OMG! Just watched the SCS implant vidieo!

I am in shock!I have a scar about 4 to 5 inches BETWEEN my shoulder blades!I also have a battery in my hip on left side.Not in low buttocks and stomach area.Everything they showed is so much LESS than what my doc did to me?!I suppose that is why I am now numb in my shoulder blade areas on the outside of skin.This is so scarey...I will be glad to get this thing out and over with.I keep getting the pinches that are bothering me more and more lately.Maybe it's stress adding up,I am not sure but it is weird.

patwhite101
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Mia

I did not have paddle leads and my battery was right beside where the leads were in my spine so removing yours may be a bit more involved than mine was.
You may be a lot more sore than I was.
I feel so much better with my SCS out and I am sure you will too.
When the SCS works for someone it is good but no one understands what it is like to have one and it does not work for you.
If you are going to have a fusion you will need someone with you to help out. That is a must.
Very best to you dear. Please keep us posted.
Cheers :H
Patsy W

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Title: Member
mia

I am confused as to the placement of your leads. I wonder why your incision site is "between your shoulder blades" if your SCS is to treat leg and lower back pain. Are you a person of short stature with a short torso? Typical placement for leads to cover low back and leg pain, is to enter through the L1-L2 area and go down from there. A c-spine SCS enters through C7-T1 and travels upward.

The videos give a "typical" placement scenario. Of course every surgery is unique to the needs of the individual, so if your incision is longer or shorter than the video, it does not mean it was "goofed up".

Sorry that you find your SCS to be ineffective in helping to manage your pain. Is it turned off now, or do you still run it at any time during the day or night for any measure of relief? When was the last time you communicated to the doc or rep that it wasn't helping you and what did they say when you told them it was "pinching and bothering" you?

"C"

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