Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

advertisement

Quick Start Forum Video Tutorial

    Forum-Tutorial-Screenshot
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

The main site has all the formal medical articles and videos for you to research on.
advertisement

Hi... appreciate any help

hello. my name is Daniel and I'm 20 years old from Costa Rica, when I was 13 years old I was diagnosed with Guillain barre syndrome which affects the nerves connected the muscles. The syndrome didn't hit me that hard cause only my feet got paralyzed as far as I can remember while there are some people whose whole body is paralyzed when having the same syndrome. the problem came afterwards, for some reason my calves muscles and forearms muscles wasted A LOT. those muscles are severely atrophied and my calves and forearms look similar to  a 8 year old thin kid, no kidding. While I'm actually in my proper weight, I had to cope with all the teases in high school because of the legs and that stuff.. I have done a lot to change that, gym, special exercises, physical therapy etc however I have seen no result and I'm starting to think I'll have to deal with it for the rest of my life, I guess there's nerve damage which doesn't allow the muscle to get the proper mass. is there anything else to do at least for the calves issue? surgery, etc? thanks to everyone.

regards

advertisement

Comments

  • @elpollo92 you're story brought tears to my eyes. you are such an inspiration to us all. i couldn't imagine what you've been through growing up. kids can be so mean. they have no idea what you've been through. i hope we can offer some support for you here. 

    welcome to spine health! 

    while you are waiting for replies please click on the welcome link below as well as the system tutorial.

    welcome to spine health

    all new members should take the system tutorial 

     are you on any medications for the nerve pain? gabapentin or lyrica? 

    honestly, this might fall into more of a cosmetic surgery option. have you researched anything? i know they can do calf implants. honestly you might be able to get this covered by insurance because it is due to a medical condition. i'm not saying cosmetic surgery is the way to go, but you might want to research it to give you some options. i hate that you would have to go through something so young, but i can definitely understand the reason. 

    keep your head up! maybe some other members can give some more ideas...



    Retrolisthesis C4 of C5 and C5 of C6
    Spondylolthesis C5/C6
    Disc protrusions with Annular Tears C3/C4, C4/C5, and C5/C6
    Disc Material Compressing Spinal Cord C3/C4
    Severe Forminal Stenosis C5/C6
    DDD
    Ankylosing Spondylitis 
    Annular Tears L3/L4 and L5/S1
    Enlarged Facet Joints/Facet Anthrosis L3/L4/L5
    PLIF with Rods, Cage, and Pedicle Screws-L4/L5
  • @Jillybean079 hi thank u for the reply. I don't have any pain at all, just some subtle weakness in my muscles but I don't mind that, it's just the volume/mass that my forearms & wrist and calves lost which are devastating to me since they look just weird and awful compared to my body's proportion. I was thinking on calf implants however   I would like to avoid surgery at all costs and that's why I'm writing here to see if anyone has some kind of idea. 

    thanks 

  • advertisement
  • Yes I understand wanting to avoid surgery @elpollo92. I'm sure others will respond soon. We do have members that lift weights, so many they can chime in and give you some options. 



    Retrolisthesis C4 of C5 and C5 of C6
    Spondylolthesis C5/C6
    Disc protrusions with Annular Tears C3/C4, C4/C5, and C5/C6
    Disc Material Compressing Spinal Cord C3/C4
    Severe Forminal Stenosis C5/C6
    DDD
    Ankylosing Spondylitis 
    Annular Tears L3/L4 and L5/S1
    Enlarged Facet Joints/Facet Anthrosis L3/L4/L5
    PLIF with Rods, Cage, and Pedicle Screws-L4/L5
  • itsautonomicitsautonomic LouisianaPosts: 2,561
    edited 07/17/2017 - 4:33 PM

    Daniel, what kind of doctor are you seeing for this in Costa Rico ? A neurologist ? There are some on the cusp treatments in the US for this syndrome such as IVIG, this is a treatment for my issues with damage to central nervous system, but I have not done it because my doctor thinks it will not help as my nervous system issues come from injury vs. other source.  I also read that steroids are often used if severe muscle wasting is present to help build back up.  What does your current doctor recommend to build muscle mass?

    I am sorry you are struggling with this and I have talked to some with it at the neurologist's office or on other forums and its a very tough problem to have to deal with.

    This is a great place, but for complex neurological problems there are also other forums out there that will connect you with other people with similar neurological disorder, I have been here for years and after neurological problem came into my life I also went to other forums where people had dysautonomia (autonomic dysfunction). The combination of multiple forums is something I cannot recommend enough for complex neurological disorders.

    One thing to consider in regards to surgery is the stress that would put on your body, Guillain Barre sometimes shows up after something life a stressful surgery as can several of the other neurological disorders.  Its good to look at ways outside surgery to help to avoid stress on your immune system from surgery.

    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
advertisement
Sign In or Register to comment.