It looks like you're new here. If you want to get involved, click one of these buttons!
I'm 3.5 months post permanent SCS implant (Boston) and am really disillusioned with it.
I knew going into this that it wasn't going be a cure, but I had hoped for more than what I feel I'm getting.
My trial was great, pain dropped from 7-8 down to 0-2. Perfect!
Had the permanent implanted and then moved back in with my parents as I was unable to care for my daughter whilst recovering.
I'm back home now and it seems like the slightest exertion (grocery shopping, chasing my daughter, 3hrs at work) is enough to render the stim useless and my pain flares right back up again.
I've been reprogrammed but it's still not enough to het the pain controlled. I've been riding the current flare up for 9 days now. Increased meds, reprogrammed and increased the stim and just can't get on top of it.
Has anyone else found that their stim doesn't provide relief when they try to do normal activities?
Please don't try and tell me not to overdo things. I'm taking things so slowly it's driving me crazy. If I did anyless I may as well not even get out of bed.