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Does this sound familiar to anyone?


I'm posting on behalf of my wife as she's not ready to post on forums such as this, as much as I try to get her to do so, if anything for support from people who are going through what she is.

She woke up one day (January 2015 now) with nasty pain in her lower back (the epicenter of it is just above the bum, on the right hand side), but this pain can also spread to around the bra line and even on rare occasion up to her shoulder. The pain tends to be much worse when she stands/walks and isn't so great when sat upright. It's at its best when she's sat back at an angle, with her legs horizontal. She uses hot water bottles/heatpads to keep it calm as well as god knows how many strong pain killers and anti-inflammatory pills, causing all kinds of side effects (as I'm sure you know). To sleep at night she's best with a pillow between her knees when lying on her side.

Does this sound joint related to anyone here? The body position affecting the pain levels I mean. I've done some reading on sacroiliitis but not heard anything about the pain spreading upwards, just down the legs (which she occasionally has as well). She had an MRI back in 2015 but they focused on the spine itself and found nothing (they originally thought they found a cyst on it but was a false alarm). She's seen god knows how many specialists with the NHS and most of them try turfing her off ASAP. She has polysystic ovaries (has known about that for years) but the gynae says it shouldn't give her those kind of symptoms. She was 31 when the pain started and now uses a wheelchair when she goes out as walking more than 10 meters is too painful. She hobbled around for the first year but then it flared up badly and never really calmed.

I know this isn't a site for medical professionals so I'm not looking for a diagnosis, just seeing if anyone has anything similar to this and if they have any kind of advice? Just a very concerned husband who wants his wife to catch a break.

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