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On the first meeting, I put down my pain as a 3, but also wrote that it kept me from sleeping. I assumed someone would see that and help me. I was sent to PT for 8 sessions. I wrote down that I couldn't sleep from the pain for the PT forms as well.
The ortho doctor had mentioned that my adderal could cause insomnia. He has shown disdain for me at every meeting. Its either because I have obamacare or he thinks I'm a drug seeker.
I went to a shoulder doc at the same time. He gave me an MRI and then a shot all within a week. I still couldn't sleep though because of lower back pain.
I had a sleep study done and was given gabapentin by the sleep specialist. His dx was not pain though. Its that I need a set schedule from not working. I had a lot of PLM, but he didn't think it was waking me from the data. He can't address back pain. He hates me too, but he DID rx a useful med.
Went to er for back pain last week. Then put on course of prednisone at PCP. Also got 40 tylenol 3 while getting a second opinion at another ortho doc. Even with help of the prednisone, I need gabapentin and tylenol 3, along with ice/heat in a homemade recliner to ease the pain.
My MRI said I have moderate narrowing in the neural pathway at l4/l5. Not spinal stenosis, but similar. The spine doctor crossed out moderate and put slight, then crossed out slight in 5 other places and put none. Just with pencil he did this. I have pain in that exact spot too. Then he said he thinks its muscular. He gave me 2 minutes at my last 3 visits. He expressed disdain that I insisted on the MRI at the last visit. He's about 28 and the worst doctor I've ever met.
I've been telling all my doctors that pain is keeping me up for 9 months now. Eventually I started believing that I had a different cause of insomnia. I actually bought a cpap out of pocket as a psychologist heard my story and thought I had apnea. Then I was sure it was RLS since the sleep study write up was recommending Parkinson drugs.
I've been sleep deprived so long I'm having a hard time communicating to doctors. Nobody will help. I'm waiting on a call from a new spine doctor referral from my pcp. I've begged for help literally at the er to be admitted. I've begged BCBS. I've begged the neurologist office that did the sleep study.
I am now 100% certain that pain has been causing my insomnia. I can sleep ok with gabapentin and tylenol 3, but it wears off in 4-5 hours and I wake up in pain.
I have pain in si joints that I can't relieve by any position. This is in addition to the pain on the right side of my spine. Also pain to right of that spot and the top of pelvis on that side.
I was dx with adhd this year at 44 yo. Its been the only thing keeping me +. My dad is having 2nd surgery in 6 months soon. He's a mess too. I stopped adderal recently as I feel its a big reason nobody will help me.
I want a proper dx, but yes I also would like pain relief since its 24/7 pain and I'm sleep deprived. I feel so let down. I can't believe the cruelty I have experienced. I've been telling every1 I'm in pain but nobody will listen.
My BP is very high as a result of sleep deprivation. They all blame the adderal. Its higher now that I quit. I wasn't using it much anyway so I never had withdrawl. It was helping pain too.
How can a doctor change the MRI findings? And then express disdain that I requested it? The second opinion guy said I should do PT since bolts and screws were the alternative. I have 2 bulging discs that he was probably referring too. Both with degeneration.
I was referred to a pain specialist by two ortho doctors. My PCP thought I should instead find the cause by getting a new spine doctor, which I agree with. Hopefully they call soon.
Not sure of my point in posting this. My life is over it seems. Right after I finally got dx adhd and my whole life makes sense. Tragedy at its absolute worst. I have OA in my shoulder dx and pain in hands that has not been addressed. Seems obvious I have OA in my SI joints. My research so far sounds like I'm in for never-ending pain. All in the worst possible climate for chronic pain.