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Perineural Cyst Symtoms and L3&L4 Fusion Surgery

Hey SH - I am wondering if anyone has had Symtoms from a perineural cyst, the cyst forms itself about the roots of the nerves in the spine!  The reason I ask, my pain has been off the charts the last 3 weeks and after not being able to take it anymore I fought to get answers.  Now we have an answer which is removing this cyst it is a very serious surgery that could cause neurological problems, either treated or not treated. I also need to have L3&L4 fused .  Less than 1% experience Symtoms and I’m wondering if anyone has gone through this surgery of having the cyst removed or knows anything about it.  I little history, 45yr old, with DDD, peripheral neuropahy.  I just had C5-C7 fused in my neck on Halloween of 2017.  Ive also have S1&L5 fused in my lower back.  In October of 2016 I had a pain pump installed.  Long story Short my body rejected the pump and it was removed in June 2017.  At which time, I developed a really bad spinal fluid leak which has now developed into this cyst.  As I stated my pain horrible the last 3 weeks or so and my regular meds have not helped at all.  So if anyone out there has any info or had surgery to remove a perineural cyst they can pass along it would be greatly appreciated.  Thank you and hope you all have a great night!  

Michael 

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Comments

  • hi michael

    so sorry to hear about this new development after all you have been through.

    i have not experienced any cyst, but i did have a dura tear during my tlif l4-s1, so would be interested in your symptoms.

    once you make a decision on surgery, you may find surgery buddies group a good support again.

    considering your history of surgeries you may have seen the link i am going to add below, but there may be something that could give you support or guidelines for this decision.

    40 questions to ask your surgeon

    please keep us updated and let us know if you need further information.

    you may be able to view past posts by searching in the search box at the top of the page and selecting spine-health posts.

    take care

    aj 

    AJGormit

    ---------------------------------------------------------------

    L5/S1 herniation Apr 2013
    nerve root injections Oct 2013
    L5/S1 discectomy Jan 2014
    L5/S1 nerve roo &, facet joint injections & edpidural Jan 2015
    L5/S1 revised discectomy, L4/L5 discectomy & Wallis Inswing Stabilisation L4/L5 May 1st 2015
    L4-S1 TLIF with decompression June 2017
  • AJ - Good morning and thank you for the response.  Symtoms with perineural cyst or Tarlov cycst are sciatica pain, pain in the buttocks, muscle weakness, pain in the lower back, pain down the back of the legs, loss of bladder control and sexual dysfunction.  That’s what made it tricky to diagnose, my symptoms can be caused by the herniated disc at L3/L4 or the cyst.  The kicker was the mri and when my regular pain meds really wasn’t helping, because this cyst is CSF fluid based and wraps itself around your nerve roots.  Surgery to remove should only be done as a last resort...what Symtoms are your experiencing from the dura tear? Thank you for the link and I will review.  

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