I am new to the forum and searching for someone who can please give me some advice. I am 29 years old and had a spinal fusion at the age of 11 because of a 47 degree curvature. I have 2 C-D rods, one on each side of my spine that hook and also have pins in 3 places across them. I am not sure exactly (without looking at chart) what levels of my spine the rods begin and end but they are about 10-12 inches in length. I have always suffered from back pain since the surgery but became accustomed to it since it was never that severe. The last 4 years it has progressively gotten worse and worse. I have been in pain management for 3 years now. I have been in PT, had countless trigger point injections, pain meds, nerve pain meds, exercise, unsuccessful nerve blocks, and accupuncture. I have seen two neurosurgeons, one of which is supposed to be the best in Denver. They both saw all of my images (MRI's, X-Rays, Bone Scans) and chart history. They both told me my pain is not caused by the hardware. One of them told me that removal of the rods is not even an option at all. He said they would have to use a diamond plated saw to cut the stainless steel and would have to cut them into many pieces to remove them. This would create metal shavings not to mention all of the bone and nerves they would have to cut to get to them. He said I would be worse off than I am now.
The pain is so bad that I am miserable every hour of everyday. I don't allow myself to take anything stronger that Lortab 7.5 as it is prescribed and it is not even touching the pain. I am also on an anti-inflamatory, have tried Lyrica, and also muscle relaxers but it doesn't help. My line of work demands complete alertness and attention to detail; I am responsible for many lives and cannot risk others safety so I have to be careful what meds I take. I don't know where to go from here or what options I have.
My sister in law is a surgical RN for a Neurosurgeon that she says is great and I am in the process of getting an appointment with him. I am just so discouraged because of the past two opinions I have been given. Does anyone have any suggestions? Has anyone been through a similar situation? I would appreciate any and ALL advice. Thank you in advance.