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Maybe I’m feeling sorry for myself but I really need someone to listen that understands. In 2007, I had a L4-L5 multiple level micro discectomy from left leg pain. At the time, I was having mild left arm pains. The doctor said let’s address the lumbar first. The cervical would require going into the neck, etc. I dropped it, scared of that scenario. Fast forward to August 2012, I had cervical fusion on C5-C6. The arm pain had progressed to the point I had to drive with left arm hanging. For the fusion, they had to take bone from my hip, because I am a smoker, a dirty and hopeless smoker (that’s a whole other can of rotten worms). The fusion, bottom line, was a terrible and painful experience, but I finally made it through to recovery. About a year later, arm pain has slowly crept back. I have occasional electric pains shooting into ring and small finger, mild sporadic cutting pains, and daily muscle aches & spasms that vary in intensity. I complain to my PM doctor and Primary but pretty much live with it, for now. In addition, my left leg pains have crept back in recent years. It also varies in symptoms depending on the week. About 2 weeks ago, I was on steroids for a URI. During that time, i felt ten feet tall and bulletproof. Started moving bins around my Mother’s house, who passed in June. I’ve needed to get her house cleaned out for months so I can sell it. It’s been a “thorn in my side” since I can’t seem to get it done because of ongoing pain & disability. So, I moved some bins and drove 2 hours after. The next 3 days my left leg declined, to the point of screaming in agony. Had stabbing in buttocks/hip area, pain running down thigh, pain into front of calf area, burning down front of calf to sensitive to touch now, throbbing, random flares up & down leg. Went to ER, they did MRI and CT scan, gave me more steroids & anti inflammatories, sent me on my way with advising to follow up with primary. Went to primary, he played it down since I could stand on top toes. Advised follow up with PM and PT prescription. Here’s the kicker...I forgot the CD of radiology scans, but he said he didn’t need them that he could tell by my walk that I didn’t need a neurosurgeon referral. He sent me on my way with a PM follow up and PT prescription. Yesterday, my PM doctor said “you need a neurosurgeon consultation, ASAP” after seeing scans. Told him what happened with Primary and he was taken back. He said your nerves are compromised severely and bone spurs are narrowing your stenosis severely with this severe left paracentral herniation. There’s that severe word again. He sent me out saying he would get injection approval with insurance and advised to call a neurosurgeon. Even brought my husband in so the doctor could repeat this to him. Now I have to wait to have someone to drive me 3 hours back to the primary to take my CD and hope for a neuro referral. I tried calling a local doctor but told since I’ve had multiple surgeries, I need to go back to the original surgeon. That “clinic” of renown surgeons is 3 hours away! No one else, at least with a great reputation, wants to touch me.
Very very long story short...I’m so exhausted from this Spinal merry go round that won’t stop. It’s taken over ten years of my life away and wants more. Seems no one takes me serious or listens anymore. I told everyone TWO WEEKS ago this was serious. I’ve never had it this bad before and I have lots of experience. I don’t have the energy or mindset to keep chasing these doctors. My husband doesn’t understand. I’m at my wits end. Please help with words of understanding and advice. I need it badly.