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looking for non surgical solutions

My 14 year old daughter has an S curve, 27 degree and 50 degree curves.  She is towards the end of her growing cycle and her doctor has told us that her only true treatment is surgical with no hope of long term correction with PT (Shroth) and or bracing.  She has no pain and is super flexible.  We live in central Virginia and are searching for other answers.  Do you know of better options or other physicians to work with?  

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Comments

  • Hi michbana:

    I had scoliosis from your daughter's age and the curves were more like 30 and 40 degrees. I had no pain until my mid-30's but it continued to worsen into my 50's when I finally had surgery. My biggest curve was only 55 degrees. If your Dr. said there is no other option, he or she may be right. 50 degrees is very large. That said, I have heard great things about Shroth; have you tried it? And I spent my life doing yoga and working out, trying to stay flexible. It may have helped; the surgeons said my muscles and ligaments appeared much 'younger' than my age. Are you just trying to avoid surgery until she is done growing, or do you want to avoid it altogether? If I hear of any new therapies, I will certainly let you know!

    Noreen

  •  hi michbana,

    I had 32 to 36 degrees at her age, did all sorts of sports even in 40's  when it went to 46 dergrees started doing yoga and was active, how ever the pain increases with age and as the cruve grows. 50 at her age is not good, but if she has no pain I don't see reason for surgrey at this point. I had the surgrey at 58yrs old and my curve was up to 60 dergrees lumbar and 22 t and very small curve  in the s area. I had a lot of pain and even my yoga was getting worst each month. I think you need to look at what all she can do and leavels of pain. some ppl can live with big curves and never have pain. I would keep trying the shroth pt, keep close eye on the curve and watch for sublexsations, that's when the nervers can realy get pinched and cause pain. good luck I will keep her in my prayers. and let us know how she dose.

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  • WLLadyWLLady Ontario CanadaPosts: 1,493

    i have to agree with xrobynx.  I actually didn't know i had scoliosis until i started looking for answers after i was diagnosed at 69 degrees when i was 43.  i had had pain for a long time at that point, literally almost 10 years, and was at the point where i was starting to lose the function of my left leg.  i wish, i SO wish i had known earlier!  i was "fixed" with a long fusion 15 months ago now, and knowing what i know about this surgery and the recovery i also wish i had done it earlier when i was younger, but glad also that i'm not doing it when i'm older.....but i would have given anything to have known about it earlier so i could have not had to live those years in that horrible pain!  as is, i still have nerve damage problems, hopefully it will heal, but if i had known i wouldn't have waited so long.....

    It's good that you know, and can keep an eye on it, but from my experience if there's no pain or problems yet i would watch and wait and see.  i progressed from 69 to 110 degrees in the 6 months before my surgery, so if it starts to get bigger it's time to consider doing something, and you and you daughter and her doctor can keep an eye on it. 

    Kathy
    Veritas-Health Moderator
    ---------------------------------------------------------------
    Dec '16 T10-S2 fusion with pelvic fixation. Laminectomies L2, L3, L4, L5, facet removal, cages L4-5, L5-S1, severe scoliosis, arthritis and stenosis repair. 

  • scoliogirlsscoliogirl Augusta Posts: 36

    Michbana,

    I would consult another specialist (ortho, neuro) for a 2nd and maybe 3rd opinion if it were me.  Also, I would want to know how many surgerys for scoliosis he/she had performed and the success and complication rate.  Knowing what I know now (and from other ladies on this forum), it usually gets worse.  I didn't have any pain when I was 14 either.  I would get another opinion about bracing - I'm not sure she has stopped growing yet?

    I think I'm one of the few on this forum who has had Scroth therapy.  PT told me that young people just don't do the exercises 20 min day/5 xs a week.  There are some studies that indicate it is helpful when your spine is growing and as an adult it is hopeful the curve won't progress (1percent/year my ortho said).  Yikes.  

    My experience with Scroth is that it helped.  I started doing scolio pilates from an instructor in California bc I wanted to strengthen my core.  She has videos on Youtube - and she shows how to properly sit as well.  I hope you can find them if you look (I don't think we can give out specifics on this site).  Maybe, doing the scroth and pilates was a bit too much.  I have an appt. with my therapist Monday and hopefully will learn the correct way to do the exercises again.  He says if you are doing the exercises correctly you shouldn't have pain after you do them.  

    Also, ask the dr what exercise/sports she should avoid.  PT said I made my back worse running, jumping rope, and weight lifting.  

    I wish something had been done when I was younger.  I'm sure it is scary contemplating a major surgical procedure for your daughter.  I have heard that young people recuperate much faster.  

    Keep us informed on you and your daughter's journey.  Everyone is so helpful on this site!

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