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Hi. I’m here because I’ve spent years reading on this forum and thank God my situation wasn’t as bad as “yours”. Well, I’m there my friends. I don’t know how I got here but I do know I don’t want to be.
I’m a 39 yo single mom with diagnosed fibromyalgia/chronic fatigue syndrome, ddd, adjacent level syndrome and arthritis.
Since 2014 I have had 4 spine surgeries. C4-6, then C6-7, then L4-5 and lastly C3-4. C3-4 was done in Feb. 2018 and I am still in excruciating pain. The arm pain went away but has come back and is now in both arms and all ten fingers are burning and lack some sensation. At this point I think I will be refusing anymore surgeries. My surgeon and his staff rock! It’s me not him!
He’s already told me that C8-T1 looks bad but there’s not much they can do and I can count on my lumbar blowing another level within a year or two. I have the films to prove it
Here is my main issue: pain. I have a $50 heartng pad plus a regular one, I’m waiting for approval for insurance to cover a TENS unit, I can’t stand or walk for more than 15-30mins, and I can’t sit without my head supported longer than 1hr so I’m in a recliner or bed. Now I can’t get refills on my meds. My pcp, pm, and ns won’t or can’t refill. What do I do? I’m a step from losing my mind and going bankrupt. Oh, the epidural injection lasted 30mins and the muscular injections made me worse.