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can you have fibro if your pain doesnt spread past our back?

AnonymousUserAAnonymousUser Posts: 49,578
edited 06/11/2012 - 7:22 AM in Fibromyalgia
Hey

Ive had many of tests done and been through mri's and loads of x rays, bloods etc and theres still no answer to my back pain. I have all the symptons of fibromyalgia except that the pain doesnt go past my back. My massage therapist says my trigger points are always very active and going nuts as she says.

My doctor mentioned fibromyalgia to me, but i just want to know if you can have it if it doesnt go past the back? I think its myofascial pain syndrome that I really have but they are that similiar im not too sure.

Just wandering what peoples opinions are. Ive read alot up on all these conditions but I just want to know if anyone has been diagonsed with fibro but with the pain just in their back? I have chronic fatigue which affects my whole body but no pain other than my back.

thanks in advance
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1

Comments

  • am not sure but it is definitely worth looking into. I hope that you don't have fibro but if you do then you need to know so that you can start a treatment plan for it. Please keep us posted as to how you are doing and what you find out.....take care.....Miki
  • Did the dr actually touch the possible tender points. I have all 18 but some I didn't realize till someone touched them in my arm,etc. I'd recommend seeing a rheumatologist, I finally did and got the most thorough exam ever.
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  • yeh ive seen a specialist and im going to see a private one again on friday. Im going to mention that to him on Tuesday. See how it goes!
  • Yes! You can have Fibro ONLY in your back! I have it only in my lower back. I have been threw the ringer (like you) wondering what in the hell is wrong with me and Dr's telling me that I was either faking it or crazy! So I do know what you are going through! :) They have pain meds out there for you from Narcotic pain meds to a new one called Lyrica its made for Fibro! Finally my Neurologist diagnosed me about 8 months ago after serval yrs of pain and feeling like I was Crazy! So Take Care! Keep me posted! I hope this helps you, if you have any other questions feel free to ask me! >:D<
    *jesink*

  • Let us know what they find and make sure they check for spots beyond the ones you know of!
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  • I go to see another specialist on tuesday evening so ill see what he says and then ill mention to him about fibro and see what he says. I just want some answers after all this time
  • hey, just to update you as im back from my appointment


    Basically the guy checked me throughly and actually spent time checking me.

    He has no answers, he was honest. I asked him about fibro but he said i have some of those symptons but he cant pin-point it to one thing. Its more towards myofascial pain syndrome.

    Although he didnt know exactly what it is and ive had all tests, mri, xray etc that have all come back clear, he advised me on changing my lifestyle and thats what i need to change.

    its sooooo hard to get motivated to try and exercise etc, it sjust so difficult.

    I ended up crying as I normally do when I come out of these consultations as I just want an answer. He said that theres no spinal damage etc which is good and its something I can change by trying to have different attitute and doing exercises etc.

  • but I find even with the fibro dx, and my history of a broken vertebrae and all my degeneration in my spine that posture still helps. My pt told me to suck in my stomach as often as I can remember and I'm looking at pilates or yoga but I'm starting slow like a few minutes of walking or an elliptical. I really think there is something about getting the blood flowing but I also think its a very fine balance of not increasing pain but if you're not going to hurt yourself its better to move the body. I know I have a hard time doing it. I hate when people push me to exercise. I've been doing a lot of stretching. Did they even suggest pt on how to get moving. You may want to ask for that?
  • hey, thanks for the comment

    well i had physio exercises ages ago to do so im going to try and do these all again and im going to try and do some gentle yoga exercises and see how this goes. its just really hard to find the strength to do these, when your so tired
  • Whether I have Fibro, Lupus, or another autoimmune disorder the sympton that bothers me the most is the "flare ups" that I have. That's what I've been calling it when I am so exhausted that I don't have the energy to get off of the sofa to feed the cat, get a drink of water, answer the phone, nothing! This can last for up to 5 days at a time. I've dealt with my back pain for 8 years total but the flare ups have only been for less than 2. How can anyone excercise under those conditions? And then because I'm sure I must be anemic I have no energy even when I'm not having a flare up. It's just an impossible situation.

    Has anyone noticed that when a doctor can't diagnose you right away they immediatly say that it's in your head? I have known many people this has happened to, including me. I also love to watch "Mystery Diagnosis" on the Discovery Health Channel, and the same thing happens to the people on there too. They want to send everyone to a Psychiatrist instead of just being honest and saying "I don't know what is wrong with you". At least Wingnuts doctor was honest but that seems to be the exception.
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