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Help. In need of advice on what kind of Specialist I should see next.

First off apologies for lengthy. Not looking for a online diagnosis, just Looking for some advice from people who may have been here on where to look next. Feeling lost without answers and in chronic pain for 10years straight. I’ve been to several doctors. The first, word by word said I was too young to have anything wrong with me.. first visit not even a single test. The second and third, regular tests and a few others.  Second, didn’t mention that one band showed up on the lymes test. The most recent doctor mentioned it and ordered further tests. All Negative.  Trying to get a MRI ordered from any of them has been like trying to take a bone from a Wolf.   I have a apt with a Nerologist at the end of the month since the Rheumatologist doesnt have appointments for months, but I’m not sure if that’s where I should look next?  X-rays say there’s nothing that should be causing this. 

This started 10 years ago in Basic Training, the morning after I  had the Vaccines in reception. I started feeling flu-y (didn’t receive flu vaccines at this time) I didn’t know what that meant at the time, since I never had the flu before the vaccine I had at a later date, also in Basic training. Caught the flu for 3 years following and not since.  So I didn’t know how to explain this feeling, other than I felt wrong back then. Random muscles and joints just ached and I felt drained even just waking up. Even worse on a cold/rainy-humid day.  Constant spine and shoulder blade area pain started not long after, similar to the flu-y like aches, but with pain too. A gnawing-throbbing  pain. Plus popping and grinding with simple tasks. Not just crepitus, somewhere between a standing up and your knee gives out type sensation and a nailing the sharp corner of a table when walking fast feeling. This is all constant. No rest, just better and worst days. I was later Medically discharged for a pelvic stress fracture and the back issue. 

These are the tests I’ve had, any recommendations on what they could miss? Or other tests I should ask for?  Or anyone have any of thes show negative/normal and still diagnosed? 

Erythrocyte Sedimentation Rate 2 mm/hr

Uric Acid 2.4 mg/dL

C-Reactive Protein < 2.9 mg/L 

Rheumatoid Factor Negative

Anti-Nuclear Antibody (Hep-2) <1:80 (negative)  

Anti-Nuclear Antibody Titer ()  

Anti-Nuclear Antibody Pattern ()  

Anti-Nuclear Antibody Titer 2 ()  

Anti-Nuclear Antibody Pattern 2 ()  

Anti-Nuclear Antibody Comment ()  

HLA-B27 Negative  

Lyme Disease Screen Negative  

SM Antibody <0.2 U 

Thyroid Stimulating Hormone (TSH) 2.03 uIU/mL 

Lyme Disease IgG Ab (Western Blot) Negative

Lyme Disease IgG Bands Present p41, kDa


Spine X-rays. 

The alignment is anatomic. Vertebral body height is normal without compression
deformity. There is no significant disc
space narrowing. There may be some minimal degenerative endplate spurring in the lower thoracic spine.
Some mild degenerative changes of the thoracic spine


  • LizLiz Posts: 9,708
    edited 08/18/2018 - 10:00 AM

    hello k89f

    welcome to spine health

    there are no medical professionals on this forum side of the site. therefore, no one is capable or permitted to provide any type of medical advice.
    this includes any analysis, interpretation, or advice based on any diagnostic test 


    new member information guideline / checklist 


    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • nutcase007nnutcase007 United StatesPosts: 877

    k89f - If I was in our shoes and from my own experience of significant chronic pain, I highly recommend that you have a consultation with a neurologist and a rheumatologist.

    In my case, the nerologist didn't find anything significant, but the rheumatologist did identify that I was severely Vitamin D3 deficient.  I was eventually cleared for multiple cervical surgeries (insurance got in the way).   

    Do your due diligence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be surprised what will be revealed trusting your body and instinct.

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