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First off apologies for lengthy. Not looking for a online diagnosis, just Looking for some advice from people who may have been here on where to look next. Feeling lost without answers and in chronic pain for 10years straight. I’ve been to several doctors. The first, word by word said I was too young to have anything wrong with me.. first visit not even a single test. The second and third, regular tests and a few others. Second, didn’t mention that one band showed up on the lymes test. The most recent doctor mentioned it and ordered further tests. All Negative. Trying to get a MRI ordered from any of them has been like trying to take a bone from a Wolf. I have a apt with a Nerologist at the end of the month since the Rheumatologist doesnt have appointments for months, but I’m not sure if that’s where I should look next? X-rays say there’s nothing that should be causing this.
This started 10 years ago in Basic Training, the morning after I had the Vaccines in reception. I started feeling flu-y (didn’t receive flu vaccines at this time) I didn’t know what that meant at the time, since I never had the flu before the vaccine I had at a later date, also in Basic training. Caught the flu for 3 years following and not since. So I didn’t know how to explain this feeling, other than I felt wrong back then. Random muscles and joints just ached and I felt drained even just waking up. Even worse on a cold/rainy-humid day. Constant spine and shoulder blade area pain started not long after, similar to the flu-y like aches, but with pain too. A gnawing-throbbing pain. Plus popping and grinding with simple tasks. Not just crepitus, somewhere between a standing up and your knee gives out type sensation and a nailing the sharp corner of a table when walking fast feeling. This is all constant. No rest, just better and worst days. I was later Medically discharged for a pelvic stress fracture and the back issue.
These are the tests I’ve had, any recommendations on what they could miss? Or other tests I should ask for? Or anyone have any of thes show negative/normal and still diagnosed?
Erythrocyte Sedimentation Rate 2 mm/hr
Uric Acid 2.4 mg/dL
C-Reactive Protein < 2.9 mg/L
Rheumatoid Factor Negative
Anti-Nuclear Antibody (Hep-2) <1:80 (negative)
Anti-Nuclear Antibody Titer ()
Anti-Nuclear Antibody Pattern ()
Anti-Nuclear Antibody Titer 2 ()
Anti-Nuclear Antibody Pattern 2 ()
Anti-Nuclear Antibody Comment ()
Lyme Disease Screen Negative
SM Antibody <0.2 U
Thyroid Stimulating Hormone (TSH) 2.03 uIU/mL
Lyme Disease IgG Ab (Western Blot) Negative
Lyme Disease IgG Bands Present p41, kDa