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hello everyone. Unfortunately my neurosurgeon and pain consultant have said they have to remove the complete SCS system. I am devastated but I know is has to be done because I have been unwell since it was implanted. They don’t know yet whether I am allergic to one of the components or if it’s my body rejecting it. They have never known anyone react like me t this hospital and I get the impression they have not had to remove a complete system before. It has been in for 7 months, and am very worried that tha percutaneous leads will have scarred in too much and they will cause more damage removing them. I wish I had told them how bad my symptoms were becoming months ago but I so so so wanted it to work and just kept hoping the unwanted pretty severe allergic reaction type symptoms would improve. I was getting help from the system itself, not as good as the triial but anything is a help. So I can’t believe this has to happen. I am upset beyond words. And I am frightened and tired so tired of living in such severe intractable debilitating disabling pain. Housebound and often bed bound, living off strong medication that hardly takes the top edge off the pain. I wonder how much more my body can cope with. Thank goodness for my wonderful hubby,family and friends.
Has anyone had to have theirs removed completely? How do they do it and how are you now? I hope someone can share their experiences on this.
Thnk you to all who read this.