Hi Butterbean here,
I have had severe lower back pain for 2 yrs,11 months. Im only in my late 20's. Cannot socialize. Cannot do much. Cannot live life being in constant pain. Have to have assistance when shopping for groceries (cannot lift shopping bags or bend over to take items out of trolley & put on "conveyerbelt" to be scanned- too painful) Trammal pain meds help a bit but wishing, hoping & praying the pain will go away 1 day. :W
Only abnormality that shows up on MRI is a 5cm Tarlov cyst S2 or S3 region of lumbar spine. Nerosurgen tells me its just a coincidental finding. I have noticed other forum members have also been told the same thing about their Tarlov Cyst/Cysts.
A Mylogram was performed & showed CSF in cyst was in communication with rest of CSF in spinal chord. Back specialist/Othopedic Surgen told me to come back 12 months later for a 3rd MRI "to keep an eye on it".
I Try to put on a happy face because I dont want my family, friends & my partner to pity me, because I wish I was still a strong independant woman like I used to be (and hope to be again). I walk around slowly & haunched over like a much older person because of the pain (no offence to the elderly). I cannot sit up in most cars so I have to lie down on the back seat, this has been the case for 2 yrs 8 months. Difficulty standing, sitting, walking & even lying down (but to a lesser extent). :''(
I would love to hear from other people who understand what its like to be in constant pain,from others that also have a Tarlov Cyst, or from anyone else. I havent worked out how to reply to other tarlov cyst sufferers posts yet, but I will reply to them once I work out how. Thanks. >:D<