I have pulled most of my initial following comments out of another person's thread:
As of the writing of these comments, I am now a week without any opioids. I have never used MM (mainly because it only recently became legal in my state, the product being sold is known to be very inconsistent and very expensive). My reason for quitting was that the opioids were not even cutting any of the edge of my pain any more. My PM doctor had allowed me to significantly increase my opioid level a couple of months back and I still got no relief anymore with the opioid therapy.
In addition to no pain relief with the use of opioids, I was being refused any antidepressant aids. SNRIs and SSRIs make me violently sick. The antidepressant relief that has been found that works for me is benzo based. Yea, the latest rule, no opioids and benzos, no matter how small the dose of either. Coming off of opioids has been a living hell for me without any antidepressants.
Question to any readers of this thread, have any of you ever experienced pain so intense that you got no relief from any level of opioids? Any doctor that I tell them of my experience, they just brush it off as "opioid tolerance". Low levels of opioids helped "cut the edge" off my pain for over 20 years and all of a sudden, it no longer works. I have a very difficult believing the line about opioid tolerance.
My wife has found me totally responsive in my reclining chair. Before "passing out", I remember being in extreme pain and when I "come to", I was still in intense pain. The only follow-up tests that were performed on me was a stress test for my heart which came back clean. The cardiologist thinks my passing out is from the intense pain. My worst pain originates at the base of my neck and then primarily radiates through my neck, shoulders, upper arms, completely around my upper back/chest and lower legs/feet. I have compromised neurological feeling and motor control when the pain gets worse.
I've been waiting for a while and have to wait until April 3rd for an office consultation with my neurosurgeon who do my last two ACDFs. I continue to be told, pain is no emergency.