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You can search my name for more information about my pre-op situation. Basically for 11 months I had relentless bilateral nerve pain down the front and back of both legs and crippling lower back pain. I could not do anything to escape pain and I was lying flat for most of the 11 months. I truly mean that, I was house and mostly bed bound. I couldn't walk for much longer than 20 minutes without my back getting very heavy and I could not sit at all as it was immediately uncomfortable in the lumbar spine.
I had an MRI that showed a disc at L4L5 that was degenerative with an annular fissure. Notably there was no nerve root compression. With nothing else to go on I had an artificial disc replacement at L4L5 on Jan 23rd 2019. It's been 10 weeks now since the op.
Immediately since the op I could sit again, basically all day. That lumbar spine pain was more or less gone. I can in theory walk as much as I want as well without my back getting badly fatigued. It is still sore to push the back into extension or flexion. But it's more muscular in nature. It really hurt to do so pre-op.
My problem is that I continue to have severe relentless nerve pain and this is now coupled with a lot of strong stinging sensations in my lower back. I know they say wait a million years for nerve pain to resolve but I am simply baffled. My surgeon wrote on my surgery report that "there was an inflammatory reaction in the nerve roots, they were red looking and the vessels were inflamed".
I'm just distraught. The nerve pain is still really bad and continues to limit my activity. I can still only go for a 20 min walk a day due to it irritating my nerves a lot.
Everything goes so slow in my country. I have an x-ray on Monday to see how well the bone has grown into the prosthesis. On the 20th I meet a rheumatologist and I am begging him to refer me for some steroid injections. I'm also asking if they can include hypertonic saline to break up any adhesions.
The worst part about this, is that I seem to be the only person with any sort of grasp on the situation. All of the docs seem to be completely clueless. Since my case was not standard (no compression, no massive disc height collapse yet so much nerve pain) they are just shrugging and offering gabapentin and amitriptyline etc. which don't help me and not really taking the situation serious ebcause physically it is not life threatening.
I've extensively researched arrachnoiditis and while I have the symptoms I have no clumping or adhesions on my MRI.
It not as simple as me just going and asking for second opinions. I have legitimately seen nothing but gross incompetence across the board. If you don't fit into the textbook situations it's chronic pain management which is basically useless.
I basically feel like I'm at the end of the road. The only thing that was diseased is now gone and you can't replace the central nervous system.
Anyone have a prolonged recovery where the nerves just transmitted lots of pain post op even though they were no longer compressed?
Thanks for reading!