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Alice in Wonderland Syndrome after Cervical Trauma

Hi.

As above really,

 Snapped my neck back in 2014, spinal shock, paralysed for a few days,  feeling came back gradually,  walked out of Hospital 12days later.....

Gradual decline ;

Spacial awareness shot to bits, vertigo, photophobia,  inability to look at patterns, hearing away to sensitive (birdsong induces flashing lights!) Etc....

The best bit; seeing friends turn into cartoon characters, body parts shrink/ massively out of proportion,  seeing mice 'out of the corner of your eye's that aren't there etc.......

Laminectomy c3-c6  without fusion 2015.......

Nothing really improving much....

Very experienced Neurosurgeon of 25years at  UK's only dedicated Neuroscience Hospital....

 "You're only the third person I know who's had this problem "

Medication trials galore. 

Third course of Botox injections to scalp.........


Nothing's helping, getting a bit 'fed up'.....

Anyone else out there experienced anything similar?

Ps.

No pain , ever!



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Comments

  • My father has a semi similar condition(near paralysis state) but not visual auditory symptoms to such extent as you mentioned  ,lost his position sense and he is now recovering after ACLS ( but very slow recovery after surgery. The paralysis recovery post surgery is very slow and needs lots of patience. My dad had hallucinations and similar imaginations/dreams which we attributed to low Sodium(Electrolyte imbalance) he had . 

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