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Just Joined this Forum. 2 Years of Hell to get Diagnosis!

AnonymousUserAAnonymousUser Posts: 49,578
edited 06/11/2012 - 7:22 AM in New Member Introductions
Hi To Everybody,

I wanted to share my journey with this community in the hope that I might get some advise. 2 Years ago I decided to visit my GP in the UK and I was complaining of having sweats and anxiety type symptons. I was having hand treamours and my blood pressure was through the roof. The problem was I couldn't vocalise accurately what was happening to me so my GP was finding it very hard where to look. I was sent for a CT scan to rule out a cist on my adrenal Gland, which was ruled out. My ~Thyroid was checked showed nothing, I was complaining that what felt like my Lungs were made of stone and my throat was under irritation and for some time I thought that the right side of my wind pipe did not belong to me and I was permanently trying to clear my throat. On regular visits to the Doctor and after paying £1000's privately for Brochoscopy, Endoschopy, MRI Everything! still nothing dead ends. The one thing that I always maintained to the GP was a strange sensations in the top of my spine.

2 years on and I go to see a Chiroprator who was highly recommended, I said to him that I beleived I could have a spinal condition and asked what his opinion was. He then proceeded to reel off all the syptoms that I had been having and stated that it is a nerve in my lower neck that is trapped, and that my Job on a computer and stress had caused it.

My problem now is I know what it is but I can't fix it. I have had many sessions with the Chiropractor but it is no better. Has anyone else had a similar condition? I can not say it is pain in fact I can say it is not painful at all just incredibly debilitating. On some accossion my whole body will spasm and voluntarily twitch, and it is as if I want itch the very nerves running through the top of my spine. My arms always feel fatigued and I sometimes lose the feeling in my little fingers. I am on Beta Blockers for the Blood Pressure.

Is their a surgical solution for it? Life like this would be unthinkable I am finding it very difficult to concentrate. Having had this and been on the journey to find out what it is, now that I think I have nailed whats causing it I feel frustrated that the physio is not mending me.

I sure feel sorry for anyone who has got what I have and pain that must top it all! I would be grateful to hear from anyone who thinks they could advise me or help me.

Kind Regards


  • Adam and welcome to the forum. You will find so much support and understanding from our amazing members here. I am so sorry that you have suffered so and I wish that I had some solid answers to give you but I am no doctor. Have you ever had an MRI for this and if not , is there a way that you could , also have you seen a spine specialist about it? It might be a good idea to make a list of the problems that you are suffering , the symptoms and how it has been affecting your life and then take that list with you if you can see a spine specialist. I wish you the best of luck and please do keep us all posted as to how you are doing and what you can find out. If there is ever anything that I can do for you then please just let me know. Take care....Miki
  • :) hi and welcome to the forum! we are here to offer you support and answer what questions we can. Miki is right about the MRI. how was an accurate diagnosis made without one? i would still want a second opinion to verify what you are being told, especially if you are no better. it doesn't sound like he helped you much for knowing exactly what was wrong. your symptoms sound very debilitating and in need of medical care. good luck and keep us informed! Jenny :)
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  • Hi there!

    Welcome to the board! I like Preistess, do not have a real answer for all the things that you have going on. I truly am sorry it has been taking so long for the docs to find some answers for you.
    I really just wanted to let you know that I am here for your support! If you need to vent or chit chat there is always someone to chat with on this board. I can not even tell you how much this board and the caring wonderful people here mean to me.
    Adam, I hope you will find the answers you need soon. Hang in there and we are always here!! :)

  • I am sorry, but I do not have any answers for you either, but I do understand the pain from spasms as I suffer terribly from these, and my thoracic back pain is exacerbated by my job using a computer all day long. I too live in the UK and am finding it difficult to get a firm diagnosis as my GP is reluctant to refer me for an MRI.
    You will find lots of help and support on here, I know I have.
  • So sorry for your suffering. Keep seeking the answers, for they are out there somewhere. Did your chiropractor look at your MRI? Was your MRI of your cervical spine and how long ago was it? You need a current MRI and a referral to a Spine specialist in my opinion. Good luck and welcome to SH, it is full of information and support. Sometimes we just have to be our own advocate until we can get some answers. Take Care, Sue
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  • hi adam, >:D<
    welcome to spine health, one thing i can sy you have come to the right place. have you been diagnosed by a orthopedic surgeon? If your in the uk thats where i would go. you need to go back to your GP and the doctor to refer you to orthpedics, thats how it works in the uk!

  • Hi,
    I would just like to say thanks for all your support.

    It makes a refreshing change from sitting opposite a GP who just thinks I am going out of my mind and that I should pull myself together.

    They look at me like I am making it up. I even turned round to one GP and stated that I can assure him that I had better things to do than sit in a Doctors surgery looking for a Chat! If I wasn't in any kind of suffering I would not have been there.

    With regards to the MRI, it was done in the Canary Islands and was instigated by a GP who also is not qualified to read them. It was a general MRI and not one looking in any area of suspicion, I was told that everything appeared normal apart from my spine being degenerative. I think spine specialist should take a look.

    Having researched what's known as a pinch to the nerve in the lower neck upper back region, I have presented just about every symptom, even down to bowl problems. The problem being that every time they send me for a test they say it does not suggest anything wrong.

    Thanks all anyway.
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