Hello, it looks like everything has been done over from scratch since I last visited. I think my username is the same but I had to re-register.
I had/have a spinal dural AVF or AVM that I had surgery for in July 07 - when I didn't get better, the surgeon acted very weird, wanted to re-operate in the same place, etc., but never made a cogent case for what he was planning to do, just bullied me to get me to go along. I got 3 second opinions (okay, I got a 2nd, 3rd and 4th opinion) all saying I should probably go along with the surgery he recommended, and no, they would not take the case.
So fast forward 4 or 6 months and I have gotten my HMO to refer me to EDITED, where they do a lot of these. New diagnostics, state of the art, and it turns out the place where I had the first surgery is not even the location of the AVF! So not only was the first surgery a wrong surgery, the recommended second would have been too, all the risks and no benefits.
I am going back to EDITED tomorrow for surgery the day after in the actual location of the lesion - the iliac artery. Hopefully I will get better now, although the 1+ year delay in correct diagnosis and treatment may have cost me some permanent decline in gait and bladder function.
I'm trying to waste no energy being angry, but to reserve that for if and when I sue the ******* who did the first surgery (Is this kind of talk allowed here?) who by the way is currently in a jury trial for malpractice one county over, so clearly I'm not the first to have "issues" with him.
Thank you for listening. I may not post anything for a few weeks until I get back from Rochester, MN.
Doctors name and contact details removed by forum Moderator (paulgla). We do not permit publishing specific doctor's or institution names and contact details.