I have a congenital condition called klippel feil syndrome, basically it is fusion of the cervical spine. I do have two openings c1 and c2 and c4- c5, now i am at risk for becoming paralyzed second to instability. At this point i do have left sided weakness and of course pain in the neck and across the shoulders. The surgeon feels that i need acdf of c4 and c5 with possible posterior plate placement. I have ddd, bulging disc into the epidural space, spondylitis and osteoarthritis. I am trying to reach out to others with the same or similar congenital problem.