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Relationship among Fibromyalgia, Arthritis, Autoimmune, and DDD

AnonymousUserAAnonymousUser Posts: 49,578
edited 06/11/2012 - 7:23 AM in Fibromyalgia
i think all of these things are related to one autoimmune disorder. In 1992 i was diagnosed with fibro. In 1993, I had an ACDF. Last year, anticardiolipin antibody syndrome (which i understand is an autoimmune disorder). Last month more surgical surgery. I think all of these things are related. Any thoughts?

1992 Fibromyalgia
1993 ACDF c6-c7
2007 anticardiolipin antibody syndrome
8/2008 posterior cervical foraminotomy and ectomy at 3 levels (c4-c5, c5-c6, and c7-t1) with arthrodesis
DDD and severe spondylosis at all cervical levels (except c6-c7).


  • Hi! I'm New, my real name is Rhonda, and I was first diagnosed with fibro in 1993. I hurt ALL over and was given Tramadol (didn't help, of course). I struggled on, mother of a 1 year old boy and 1 1/2 year old girl, and as a woman I had had more than my share of female problems. Finally in 2000, my ob/gyn said a hysterectomy would change my whole life (he NEVER knew how!) and when I went for 6wk checkup, he found massive amounts of protein in my urine and sent me directly to a kidney doc, who found that my titers (blood tests) for lupus were highest he had ever seen. The lupus had affected my kidneys (thus, the protein in urine) and I had lupus nephritis. I was also positive for a lupus test that said I was prone to blood clotting problems. Next thing I knew, I had a completely black tip of my left index finger and almost lost it due to blood clots. Then came 2 heart attacks back to back due to blood clots. Since 1993, I had been suffering from left lower back pain that radiated down my buttock, thigh, etc.... of course it was called sciatica, and physical therapy and exercise would "fix" it according to all my doctors. So, although lupus (which is considered incurable, but managable) was my life sentence, at least it FINALLY got me some pain relief and some REAL doctors who believed in my pain and misery and prescribed pain relief, muscle relaxants and nerve pills, plus antidepressants to help with my chronic pain and anxiety and depression. My doctor considered the blood clots a "life-threatening" condition and I finally got the disability I had been trying for since 1993.

    Sorry for the long story, but I have seen SO many people prescribed with fibro, who then turn out to have some sort of autoimmune disorder as well. I wish you good luck and better health.

    I'm glad I stumbled on this forum today and look forward to reading more and getting to "know" my fellow back pain sufferers.

    God bless,
  • Hi Rhonda :H

    I wanted to take a moment to welcome you to SH! I trust you will find a wealth of information here to arm yourself with, as well as the advice, support, opinions, and compassion from our members. We all share the common denominator of pain and do our best to answer questions, or just offer a listening ear. :)

    Looking forward to getting to know you and seeing you around the boards! :)))
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  • I believe that fibromylagia is triggered from an auto immune response in the body that causes the body to excrete more
    substance P and lower serotonin.

    From the internet:

    Substance P, the neuropeptide in spinal fluid, is a neurotransmitter that is released when axons are stimulated. Increased levels of substance P increase the sensitivity of nerves to pain or heighten awareness of pain. The elevated levels in the spinal cord cause fairly normal stimuli to result in exaggerated nociception. Some authors believe that neither elevated substance P levels nor low serotonin levels alone can be primary cause. Instead, the dual dysfunction may be responsible for fibromyalgia.

    I developed fibromylagia twenty years ago when I had a strep infection that was not treated completely and turned into mono. Then I got a high Titer for Epstein Barr.

    It took a year to get better. I did ok until I experienced four sets of ruptured breasts implants. Then I had Raynaud's, butterfly rash, and connective tissue disease.All this causes auto immune response.

    The bad thing is that I used to have a high pain threshold but no more. I am currently a intractable pain patient with degenerative disc disease, a sacral iliac injury post auto accident, and piriformis syndrome. I had hashimotos and had to have my thyroid removed.

    Digenerative disc disease and sciatica have been been researched to be related to an auto immune response in the cerebral spinal fluid. (Internet-The Lumbar Spine-Dr Horowitz)

    All these things come from or cause an supressed immune system and cause fibro flares. In my case, if I can get
    restored sleep, I can keep my flares to a minumum.

    I fight depression,stress and if my serotonin levels lower, fibro flares ensue. This seems to validate the theory that low serotonin and high subtance P levels are detected in fibromylagia patients.

    It is definetely a process that is triggered from other suto immune disorders rather than the fibro triggering the disorders. Maybe both. I also noticed that if I had an injury or surgerical procedure, I had a tendency to have a flare.

    This seems to happen with MS (and other auto immune disorder) :( patients also, they say that a virus, sickness, or injury trigger their MS symptoms.

    The main thing it has done to me is caused me to have a low pain threshold and I cannot handle the pain levels I could before.

    A small touch is as if someone had hit me hard with a fist and I thought this would never be me. It certainly is a mystereious disorder that has to be treated multimodally.

    I know I have to eat right, exercise gently, avoid stress, and get my deep sleep. If I go three days without deeep sleep, I know I need to take something to make sure this happens.

    I told my husband I feel that I have been beat all over with a baseball bat and to not touch me.

    I emphathize with everyone and encourage them to read everything you can to assist yourself to overcome the pain.

    I believe everyone here is right on target. They all correlate.

    BJ :/
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