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Anyone have fasciculations?

inafixiinafix Posts: 158
edited 06/11/2012 - 7:23 AM in Back Surgery and Neck Surgery
I do and I want to know why... I had so hoped my l4-s1 decompression/lam /fusion surgery might alleviate it. But I still have them all over my body day in and day out. It doesn't hurt but it drives me nuts and muscle relaxers do not help at all. I can't help but wonder why I have these. I plan to discuss it with my NS on my next visit but I was wondering if anyone had any input. I am beginning to believe I have benign fasciculation syndrome.


thoughts? input?

TIA
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1

Comments

  • Have you asked your surgeon if it is in any way related to your spinal problems, or it is completely independent? This subject never had come up on this site (as far as I know) so it would be interesting to get an answer.

    kin
  • Have you asked your surgeon if it is in any way related to your spinal problems, or it is completely independent? This subject never had come up on this site (as far as I know) so it would be interesting to get an answer.

    kin
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  • I have those ALL the time. I get twitches AND spasms both... It SUCKS. I'll just be sitting there and I get them a lot near my hamstrings... Sometimes it will happen a ton of times in a row... Like continuously for a few minutes. Other times I'll have a spasm and a body part will jerk. So weird. They give me muscle relaxers for that purpose but it doesn't make them go away.
  • The hope or theory was that they were due to the nerve root compression. I also have peripheral neuropathy. I am not diabetic and they don't know why I have it. I knew before surgery that the surgery would not change the neuropathy. I didn't notice either of those problems the first 3 weeks post-op but they slowly crept back in. I think that was because I was tapering down on meds. I also have a new post-op "dead" spot on my good leg right in the crook. It is about the size of a ping pong ball. So overall I am doing great but there are things that are still off. For me I do real well the early part of the day and then by late afternoon my hips, pelvis and tailbone area all ache. I see my NS on Oct. 8. I am going to make a list of things to ask him. The fasciculations get so intense sometimes it makes me right ill just frustrated and angry that it won't stop. I'll let ya know what I find out.

    Don't misunderstand me, I am pleased with my progress and I am glad I had the surgery. I just can't help but wonder about the other things.
  • Human beings are curious by nature, so it's only logical and reasonable for you to wonder. Nothing wrong with that!

    I had an MRI w/contrast tonight and they had to redo some of the pictures because my body was moving too much from the spasms and twitches. The worst ones are right underneath my right leg/butt cheek (I think the technical names sound even worse haha) and it pulsates at times. It's odd. I will find out Monday whether it's due to something new happening in my spine or what...

    Definitely keep me updated & let me know how it's going and how you're doing. And share the wealth if you get any info :)
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  • Kelly Jo, have you been tested for MS? I have had fasciculations on occassion, esp. the first few days post-op, but they have gone. I know a few years ago, I was having them, and read something about MS. Those have to be so annoying, I can't imagine having them constantly and everywhere :( I hope you find out why, and soon. Sue
  • Kelly jo, I also have had this. It went away for a few weeks and lately has been very annoying especially when sitting my whole back up to my shoulders. I asked PT and I wish I could remember exactly what she told me but what I do remember was something about new muscles and it being normal. I see my surgeon Monday and will be asking him also.
  • Just wanted to add, I also have been told I have peripheral neuropathy/radiopathy and no diabetes although there is a history of it in my family.
  • Just wanted to add, I also have been told I have peripheral neuropathy/radiopathy and no diabetes although there is a history of it in my family.
  • Just wanted to add, I also have been told I have peripheral neuropathy/radiopathy and no diabetes although there is a history of it in my family.
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