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Pain Pump

4jkasper44jkasper Posts: 231
edited 06/11/2012 - 7:23 AM in Chronic Pain
Hello everyone!
I was just wondering is anyone here has a pain pump and if it does the trick, my Doc and I have been discussing it. I am alittle afraid to go there but, I just can't stand this pain anymore, it is really getting me down.
Thanks ahead for any answers,
Jeanette :?
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1

Comments

  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,732
    Hi Jeanette,
    Everyone who has talked about them in this forum really likes them. I'm also giving it some thought. Less meds to the head!
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • i have talked to both my ortho and pain dr about pumps. my ortho has reservations because they can have mechanical problems and they need to be filled up. sometimes people let the morphine run too low and they run out over the weekend. it can get plugged. and sometimes to some people it does not work that well. you have to take all of this into account and make a decision. i have heard from pain dr that it works well for a lot of people but he has more of a monetary interest in the pump. it is like anything else, research it objectively and make a decision based on your research. some people here have liked it and some have not. i know this does not help you but do research and ask questions from medical people
    good luuck
    jon
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
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  • I had a pump implanted about a month ago, and so far I'm happy with my decision. My pump has Morphine in it with some Baclophin. It has taken me from being on 50mg Fentanyl plus Lyrica plus Vicoden/Percocet plus Zanaflex....plus plus plus (you get the idea - the med list went on and on) to only a Percocet every once in a while (I took one tonight, which was probably the first time in a week or two). I need to go back for another post-op and get it recalibrated, so I'm not even at the best pain management it can give me (they warn you that it will need to be 'tweaked' after surgery to get the correct level for your body and needs)
    Just to clear up a few things Terror mentioned:
    There can be mechanical problems, but my understanding is that it's no better or worse than an SCS or any other like device. Many ortho's don't like them, (mine included), but mine also pointed out to me that if he's seeing someone with a pain pump already implanted, it probably means that it didn't work since they are there to get his help (meaning, they don't see the many of us that it worked for, because then we don't need to be seeing those doctors anymore!) The pump does need to be refilled, about every three months, but it's a very simple 5 minute office visit. They numb your skin around your pump, then stick a needle into the rubber port on top of your pump (all internal) and refill it. Really a nothing deal. And the pump does run out, but the doctor gives you a sheet that tells you when you need to come in for a refill based on how much medicine was put in your pump and how fast it's being transfused. So really if you don't get it filled up in time it's because you weren't being responsible for getting into the appointment when it's due (and you're told this information three months ahead of time, so there's really no excuse). Plus if the pump starts to get low on meds it begins to beep to warn you (kinda like the 'gas light' on your car, but audible! :P )
    There is a trial that you could do for the pump that is pretty non-invasive, and gives a fairly accurate view of whether the pump would be something that would work for you. I'm happy with my decision, but it definitely doesn't mean it's right for everyone.
    Please feel free to PM me with any thoughts or questions!
    Take care- Janiel
  • I am the same in almost to the letter, I am in a stay, of non work, drives me daily crazy, As in what my wife has told me, I am driving her nuts, Now the Comp spys are watching my garbage, I understand what there problem is, It is me.
    I just do not understand, I want to return to work, They are the ones that are stopping me.
    Now with a pain Pump, they will surely not allow me to return.
    And at Fifthy, what do I do now.?
    This is a big Decision for me.
  • This is a Question I need a answer to.
    Are you able to go back to teaching, With this.? Or any Job.?
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  • Hi Jeanette, I'm in the same boat too and my options are to have an SCS or a pump implanted. I have read the good, bad, and ugly regarding pumps. I know the outcome differs from person to person, but the biggest concern I have with the pump is reports of severe nausea, vomiting, and headaches. How can someone get sick if the medicine is going directly into the spinal fluid? Do they put in anti nausea medication like phenergan into the mixture?
    I have tried the stim trial and it didn't work out, and I rather try a pump trial to see which is best. I have a lot of back pain and I'm guessing part of it is from severe DDD in L4-S1. The pain gets worse when I sit, stand, or walk. Laying down is my life, and it's no way to live. The pump sounds like a reasonable idea, but for 75,000 dollars it better come with a 100% moneyback guarantee.
  • nothing with backs are 100% guarantee
    surgery=1/3 get better, 1/3 stay same,1/3 get worse
    implant device=50-50
    pain pump-50-50
    these are from my dr when i discussed all of them.
    all of back meds and proceedures are a crap shoot. too many variables according to dr such as scar tissue, nerve damage, bone problems, etc
    i have had 4 surgeries, and i was ok until my L3 blew out due to extra pressure put on it after my other fusion, I actually got worse. I was on my way to no problems except pain now I can't walk without pain
    at least i tried and gave it the old college try
    i knew my odds when i had surgeries and i was willing to live with them
    good luck to all in pain
    jon
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • Workman's Comp cut me off from all my pain meds. I had C5-C6 fused December 2006. Still having chronic pain. Been told by at least 2 different doctors that I could have died thru the detoxing. I am battling both the extreme pain and workman's comp. My original neurosurgeon cleared me and said I should be active. When I asked him about the pain he basically told me it wasn't his problem. Does anyone have a similiar set of circumstances and what do I do next?
  • Is there someway you can get your medicine on your insurance or pay out of pocket? I think you should get in with a pain specialist. That neurologist should have referred you instead of handing you that line that is not his problem.
  • Was just wondering if you guys ever tried a TENS unit? They're real good for the pain...doesnt cure the back problem but definitely eases the pain a lot and its totally drug free and nothing gets put into your body!Body Clock TENS are really worth a look in if you got a sec...they have a range, Libra's brill as it sits right in the middle: value for money and high quality (real low return rates on them apparently)...Body Clock are premier, they also sell to www.tensunit.com who have a sale on right now!
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