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chronic myofascial pain

AnonymousUserAAnonymousUser Posts: 49,321
edited 06/11/2012 - 8:23 AM in Chronic Pain
Hiya! I am looking to connect with people who have chronic pain (100% of the time) who have tried everything so we can talk about what works best and stategies that help you cope. I have had mris and xrays and other blood test, etc... to rule out serious conditions and they have found nothing and the only thing I conclude is myofascial pain. Mine is pain on the upper right side of my upper back and shoulder neck area. It makes me want to pull my hair out. I hate having to wear tight clothes or even a bra for that matter. I start a new job next week and am desperate to get this under control before then...which is silly wishful thinking but if anyone has some good suggestions I will be your best friend forever. I am young 27 and slender and look perfectly fine on the outside. Inside I feel like a 90 year old woman. I am trying a yeast free diet for 2 weeks to see if it make a difference in the way i feel...if anyone has any feedback on that or another diet that has helped your pain feel free to comment away. Well, hope you all are enjoying Sunday Funday!! Love, JLO


  • Hi ya Jalo, I think we share some symptons.

    I have been dealing with upper right back pain for almost a year except mine is now spreading to my entire back and my right foot tingles and hurts. My only relief is laying down. I have had an mri which showed two mild disc bulges in the T area. I am at my wits end and feel like I am not getting any help. I have tried P/T which I think made it worse. I am taking an antidepressant(prisiq) that they thought would help with the pain but has not so far. The next step is a epidural. I have also tried massage, a tens unit, ultrasound therapy ect.. None of it has worked.

    Not much help am I. I could just scream!!!! I am so tired of being in pain and it is showing in my face.. I look tired and old. :''(
  • I too have been prescribed Pristq, but my doctor told me he was giving it to me as an anti-anxiety med because I stay pretty jazzed up and can't even turn it off at night to sleep. Once I added this med to my regular HANDFUL of meds at night, it seemed to help slow down my thought processes so that I can go to sleep a bit easier.

    I have some similar symptoms as you do... my upper back has begun to give me nothing but hell for the past two months. I have problems in my lumbar area for which I had the scs implanted and now the problem has crawled up! It hurts mostly on the right side, but the left side gets it too, and it goes into my arms and makes my hands hurt. My doctor has suggested facet joint injections and I'm waiting on approval from my insurance. I also have been having unbelievable pain in my chest and arm joints which I believe is all connected. We'll have to see how it all plays out to come up with the right DX...

    Hope the two of you get a bit of relief and are able to get some get rest...
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  • I have been on the pristqi (spelling) for about a week and so far it has done nothing for the pain and I also don't care for the way it makes me feel. My brain feels all foggy and I always have a dull headache. I feel totally spaced out all of the time and feel I shouldn't even be driving a car. I'm not sure I am going to continue taking it.

    The Doctor has me on Remeron for anxiety and I really like it but he through the pristiq in for pain and it's doing nothing for the pain.

    I'm so tired of all of this. I honestly don't know how much more I can take. 8}
  • I can totally relate to everything you've mentioned, including wearing clothes that are too tight. And when I say too tight, I mean even clothes that technically "fit" me, but have no "give" to them. I know this has everything to do with the myofascial pain, but it can be exasperating, especially when you need to dress appropriately for work or social activities.

    For me, clothes shopping has become a bit of an adventure. Always trying to fond things that don't look like sweats, but feel like them. If you really do some research, you can find things that work. I find that it is usually a bit more expensive when I find the clothes that work for me, but it is well worth it.

    I think it is also common for many of us to look "normal" to the rest of the world, even though we feel the way we do inside. I am beginning to understand how to deal with the people who comment on that sort of thing. I just let it slide off my back now, because I've learned that unless they've actually experienced what we feel, they will never understand.

    I just wanted to say hi, and let you know that I can truly appreciate how you feel. I hope things go well for you and that you can get back in the swing of things quickly and with as little frustration as possible. Take care and be well. Bye for now........ Mitzi
  • I didn't notice the Pristiq causing me to be foggy feeling... I already had some of that going on before starting it. It really has helped me with the anxiety issue, to some degree. I talked to my doctor about taking it twice a day or possibly increasing dosage because I still feel anxious. If I get around a crowd of people I get so nervous! When I go to volleyball games and football games to watch my daughter, I try to be invisible because I'm so afraid of someone talking to me and me not being able to talk like a normal human being. I find myself struggling to find the right words to say. I can see in my mind what I'm trying to say, but I can't find the right word to put with it! Very frustrating! I also have MANY headaches, almost every day.
    I have the same issue with clothes as you guys... It is so uncomfortable to have close fitting clothes on and whenever I HAVE to wear a bra (outside of the home), I take it off as soon as I possibly can. The seat belt in the car seems to be quite a problem too.
    Sorry my post is so long. I try to keep them short, but once I got started it just kept coming! You guys have a good day.
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  • HAHA, I love it! Where do you go to get them? Do you have an online site I could check out? My pain was so bad today, yesterday I had a seizure! It was soo scary!! I feel like i am never getting better. :''(
  • omg! i haven't ever heard of someone having a seizure from intense pain!">image that would be so scary! i hope that never happens to me. i have enough going on with me without heaping that on top of it... did you go to be checked out by a doctor afterwards?
  • I have epilepsy, and have found that they can be caused for a number of reasons. A seizure is caused by electrical impules in the brain, eg A should go to B sould go to C. When someone has a seizure it misses B and the electrical impule oes into the brain (this is how my Dr explained it to me). In someone who is sensitive (predisposition???) this may happen more easily. I get them from lack of food, sleep, too much stress or the disinfectant used in some vet clinics. Personally, I feel that most people would faint long before having a seizure unless they have a seizure disorder.
  • There could be another explaination for what happned, or maybe it was an adverse reaction. If it happens again a trip to the ER may be the best thing to do, then they can do a CAT scan right away. They can also do EKG's. Good luck with the Dr, hopefully he'll be able to figure out what happened.
  • I have to hurry and leave as I have a doctors appt. in a little while, but I want to get some information about this and read everone's messages. From what "girl" described, it sounds like I have the same thing. It's a horrible pain and many times I can't even lift my right arm because of it. I can't wait to get back to this thread!
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