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Bad day with chronic pain!

2

Comments

  • I rarely have a normal day, if at all anymore. I consider a good day a day where I have no serious breakthrough pain and bad days the day's where I have breakthrough pain throughout the day needing to use my breakthrough med more than two or three times. Unfortunately probably 75% of days are bad days. So you are not alone. I'm actually having a good day today though.
  • Back at you terri, it does make it easier. Thanks again. It is hard telling my hubby sometimes how bad it is, but like yours he is not so easily fooled anymore. He knows all my tricks in avoiding it. 8>

    Here in Scotland it is raining as usual,so being indoors is not so bad. Hope santa get you what you need and want. And meydey hugs right back at you. >:D< >:D< >:D< >:D<

    Thanks all for cheering me up.
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  • Glad that your having a better day johnnyo from the norm. And thanks for all letting me know i'm not alone.

    Oh and meydey dont hug me too tight! /:)

    Heading off to bed now as its 12pm and know that if I dont try to get some sleep now tomorow will be a task. Thanks for listening and being here in my time of need. :H
  • good luck for tomorrow pixie,

    you really are having it rough with pain,it is good to know your not alone here,its just amazing how many friends here understand and do help out when its all too much,we know what you mean about hiding the pain from those close to you and i hope helping to share it here will make your journey to pain clinic smoother.

    will look out for message here to see how you got on,and do wrap up over weekend in scotland it may snow,we are feeling the cold here in ireland,we are nearly neighbours,its nice meeting you on this forum pixie.

    :H karen
  • Thanks for last night guys, it was just what I needed. Just dropped in to let you know how the pain clinic went, still in a flair up.

    Managed to get there,but the meeting did not go how I expected it to. I have had a fused L4 and L5, for at least 15ys now which causes pain down my left leg. Which if I do to much causes my back to go out. DDD with chronic pain and poor mobility. Operated on, as at the time they thought that it was a slipped disk, turned out to be fused, nothing they could do for me other than scrape away some bone to free my trapped nerve. Did not work.

    5yrs ago I went to my gp to complain of a problem with my neck, he did not believe me and sent me away.

    I got married 3yrs ago, moved and got a new gp, I went and told him of my neck problems, muscle spasms of the neck muscles, pressure build up at the bottom of my head, pain radiating down my right arm, Pins and needles, Stinging sensation like nettles, Loss of strengh in arm, difficulty breathing, tightness around my chest with a pain in the front of my chest and a swelling on my spine between my shoulder blades. He sent me for an x-ray. This showed spondlytis. Got given more meds. Gp said that I had a trapped nerve in my right arm.

    Then I was reffered to the pain clinic, which has given me over 2yrs, Mri which showed nothing not even the spondylities, tens machine, Lyrica, Antdepressents (which gave me depression), Anti flammatories which caused problems with my stomach (stopped them) Acupuncture and that is it. No diagnosis at all!

    Today he told me that he thinks there is nothing more he can do, where does that leave me I ask? :''(
    He is going to talk to a college and will get back to me.
    I have lived with this chronic neck pain now for 2yrs solid, with no relief. Surely I would not be in this much pain unless something is going on? I do not know what to do or where to go from here.

    No diagnosis and no pain relif. Any suggestions would help me as I really do not know what to do now!

    Thanks
    Sue >:D< :jawdrop:
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  • Pixie,

    I'm certainly not an expert but what you've described about your neck and scapular pain (between the shoulder blades) sounds like you have definite nerve impingement eminating from the c-spine. A friend of mine who had almost your exact symptoms, was finally given a diagnosis when she had a discagram (sp?).

    From everything I've heard and read, it's a painful test, but it can be the only way to see certain types of damage to the spine/discs. A lot of what was seen during this test was never seen in any films that she had previously. It was either a neurosurgeon or ortho who finally ordered this test for her, and I don't know your history, but if you haven't already, maybe you could get in to see one of the above.

    I totally agree with you that there has to be something causing this pain and it sounds like your doc at the pain clinic just doesn't want to look further into it. My friend ended up having surgery (fusion) and she is now on the mend. She still has some post-op pain, but has noticed a bit of improvement every day.

    I sincerely hope you can get to the bottom of this and finally get the relief you so deserve. I know this is only a guess on my part, but the way I've always looked at it, we can usually benefit from someone else's experience. My friend posts here and I'll ask her to pop in and tell you more if you'd like. Take care and try to hang in there. Sending warm hugs and positive thoughts your way, Mitzi
  • checking in with your appointment and its a disgrace your left in such pain and no diagnosis,i had 3 mri's 3yrs ago,it was for my L4-5,they knew i had DDD before all these but i was adament that i had this pain in my right leg and i kept pushing the hospital,it was fustrating but you know your body and can tell when to listen to what its saying so you hang in there and torture the hell out of your gp to refer you to another pain consultant or if you can your orthopedic consultant,this is how i got through my Nhs to get diagnosis,your made of strong stuff. i too am experiencing getting messed around with neck pain,numbness in arm and hand by my gp,i know again the road i have to pursue just to be heard.hopefully your not waiting much longer to hear back from college for help with your pain and a diagnosis or explanation,you have went through so much already,i wish you well in meantime.

    take care pixie
    karen
  • Hopefully he will talk to his colleague and they'll come up with a diagnosis for you. Maybe this Dr. is looking for a second opinion as he's unable to help you. But perhaps the next Dr. will be able to help you. It's just wrong that you've had to wait so long though. I hope his colleague can help you. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • I know it's hard to get listened to. Hopefully this doctor will come back with some ideas. I think you might have some DDD going on. I was diagnosed with it in my neck and thoracic area, and then it went down to my lumbar. Shortly after I blew out L4-5 and had a minor herniation with severe DDD on L5-S1. I wasn't even told about L5-S1. I found out right before seeing another surgeon months later, and also learned I had other problems going on. Then I went on to have L4-S1 fused. Sometimes doctors tell you you're okay, when there is something. I don't know why they do that. If they say, we saw this or that, and for now it's not problematic, it would be better. I don't like to be kept in the dark. Even is it's very minor, I think you should be told anyway.
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