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my hopes were crushed today please help

AnonymousUserAAnonymousUser Posts: 49,578
edited 06/11/2012 - 7:25 AM in Chronic Pain
Hi All,

I went to my surgeon with all my tests and my MRI today.
To my surprise he told me that I had Mild disc bulges and
arthritus which he said wasen't uncommon. I asked why I am
I so much pain and he said he had no idas........

He said I would need to go back to my pain management doc
and maybe try a lidoderm patch and a stronger pain med
along with the nerve and muscle pain meds I take. He also
said he would refer me to a nerve doc, but he had said my
nerve test was alright enough to say I have no back
He commented about a pych doc to see sometimes to help
with meds if pain is so great... I thought great he thinks
its all in my mind. I can tell by touch exactly where it is
the pain on my back L-5 and L-6 and I have numbness on bottom of feet. Also tingly feeling on feet. I have sharp
pain that shoots down bottom and back on legs when it wants. I know its there not in head.

I had sharp pain catch me off guard on Thanksgiving and I
fell. I am so upset. I was a very happy mom and wife. I
worked alot. Now I can't even drive rigvht now. I don't
feel like much and my poor daughter is 13 and watching
me. I really am losing hope fast. Any help or thought I
would love to hear. I feel stupid but am open for anything
and today was horrible.... Thank you


  • I know how you feel in so far as doctors not understanding your pain and telling you its all in your head.Do you have the option to get a 2nd opinion at all?

    All I can say is don't let this keep you down, there are others who will believe your pain just around the corner.Sometimes I cannot believe doctors pass that line so quickly, an MRI is not the end all, be all of how much pain we are having its just another diagnostic tool.Yes, it is in our heads because we hurt and the mind can be a powerful interpreter as well.It seems this surgeon is just taking the easy route IMHO.

    I hope you have a better tomorrow with a renewed energy to get the answers you seek.

    vent anytime it helps a lot and we are all here for similar reasons.
  • i feel so so sorry for you and yes i do understand completely where you are coming from.
    defo go see the nerve specialist because after reading your post it really does sound as thought it is nerve damage.
    i have teenage kids as well so i totally understand how you feel about them watching their mother in pain.
    the look on there little faces is frightening and your heart just bleeds for them.
    why dont you sit her down and explain all that you can and ask her for her help turn it round in a way that she feels like she is there for you at the moment and that you do need her help as much as she has needed you threw the 13yrs she has been around.
    i did this and it did make them think about it in a different light,but believe me sometimes they still go off on one!!!lol
    so give it a go and im thiking about you as i too was once in your position and i totally understand how you feel.

    good luck and keep us posted on how you get on.

    LOVE P
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  • Thank You,

    Tomorrow will be better I am sure. I will let medicine work and start anew. I see you have taken Norco. Thats what I am trying. I am hoping it will give comfort.

  • She is such a good helper. She just wants her mom back so bad I know its very hard. She broke down tonite as I am losin it alot tonite. I will try to chat my feeling hear with others who have been throgh experiences and try tobe positive. It is just hard today. I will try to go to nerve doc too. If it will help. was just frustrated. I can go to any and all.... Not to costly just timley

    thanks for your thoughts and will be in touch nite
  • hey susie,
    its hard being a mum to teenagers at the best off times never mind the fact that we have all this pain to deal with also.
    my oldest is 17(girl) now when i started out onthis road she was the same age as your daughter is now and believe me i would have been lost without her she is my knight in shining armour.
    dont get me wrong we have had our ups and downs like all parents and teenagers do but heck id be lost without her.
    she finishes school sept 09 and then she is off to uni, i am begining to realise how hard a time she had with covering her school work and looking out for me life is very tiught for our kids.
    then comes the next girl(15) well she is the most easiest off going child i have ever met in my life!!! dont know where she came from lolshe to helps out but needs a little push in the right direction!!!
    and last but not least my beautiful baby boy (well hes 11!!!!) but still my baby and my only son,well the girl thats gets him will have a good life he is a gentleman in the making!!!
    so basically the moral of the story is..........live life, enjoy your kids and dont suffer in silence enjoy the ups and downs off being a parent because these years pass by so so quickly and can never be replaced.
    our kids are there for us we just need to give them a little guidance once in a while.

    love to you and your wonderful family xoxoxooxox

    MRS P
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  • I've had the same things happen to me. Docs saying they don't know why you're in so much pain, and telling me to get evaluated. I got evaluated and got a clean, passing grade of sanity, haha! Then they started listening to me a bit more but I still had to fight for what all of us deserve, pain relief. I believed in myself, and had a closed MRI and gee, wahlah, I have a herniated disc. Not saying that you do because bulging discs can cause just as much pain. The nerve test only tests for nerve damage of motor nerves. A lot of times, small fiber nerves or sensory nerves can be the problem. There is a test for this but you basically have to make them do it.

    Please don't give up hope, I've felt like you so many times but I'm living proof that help is out there!!! You just have to research, not be afraid to MAKE docs understand, and keep at it with the strength of 1,000 men. It's hard, I know, but hope should not and cannot be lost. I had to go to a bunch of docs before I got the tests I needed and my pain properly treated. I had to stick with the same pain doc for 6 months in order for him to trust me and provide me with relief. But I'm grateful I stuck through it and I have faith that you can too!!!

    I'm here for you if you need me...

    Much love,
  • Good morning,

    I will turn to you for your advice. I have an appt set for Dec 23 already and will need then to ask about the nerve test you mentioned. Will have to lok at it again. Then will go to nerve doc with info. Do you know if there is such a thing as a MRI where you are vertical? That would show alot. This morning my husband said my back looked just terrible very swollen the worst he has ever seen yet.

    Thanks for your knowledge Lisa.

  • Hi Susie, I totally understand your frustrations. I've had back pain for over 10 years and it has slowly worsened and the last 4 years have been terrible.

    I've had everything from PT to facet injections, in between 3 sets of Epidurals, Sacroiliac Injections, Discogram, Selective Nerve Root Injections, pain management and am still in pain. I have a mild herniated disc, leg pain, numbness and weakness in left leg and my right calf pulls with pain when I walk, but the nurse from the new orthopedic Surgeon I am seeing next Monday just called and said the MRI showed I shouldn't be having the pain I say I am having, however, they would see me.

    I've been to several Neurosurgeons who have said the same thing and then finally, a few years ago an orthopedic surgeon, who first told me he could take the pressure off my left side, by doing fusion surgery and that would help my pain. Then he found out I had a small stroke 7 years ago and blamed osteoporosis for not doing surgery. I had back pain before the stroke. But, I understand his hesitation, and I suppose I will have to live with this pain the rest my life because of that.

    My pain management doctor I saw for 10 years has relocated, my neurologist who understood my pain and has taken care of me for 15 years, has recently retired and it seems I'm right back where I started. I suppose I will keep the appointment with this new doctor, I was referred to him, however, I need to find a pain management doctor, perhaps one who can help me. I'm taking medications, but they are not helping at all.

    I have grown children and grandchildren and do not feel like doing any of the things I did. And, I don't have time to think about myself, I stay busy, but do have to give in and stay in bed some days. However, I do try to help my girls out with the grandchildren, and stay busy, but the pain persist and I pay for everything .... just doing laundry.

    Best of luck to you,

  • Whatever you do keep on going to docs until you find one that can and will help you. It took me 2 1/2 years to find the doc that would help me. He/She is out there you just have to find them. The fact that they have put you on Norco may indicate that they believe that you are suffering from nerve pain. I think that is a nerve pain med. A pain psych does not always indicate that they do not believe you. I have seen several members with chronic pain post that they see them and they actually help them to cope with the chronic pain. Good luck to you and please keep us posted.
  • legalone and painintheback for your thoughts.... Today was alittle bit easier for me. I am trying to let new meds work. I will be in here with updates and really am thankful for you all. hugs Susie
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