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I'm new to these boards and not even sure if I am in the right place. I have suffered from dibilitating migraines for the last 17 years. After having a migraine daily for 6 months and being dismissed by my neurologist we finally stumbled upon a medication that helped me. All of this I managed to deal with while working full-time and goind to graduate school For two years I was virtually pain free and in that time met an attractive, intelligent, romantic man. My friends warned me that we needed to slow down because he had not seen me "in pain" yet, but despite their advice we married in December 2006.
Since February 2007, just 2 months after our wedding, I have been suffering from chronic pain in my spine which causes (?) tingling and numbness in my hands and legs on both sides of the body. If that were not enough issue, when I am not numb I have shooting pain in all four extremeties that feels for all the world like cats are scratching me. I have been to an Neuro, Rheumy, and NeuroPhys and had MRI, MRI with contrast, Xrays, Nerve Conduction and Evoked Potentials. I fail the neuro exam every time in multiple areas and apparently also did badly on the evoked potentials but they still have not narrowed down the exact problem. The NeuroPhys very much thought it was MS, but I do not have the correct symptoms so all she could tell me was that it was something in my Brain or Spinal Column.
My husband was supportive at first when I fell down the stairs and passed out behind the wheel of the car and could not drive. But after 2 years of this we fight on a daily basis. According to him I am a "hypochondriac" who is "bipolar". He is constantly telling me to seek couseling and stop seeing doctors for my "made up" illnesses even after both he and my mother sat in on appointments with the NeuroPhys where she stated that this was not a psychiatric illness at all.
To make matters worse, his father has a mental illness and I have always known that he could not tolerate being around people who were mentally ill. When they tried putting me on seizure meds to help with the pain I had violent reactions to three different medications, with terrible mood swings and psychotic episodes. I even slit my wrists with a razor on two different occasions, but did not cut very deeply.
It has already been suggested to us that we move closer to my family so I have a better support system. I have been unable to find FT work in our new location (where we moved for his job) and the pressure of me not working FT is very upsetting to him and our finances. Plus all of my friends are so far away . . . But he says that is not possible. Plus any time I take more than one medication he goes on and on and on about how I "pop too many pills."
I am tired of fighting at this point but I'm also tired of hurting. As long as I act "well" then things are fine except I hurt about 10x's worse. Any suggestions?