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Back of neck heat

AnonymousUserAAnonymousUser Posts: 49,550
edited 06/11/2012 - 7:27 AM in Neck Pain: Cervical
Hi All

I am new to this forum and hope someone out there can identify with my problem.

To cut a long story (7years)short, I have fierce heat on the back of my neck which has caused me a lot of problems. I have no real pain but the heat is massive. this heat causes me to get dizzy, disorientated and basically i have to lie down before i collapse. I have blacked out recently and come close to collapse a few times since, and every time this happens after I get a surge of heat up the back of my neck.
It is snowing outside and I am out in a t-shirt! My arms and everything else is freezing but my shoulders, neck and head are roasting.
I would be very grateful if anyone can offer any thoughts as i am almost totally incapacitated and i believe this is the root of the issue.


  • And welcome to Spine-Health.

    That's very interesting - I've never heard of that before. There have been some posts here about tingling/goosebumps, etc. on the upper body which were symptomatic of cervical spine issues, but nothing like what you've described.

    Have you been to a doctor? Gotten an MRI? Had surgery or a surgical consult?

    Please give us some more information about you and what steps you've taken regarding this.

    Take care,
  • Hi Cath

    This all began 7 years ago when i collapsed twice at work. i could not lift my head off the desk at all and basically after a week in hospital i was told to go home and that "some people get these things and you just have to learn to live with it". i had very bad dizziness and eventually could not work or drive. it was consistently getting worse to the point where i could not look at anything moving(e.g. moving traffic)but i would have to lie down.i could not go shopping as they walking and looking at items made me so dizzy. all this time my neck was burning up and i could not wear a coat even in winter.
    Eventually it was getting so bad i decided to try again with the doctors and ended up with a neurologist who put me on medication for the dizziness (ataxia). it took a long time to get this medication right but it worked to a point. i was able to return to work and at least go places alone again. i was doing quite well for a time until it was decided that i could come off the medication (Tegretol). The theory behind this was that the brain repairs itself and that i was on such a low dose i should be fine without the medication. I blacked out following that and have had a few other syncopal episodes since that, and then the constant dizziness and heat on my neck came back again.

    I have started taking the tegretol again but my neurologist has no idea what the heat on the back of the neck is and i believe that all my issues are steming from this. I did have an MRI and everything was "normal".I am currently seeing another doctor regarding the syncopal episodes and have had tilt test and heart monitors etc... the heart is basically ok. they have mentioned POTS as a possibility.

    When I look back at the different episodes(syncopal or dizzy/disorientated) i have had, the one common denominator is the overwhelming heat on the back of my neck and i was hoping that someone would have some idea as to what could possibly cause this. :SS

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  • Is it "burning pain" or is it just "burning hot"? I would definitely recommend a second opinion! Has your neurologist given up at this point?

  • Hi C

    Yes it is burning hot not burning pain. For anyone to touch my neck or head it feels like you could fry an egg on it! Neurologist has not given up as such but has no interest in the heat and is treating the dizziness. I feel that one is causing the other. When I am very dizzy and put a cold pack from the freezer on my neck it relieves the dizziness. My only problem is I cannot walk around for the rest of my life with frozen peas stuck to my neck!!!

    I could be wrong but though it was worth a try to see if anyone else has experienced this.

  • Did they do an MRI of the neck and checked the cervical disc? Do they think it's a disc problem? I have burning in my lower back and occassionally that hot neck. I have cervical issues and DDD which may cause symptoms. I'm starting early menopause and that can do the heat flush also. I hope they do some more studeis on c-spine MRI. Good luck and take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
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  • Hi Charry

    They did an MRI of the head not the neck. They treat the dizziness and have said that they may never know what has caused the dizziness. It is really over the last few months I have had several syncopal episodes and the one common feature of them all is the roasting hot neck and head.

    Is the burning you have painful or burning hot?

    Is it best for me to look for an MRI of the neck or to see if a chiropracter can see anything wrong? I am not sure which is the best approach for me to take and everything takes so long!

  • Here's something you might be interested in reading about.

    Criteria for Diagnosing

    Complex Regional Pain Syndrome Type I (RSD)

    * The presence of an initiating noxious event, or a cause of immobilization
    * Continuing pain, allodynia, or hyperalgesia with which the pain is disproportionate to any inciting event
    * Evidence at some time of edema, changes in skin blood flow (skin color changes, skin temperature changes more than 1.1°C difference from the homologous body part), or abnormal sudomotor activity in the region of the pain
    * This diagnosis is excluded by the existence of conditions that would otherwise account for the degree of pain and dysfunction

    Complex Regional Pain Syndrome Type II (Causalgia)

    * The presence of continuing pain, allodynia, or hyperalgesia after a nerve injury, not necessarily limited to the distribution of the injured nerve
    * Evidence at some time of edema, changes in skin blood flow (skin color changes, skin temperature changes more than 1.1°C difference from the homologous body part), or abnormal sudomotor activity in the region of pain
    * This diagnosis is excluded by the existence of conditions that would otherwise account for the degree of pain and dysfunction.

    Taken from http://www.rsds.org/2/what_is_rsd_crps/index.html
  • sunny1966ssunny1966 VIRGINIAPosts: 1,385
    It is so frustrating waiting for a diagnosis. Just my opinion, but I would try for an MRI of your cervical spine before I tried the chiro. My neck also burns like its on fire almost continuously and I have cervical spine issues. Mine is painful also though. Do you have any neck pain or headaches?
  • edited 04/16/2013 - 10:31 PM
    I am also new to this forum.
    I have been having the same problems with my neck getting really hot and then I get really dizzy weak and start sweating really bad. It doesn't matter if I am sitting,standing, walking, laying down or I can be sound asleep when it happens. I have gotten to where I can tell when it is fixing to happen and know I need to sit down if I am not already because if I don't I will pass out or just collapse. It doesn't last long maybe 15-20 minutes but it seems an eternity to me when it is happening. I am a manager at a convienient store and I had some of my employees ask me why I am sweating so bad and I tell them and they have felt of my neck and it really freaks them out to feel how hot it is. It can be freezing weather and I am outside myself without a jacket or long sleeves on. My employees can be inside the cooler with jackets on stocking it and I can go in with short sleeves on and spend 2 hours or more in there and come out sweating. I really can not understand what is going on with me. I have had 4 neck surgeries and the last one when I came to I had a really bad stinging on the left side of my neck and between my shoulder blades was told it would get better but if anything everything has gotten worse. I have been to my family doctor he has given me meds to see if that would help with the sweating and hotness but nothing. I have been to my pain doctor still no answers and even back to my so called surgeron. All he can say is there is nothing else to really do, they tried to do an MRI on my neck but the spasms was so bad the pictures came out blurry which I did not even know I was having spasms that bad because I didn't think i was moving during the test but they kept saying I was but the surgeron said my neck getting hot and sweating has nothing to do with my spine but he would order a CT Scan and check that. I did not have this problem until he did my surgery and I know my body and know when there is something wrong with it. Why do they want to look at me like I am crazy or just wanting more meds. i do not want to spend the rest of my life on pain pills or pills that take over my life I want to know what I am doing, but i want to be able to have a life and with this kind of pain no one can have a normal life. Mine has gottne so bad i am having severe spasms 24/7. I am constently jerking like I am on some really bad drugs or something it is embrassing so I stay to myself at work and at home. I hurt so bad all i do is cry, I can't enjoy my grand daughters my boyfriend or even my little dogs. They look at me like what is wrong all we do is stay in the bed when I am not at work. The doctors think it is all in my head and I know its not. I just wish I knew what was wrong and what could be done about it. It has taken over my life. I have always been able to deal with my pain but this well its something totally different and something I am not able to deal with on my own. i can't live like this no one should have to, this is not living. Is there anyone out there that can help explain this and what can be done for it.
  • but i wonder if your surgery could have messed up your hormones somehow and is giving you menopause symptoms! After surgery your body goes through a lot. Just a thought!
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